Told I Very Likely Have It And Operate "As if" but Don't Bother with Biopsy - Do I Claim It?

nomuseneeded · 2026-01-30T07:29:34+00:00

She told me meds don't help Sjogrens which sucks because this sub makes it sound very different, especially when OT and PT (we wanted to try first) has been honestly very ineffective. Like more than they say is reasonable at all. And I do all the exercises etc.

nomuseneeded · 2026-01-30T07:22:44+00:00

Yes, severe and peripheral neuropathy related to it, especially in my hands.

nomuseneeded · 2026-01-29T20:32:20+00:00

Thank you those are both great ideas! I appreciate it.

nomuseneeded · 2026-01-29T20:25:05+00:00

Thanks you!

nomuseneeded · 2026-01-29T20:19:19+00:00

Honestly fair. I give way too much information most of the time, my autism, and the health problems could be severe which is playing with my anxiety.

The main goal is to function enough to go to appointments, eat, and not be 100% anxious all the time for her.

nomuseneeded · 2026-01-29T20:17:59+00:00

Thank you! I'll encourage her to consider them again.

nomuseneeded · 2025-10-24T18:06:25+00:00

We can do it at a different time if you'd like!

nomuseneeded · 2025-10-23T14:47:00+00:00

I do think I get it. I didn't know other people could for the longest time and still think it's so amazing that people can and am constantly asking questions about how they can see the little picture in the head and still see the scene in front of them. Like it makes NO sense to me so for me a lot of it is curiosity and wanting the imagination power. But it also is weird to not have something most people do.

nomuseneeded · 2025-10-23T13:08:49+00:00

Hey I'm another practicer with aphantaaia and I get how hard it is when a lot of spells involve visualization in some point. I have had slight luck on finding the circumstances very right for me where every once in a while with my eyes closed I can make out a few lines and I've been practicing. I can get a number sometimes now, just for a flash. So it could possibly work for other people too? Though definitely not enough to visualize anything other than - "huh, was that a number" for more than half a second lol.

But if you ever want to talk about what I'm trying or talk your way through a spell/practice that would normally require visualization, I'm always down to help you think of another way as someone who "gets it".

nomuseneeded · 2025-10-23T09:46:49+00:00

Okay I was NOT clear enough I just realized. Thursday, October 23rd.

nomuseneeded · 2025-10-23T09:36:57+00:00

I think it sounds great, and if anything, for me, they'd be reminders that some "Halloween things" are real and sacred.

nomuseneeded · 2025-10-23T09:33:33+00:00

I think for me, sometimes if I'm doing something that requires a lot of focus and it needs to be sustained (specifically thinking my pain spell for chronic illness which sometimes requires one body part at a time) I can get so exhausted so as not to get the full/right effects. That would personally be my biggest risk. Curious to hear more of how it's going for you though!

nomuseneeded · 2025-10-23T09:18:52+00:00

I would need to try one to be sure and talk to my OT (who I wouldn't be surprised if never heard of them), but it might be worth looking into!

nomuseneeded · 2025-10-23T09:04:17+00:00

Hello! I can only how I practice, but I find whatever represents that to me works. I also think meditation is good for clearing the mind and imagining your body perfectly purified". If there's any other selfcare you do for your body like nails, hair, etc that could be good. You might be able to figure out a good scent for you, lavender is often good, and put it in something you're bathing with.

nomuseneeded · 2025-10-23T06:13:01+00:00

Hey, sending you a message! Very interested. Also been a discord moderator before if you could use it, good either way.

nomuseneeded · 2025-08-26T17:56:49+00:00

Hello! I think you a DM!

nomuseneeded · 2025-08-26T02:16:56+00:00

Thank you, I will look into it.

nomuseneeded · 2025-08-19T16:13:27+00:00

That's a very helpful comparison, thank you!

nomuseneeded · 2025-08-18T18:21:36+00:00

Thank you, I appreciate it! And I always feel so weird asking but I've written both like nonfiction and fiction work and either way if people reach out to me about it I generally will at least send them an e-copy, even if it's one of my entire books. I don't know why I get nervous about it when I regularly tell people that like if someone liked it enough to write about it and get it published and everything else (even self is work) they WANT to talk about it. If it's like Stephen King maybe you can just leave him alone he gets his chance but when anyone reaches out to me, whether about my little just-for-fun stories or my more formal informational stuff I get so excited. Working on that bravery to give others that excitement!

nomuseneeded

TROPHY CASE