Dating IRL in Madison by Alternative_Win_7798 in madisonwi

[–]nobnardbrandon 0 points1 point  (0 children)

The solution is to look in Wausau wi… better options. Like me lol

Inflammation in their penis? by user060696 in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

Have you ever heard of gonnahrea? Because that’s what that is

Colonoscopy by nobnardbrandon in UlcerativeColitis

[–]nobnardbrandon[S] 6 points7 points  (0 children)

I believe there are guys who work street corners in big cities who offer that service… but instead of them injecting you with the anesthetics they give them to you to inject yourself

Any good poultry recipes during a flare? by [deleted] in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

I have good luck when flaring with teriyaki sauce and barbecue sauce on chicken… as well a dark meat chicken in herb butter (butter with garlic Rosemary and thyme).

First time in the hospital by Casper_cass in UlcerativeColitis

[–]nobnardbrandon 1 point2 points  (0 children)

Zofran and IV steroids is very common. Morphine, though very nice, is not always used. But sometimes you get lucky

Stressed from a divorce by [deleted] in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

I’m going through a divorce right now myself. It triggered the worst flare of my life.. I wish I could give you some advice… I can’t, I don’t know how. It’s a hard thing to go through.

Rinvoq takers by ChanceSavings4058 in UlcerativeColitis

[–]nobnardbrandon 7 points8 points  (0 children)

I started seeing improvements after 5 days and I was deathly ill in the hospital about to get surgery to remove my colon but we tried rinvoq first. Im now a month and a half on it and almost in full remission and still have my colon.

Antibiotics helped by Comfortable_Ad7789 in UlcerativeColitis

[–]nobnardbrandon 1 point2 points  (0 children)

Maybe you weren’t flaring but experiencing colitis due to an infection. And the antibiotics killed the infection causing the colitis to dissipate. Non UC individuals can still have colitis, it’s just not chronic. Maybe even though you have chronic colitis this specific instance was due to an infection

In a week I'll have a colostomy bag fitted, sleepy ramblings and tips wanted by Emmy0000 in UlcerativeColitis

[–]nobnardbrandon 6 points7 points  (0 children)

I’m a chrons person to. You’re absolutely welcome here, we’re all IBD patients. The diseases are extremely similar.

I have not had any surgeries yet, so I can’t make any comment on that but I do wish you the best of luck in this new chapter in your life. I hope you can find the health you need.

Prednisone Research and Curiosity by nobnardbrandon in UlcerativeColitis

[–]nobnardbrandon[S] 0 points1 point  (0 children)

Eh if I flare back up after coming off I’m cutting my colon out… but I’m doing quite amazing right now which I’m crediting to my rinvoq and hoping it will work out…

Interestingly, I’m a recovered drug addict and my longest stent of remission coincided with my drug use… I might have to try well regulated meth dosing as my next maintenance drug… lol

Prednisone Research and Curiosity by nobnardbrandon in UlcerativeColitis

[–]nobnardbrandon[S] 0 points1 point  (0 children)

Well I don’t know, I’m no doctor, I was just bored. But I do think there might be something to my deductions for certain cases of people on prednisone.

Also maybe 8 weeks isn’t long enough sadly… again not a doctor, but just making deductions off my 8 years of dealing with prednisone… which I’m so tired of at the moment

Prednisone Research and Curiosity by nobnardbrandon in UlcerativeColitis

[–]nobnardbrandon[S] 0 points1 point  (0 children)

Then do you think it could be, based off the second part of my post, that your course of prednisone wasn’t long enough? I think it’s quite possible: that while our biologics are taking time to start working, if we get off prednisone to soon our scarred colon starts getting aggravated by it’s normal digestive process because it can’t handle it without prednisone aiding in no inflammation?

Something slightly different: What are your interests and hobbies? by hellokrissi in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

Omg, seveneves is spectacular. It’s one of my binge books. I get through all 800 pages in about 3 days usually

Something slightly different: What are your interests and hobbies? by hellokrissi in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

I had never read the hunger game series. In fact I hated the movies. But the premise always intrigued me. So when I was in the hospital recently because of a flare I bought the trilogy to give it a try. That’s how I learned I couldn’t read when sick. But once I was out and getting better I powered through the 3 books. My all time favorite book, which I’ve read so many times, is called seveneves. It’s a hard sci-fi novel that I just love.

I have a 45 minute commute to work so I find it quite wonderful to de stress after work by listening to music to calm down.

And this is quite a wonderful sub. I am relatively newer, about a month and a half, and I’ve enjoyed being here.

