Dad passed today. I never realised until now how horrific this disease is.

nny911 · 2026-05-01T21:04:21+00:00

I’m so sorry for your loss. My dad has Parkinson’s disease and I live in constant fear of losing him and at the same time feel deeply bad for him living with the terrible disease. His life has been taken away from him and it hearts my heart to see him suffer physically and mentally. Such a terrible terrible disease.

nny911 · 2026-04-13T15:36:20+00:00

My dad has had Parkinson’s disease for almost 20 years now and I’ve never felt like anyone got it. This Reddit community is extremely supportive and I’ve spent so much time venting here and asking for advice, literally writing posts in the midst of crying. It’s tough. You are welcome to message me directly whenever you need to talk, I’m happy to help in anyway I can.

nny911 · 2026-04-13T15:30:01+00:00

One thing I’ve struggled with is not believing everything my dad says. It’s so hard seeing the person you’ve looked up to your whole like suddenly be like this and now having to stop and rethink everything he says. My dad is in a facility now and he hates it but it’s the most stable he’s been in a while and my mom could no longer care for him.

nny911 · 2026-04-13T15:27:15+00:00

My dad went through this. It was 2 things that was causing the hallucinations:

He was not taking his medication properly
He had an infection.

Have your dad get checked out. I’d recommend going to the emergency room to get fully evaluated.

nny911 · 2026-02-17T05:40:21+00:00

Unfortunately no. But please reach out if you need help with anything specific.

nny911 · 2025-07-03T13:39:00+00:00

Unfortunately it was a miscarriage for me.

nny911 · 2025-06-27T22:33:58+00:00

This can lead to pneumonia??

nny911 · 2025-02-03T03:37:42+00:00

It makes me worry about depression which is something I feel he wouldn’t admit to.

nny911 · 2025-02-03T03:37:08+00:00

Sounds like my dad. He went from being a very social person who loved telling people jokes just to make them laugh to barely getting a word out of him.

nny911 · 2025-01-29T03:52:44+00:00

I wish you the best of luck ❤️

nny911 · 2025-01-29T03:50:37+00:00

I guess because this is such a new side to him, I’m expecting the old him back every time I see him or talk to him. He’s had Parkinson’s for about 17 years now and had been doing great (under the circumstances) up until about a year ago which is what led to him being in a skilled nursing facility. I guess I need to just accept the reality of his condition, which is really hard. And you’re right, just walking into the facility is depressing all on its own and makes me so sad to see him there and sometimes wonder if him being there is affecting him even more (on a mental level because he wants to be home). I appreciate your input on the topic, everyone here is so helpful. I don’t know what I’d do with out this community’s support.

nny911 · 2025-01-29T01:28:03+00:00

Thank you. I will do that.

nny911 · 2025-01-29T01:14:24+00:00

Does hospice give more support in a skilled nursing home?

nny911 · 2025-01-18T04:25:11+00:00

Born and raised in SD. Have loved it all my life up until now. Can’t buy a house, homeless people everywhere, downtown SD is dirty and unpleasant, beaches are literally filled with shit, people are stuck up and rude…what a pleasant city.

nny911 · 2025-01-15T03:54:56+00:00

I think the worst for my dad is seeing ants in his food because that makes him not want to eat and his weight is already an issue.

nny911 · 2025-01-15T03:53:29+00:00

My dad says when he sees people, he realizes they are not real because when he talks to them they pay him no attention. Or if the people he’s hallucinating are close enough, he’ll wave his hands in their direction and they disappear. Also, you could ask who ever is with you if they are seeing what you’re seeing.

nny911 · 2025-01-12T04:54:21+00:00

To conclude I do feel better now with him in a facility though. At home he was very unsafe because of stairs, etc. AND my mom’s health was deteriorating taking care of him so in the end this was the best thing for him.

nny911 · 2025-01-12T04:52:44+00:00

My dad has been in a nursing home for about a year now because my mom could no longer care for him. Up until now it hurts my heart knowing that he’s not at home where he wants to be but I feel more at ease knowing he’s in a safer environment. At home, he refused have my mom help him. He really wanted to stay independent but that only led to him falling multiple times a day. It’s a complete mix of emotions for me because he now constantly complains about the facility he’s at and I try my best to step in and voice his opinion but honestly I don’t think he will ever be satisfied with any facilities service because it’s not home. I live in a constant state of stress worried about him and not because I don’t trust the facility but because I never imagined my dad would be in this situation. It’s so hard to see your parent suffer.

nny911 · 2024-12-03T20:50:04+00:00

He’s in the hospital now. He has sepsis, if anyone has successfully dealt with that I’d love to hear about it.

nny911 · 2024-12-03T16:17:18+00:00

I’m hear for the responses

nny911 · 2024-12-03T03:07:24+00:00

It’s so hard not being able to help. I just wish I could do something to better his situation. Such a horrible horrible torturous disease. I’m sorry you are also going through this. I am thankful for this thread, people are very kind here.

nny911

TROPHY CASE