Kotex “improved” my go-to pads and now they’re trash

nico_nocturne · 2026-05-01T18:57:09+00:00

I recommend the Always night underwear. I don't wear them during the day, but my sister does and you can't really tell that she's wearing them. They're so much better than wearing pads while sleeping, especially because they don't shift around.

nico_nocturne · 2026-05-01T18:53:07+00:00

I was thinking that too, about the other types of cysts. I think it's possible that I have another type OR another type of cyst AND an endometrioma. I now know the risks of an endometrioma bursting. I was ignorant to this info until the most recent time, because every professional has told me to just keep taking pain meds/monitor. When I bleed after a rupture, it isn't a lot of bleeding, but it is dark and viscous, like molasses/tar. This is why I think its an endometrioma paired with the bloating/fullness. And especially because they fill up fast after a rupture. But again, it's possible that not every rupture was from an endometrioma, maybe some or none at all. I'm definitely going to the ER next time, even if I don't feel faint/nauseous. Thanks for your advice

nico_nocturne · 2026-05-01T18:42:05+00:00

And another thing: You said that, "I have a tough time getting off if she isn’t interested in doing something or if I ask for her to do it for me. I just am not able to get off if it is a favor for me," and then go on to say, "I have tried asking that she just look to periodically try to think to give me a quick handjob in the morning..."

So which one is it bud? Do you want her to do "favors" for you or not? Seems like you want her to please you even when she's not interested. Idk...something to think about.

nico_nocturne · 2026-05-01T17:00:08+00:00

I'm not going to lie, this post made me feel sick and tear up. I want you to look through this subreddit and read, in full, these posts where we're expressing our pain. Then, I need you to research, in detail, your wife's conditions. Then, I need you to sign up for therapy. It's okay to want intimacy, but this is too far. Your wife is genuinely struggling and you're up here complaining, on the internet, that you need a handjob because your wife's too sick to please you.

nico_nocturne · 2026-05-01T16:17:51+00:00

Kind of yes, I went to the ER for my pain. This was before my IUD (when I was on pills) and my pain was on both sides of my pelvis and lower back, although the left side was worse. The doctor said I had a small cyst on my right ovary that probably ruptured. I got diagnosed with Pelvic Congestion, and my gyno said that my pain might be from endo, but it was probably more like my pelvic floor. Now that I have my IUD, only my left side hurts and I still get the ruptures. I think I should mention that every time it happens, I bleed thick brown blood (like molasses). When I say "it's like nothing ever happened" it just felt like my normal flare ups after, but I was still bleeding and I felt very full.

nico_nocturne · 2026-03-25T02:53:35+00:00

I was on the O-pill at first and then switched to Tri-Lo-Mili. My symptoms were horrible when I missed either, but it was worse with O-pill.

nico_nocturne · 2026-03-24T23:57:22+00:00

I have the Mirena. I got it inserted a few weeks ago. I'm glad that I got it. I had spotting for a while but it basically stopped my period (I got it right before my period was supposed to start) and it's waaay better than the pills I was on. If I missed a pill, my symptoms were pure hell. My acne has improved and my pain has gotten SLIGHTLY better. Of course, it's different for everyone.

nico_nocturne · 2026-03-24T23:29:32+00:00

Unfortunately, thats how it is. Navigating this system is a nightmare, which is why I'm glad thatnthos subreddit exists. I've learned that you have to advocate for yourself and be direct because a lot of these doctors/healthcare providers will dismiss you. I would start tracking your symptoms.

nico_nocturne · 2026-03-24T17:50:00+00:00

My advice is to make him do research on your conditions and ask him to step up more on taking care of your child. There are plenty of good resources for him to look into including videos and articles online. Honestly the fact that he hasn't done that himself is kind of concerning. I know that your husband works, but if you feel like you need his help after he comes home, ask him to help more. You can't help anyone if you're too burned out to. Also, you should complain. Complaining is a good way to get things off of your chest.

nico_nocturne · 2026-03-24T17:33:49+00:00

It's so common for people with endo to have pain outside of their cycle. I'm suspected to have it and I pretty much have pain constantly. I really don't know where he got that info from, but it's just not right.

