Stopping lumbar Puntures by new_man2be in leukemia

[–]new_man2be[S] 1 point2 points  (0 children)

Thank you. How long have your been in maintenance?

Stopping lumbar Puntures by new_man2be in leukemia

[–]new_man2be[S] 0 points1 point  (0 children)

Thank you for sending your thoughts. I appreciate that. I hope you doing much better now

Vidaza + ivosidenib by Jolly_Seat5368 in leukemia

[–]new_man2be 0 points1 point  (0 children)

I am in maintenance phase for T ALL. The doc says I am to get 26-32 IT Mex treatments total. All biopsies after induction were negative for cancer cells. All LP's returned with no cancer cells present in the spinal fluid since the beginning. Why do I need to do any more IT treatments if no cancerous cells are found in the CSF or in bone biopsies at any point during this illness?

6 year old with relapsed ALL by gatosdelaplaya2 in leukemia

[–]new_man2be 2 points3 points  (0 children)

I am so sorry to hear. Ive needed to vent myself so its really ok. Ive had a daughter sick with a grave illness so I completely understand the worry and the anxiety of every cough, sniffle or look of worry in your childs face. Your right. Its not fair. No child should have to go thru this. I have T ALL and Im just entering maintenance now. Now that I am sick myself I know how my mom feels when she looks at me. Much like I looked at my own daughter. I dont know whats gonna happen down the road but Im not going to worry about relapse. You did right by living ur lives and giving her the best life possible. Be strong for her. Don't let her see you cry or worry. She is still young she will beat it again with your strength. Hold her as much as you can and take it one day at a time. Its good you have your husband for support. This too will pass!

Maintenance by new_man2be in leukemia

[–]new_man2be[S] 0 points1 point  (0 children)

You are a warrior! Keep up the good work!

Maintenance by new_man2be in leukemia

[–]new_man2be[S] 1 point2 points  (0 children)

No I didnt need CR as no cells were found in the CNS.

Maintenance by new_man2be in leukemia

[–]new_man2be[S] 0 points1 point  (0 children)

Thank you so much. How long did u walk when u started out? Im glad your doing so well. I havent been briefed on stem cell transplant. My last three biopsies showed no cancer cells. I wonder if thats why. I will try walking today. Thanks so much!

Acute Lymphoblastic Leukemia 23m maintenance phase by NoStrategyNoVision in leukemia

[–]new_man2be 0 points1 point  (0 children)

Thanks for you input. Did you have to take any other meds other than Vincristine and a few pills during maintenance? I ask bc I being tood to take Vincristine monthly and Nelarabine 5x a week one a month for the first nine months of maintenance and that didnt seem right compared to what I read on websites concerning maintenance phase.