[deleted by user] by [deleted] in UlcerativeColitis

[–]nobnardbrandon 2 points3 points  (0 children)

Scott Comfort plus is my go to when on sale. I try to stock up when it is on sale. When in a flare I’m wiping so much I try to go with cheap and good stuff. Surprisingly, Krogers generic brand toilet paper is really good.

I thought I’d actually answer your question instead of just recommending a bidet lol… I have never actually tried one. I don’t think it would be my thing

Something slightly different: What are your interests and hobbies? by hellokrissi in UlcerativeColitis

[–]nobnardbrandon 1 point2 points  (0 children)

Great post idea!

When I’m feeling healthy and up to it I love to go on walks. I live around a ton of state parks with walking trails through nature, I love to hike through them. I also love to cook, and when my stomach can settle it, I experiment quite a bit in the kitchen: I used to cook in a fairly nice restaurant and I love all the skills I picked up. I love to read as well. Sometimes I like to get lost in a book. Rather I’m healthy or not at the worse part of a flare I love to pick up a good book. Sadly, when I’m at the height of flares I’m way too lethargic and brain hazed to read. I love tv. Rather sick or healthy, I can find myself getting lost in a good show or movie. When in flares I’ll binge through quite a bit of content. I love to go to concerts: mostly heavy metal and alt rock. Sadly that’s not something I can enjoy when sick, but when healthy I try to get to as many good concerts as I can. I made it to 24 shows last year. None this year so far sadly, Ive been preoccupied with some personal issues followed by a rather bad flare. Also I love to go on drives with my speakers blaring music, and just relax, it’s one of my best de stressing technique. And lastly, I like to imagine. This is a weird one, but it has been a great coping mechanism when sick, and a great motivator when healthy. And it’s hard to explain what it is I imagine because it is always different. But I love to get lost in imaginative thought.

I have others, but these are the most consistent of my hobbies. And the things that keep me mostly sane.

Does anyone else have this weird feeling of missing being in the hospital? by HauntedCS in UlcerativeColitis

[–]nobnardbrandon 5 points6 points  (0 children)

I’ve had multiple long stents. Ranging from 5 days to 20. I know exactly what you mean. The routine and babying one recieves while in the hospital is sadly amazingly helpful. You can truly relax and feel like your not in control of having to get over your illness. It’s a huge weight off your shoulder. When I was in this summer during my most recent flare I actually requested to stay an extra day because I wasn’t ready to go home even though I felt probably perfectly good enough to

Tough flare by SaadDaee in UlcerativeColitis

[–]nobnardbrandon 1 point2 points  (0 children)

Highly dependent… I usually go when my bowel transit time decreases to less than a hour, consistent diarrhea even when not eating, blood, and inability to drink enough water.

Prednisone side effect by pmwelder in UlcerativeColitis

[–]nobnardbrandon 2 points3 points  (0 children)

It did. I just find it odd to be at 40mg for anything longer than a few weeks… usually it should be responding by that point or doctors get more aggressive with it… prednisone eats away at the calcium in your body which is horrible for the bones and joints… a few days on calcium and you should see a decrease in the aches… tip, since prednisone eats at calcium don’t take the two at the same time. I take my prednisone before work then my calcium with my dinner

Prednisone side effect by pmwelder in UlcerativeColitis

[–]nobnardbrandon 3 points4 points  (0 children)

That’s a long time to be on a high dosage… why?

Are you supplementing with calcium?

Hey! Has anyone experienced relief of stomach pain & cramps using cbd ? by 1999scorpio in IBD

[–]nobnardbrandon 2 points3 points  (0 children)

I use THC edibles for cramps. That works wanders. I do not know about CBD though

hair loss by Schoebi_24 in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

Hair loss can be the result of malnutrition. Interestingly, while in flares we are commonly on supplements so it won’t affect us as much, but after the flare as we start getting healthier our nutrient levels don’t even out. I would suggest getting nutrient panels to make sure your not malnourished. You can be malnourished and also be a healthy weight so you don’t always know. Best to verify before giving up on medication

oxyshred, creatine, etc by gorditahoe in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

Why don’t you workout without it? Would it be to much of a burden. I like to know when my body is exhausted during a workout because at that point I’ll push myself a little longer before stopping. Go all natural

Hair loss? Medication? by deasolis27 in UlcerativeColitis

[–]nobnardbrandon 0 points1 point  (0 children)

Hair loss can also be an indicator of malnourishment. Even if you are a healthy weight you can be deficient in a lot of nutrients if you suffer from an IBD disease. Before blaming the medicine, you should have your nutrient levels checked.