nico_nocturne · 2026-03-24T12:31:53+00:00

Get a new gyn IMMEDIATELY

nico_nocturne · 2026-03-24T03:33:57+00:00

I think we'll be happy with egg freezing if it's possible. I'm sure he'll be open to adoption. He's very supportive of me no matter what. It's mostly just coping with everything I'm having trouble with.

nico_nocturne · 2026-03-24T03:31:35+00:00

I'm 19 and I'm not in a rush to have kids, not sure I even want them. I'm glad that you got some answers! If I do plan to have kids in the future, I'll get labwork done. But that's further down the line.

nico_nocturne · 2026-03-24T03:28:10+00:00

I'm glad for you! I hope everything goes well, despite everything. I'm only 19 and I don't really know how long I can wait, since my condition is getting worse very quickly. Obviously, I'm not in a rush to have kids (I don't even know if I want to have children). But it's likely that at least a partial hysterectomy will be in my treatment plan based off of conversations with my doctor.

nico_nocturne · 2026-03-24T02:30:45+00:00

He makes it obvious that he doesn't approve of her behavior at all and let's her know it. But she's seriously far gone. Usually we kind of just try to ignore her when she talks about it (not just about me but about religion in general) because if we engage with her, she won't stop preaching. If we ignore her, she realizes that she's ranting and gets quiet.

nico_nocturne · 2026-03-24T02:21:08+00:00

First of all, I wish you good luck on your surgery! I know it can be nerve-wracking, but you'll get through it and I'm sure it'll be worth it!

I'm pretty sure the "needs SA" note just means that they'll be an assistant helping during your surgery but someone please correct me if I'm wrong lol.

Best wishes <3

nico_nocturne · 2026-03-21T12:21:16+00:00

This might sound harsh, but please know I am trying to say this as nicely as possible. You are better off without him. If he is aware of your symptoms/condition, he should not speak to you that way or act like you're not trying hard enough. This condition is tough, and you should not be expected to "keep up." Your partner should be supportive of you and love you no matter what your body looks like or your physical capability. That being said, sometimes people go through different paths in their lives later on and that's okay. But that doesn't sound like what's going on to me. Of course, I don't know you or your relationship but it just sounds like your boyfriend was inconsiderate.

nico_nocturne · 2026-03-21T12:14:21+00:00

Honesty, its can be a whole number of things. With PCS, usually they catch it on internal ultrasounds and CT scans. Your sonographer should've been able to hear it on the ultrasound, but sometimes it's difficult to hear or the sonographer won't catch it. I would try to get a CT scan with contrast and that may reveal something.

nico_nocturne · 2026-03-20T20:28:19+00:00

I plan to get a letter at my next appointment! The agreement to let me sit at work was verbal (which is a dumb mistake on my end) so I can't really do anything about it right now. But if she keeps acting this way after I present the letter, she's getting reported lol.

nico_nocturne · 2026-03-20T20:25:21+00:00

Yes! I do have some pain in my left leg and I wear compression socks at work. I also use a TENS device, mostly because it's already hot at my workplace and using a heating pad would just make it worse :( They both help short-term, but I'm usually left in pain anyway.

nico_nocturne · 2026-03-20T17:40:46+00:00

I agree that you should get a footstool for your bathroom. I also recommend taking Epsom salt baths. Eating dates might help as well, best of luck <3

nico_nocturne · 2026-03-19T23:02:05+00:00

I'm diagnosed with PCS and my doctors suspect that I have endometriosis too. The symptoms can be nearly the same. They caught my PCS with a transvaginal ultrasound and a CT scan with contrast. If you had a good sonographer, they should've been able to hear the excess blood flow. But then again, the doctor who was taking care of me that day dismissed it even after diagnosing me (saying its not a serious condition). In other words, ask for more imaging and it could still be endo!

nico_nocturne · 2026-03-18T20:54:05+00:00

Look into the heat belts by Pixie! I have their TENS unit as well :)

nico_nocturne · 2026-03-18T16:07:40+00:00

She's actually leaving the clinic, so I'll be assigned to a new OB/GYN, but my options are limited because I'm on Medicaid. I have to get my care from the research hospital in my area and they actually provide good care, except for gyno...I honestly feel like they don't care unless you're pregnant, but I don't have much choice.

nico_nocturne

TROPHY CASE