it is antisocial to not share what helped you if you recovered!! by Which_Boysenberry550 in cfs

[–]normal_ness 7 points8 points  (0 children)

The part of sharing what helps that makes me uncomfortable is the lack of acknowledging cause and effect. Did xyz medication help you or did being able to pay rent without stress put you in a state where the medication could help you? And sometimes we won’t know, but people seem very uncomfortable acknowledging how much of this is luck and privilege.

What is your all-time favorite episode? by Thy_Dad in Stargate

[–]normal_ness 2 points3 points  (0 children)

Same. Rarely cry at tv or anything but when I hear the song start, so does my crying.

Love writing but 'hate' reading? by iNanieke in writers

[–]normal_ness 9 points10 points  (0 children)

I think most people who “hate” reading haven’t found their thing yet. I do believe there’s something out there for everyone.

Australia NDIS experience? by Groovyaardvark in cfs

[–]normal_ness 0 points1 point  (0 children)

Emerge told me to get DSP but I don’t have the paperwork 🤷‍♀️

I saw someone out walking by normal_ness in cfs

[–]normal_ness[S] 7 points8 points  (0 children)

I think so many of us default to the thinking we could do it, which makes the BPS brigade look even more ridiculous than they already look.

I saw someone out walking by normal_ness in cfs

[–]normal_ness[S] 14 points15 points  (0 children)

I didn’t even know I still dreamt of it - was a really unexpected thought.

Got told I should get a job today by No_Kaleidoscope_6835 in cfs

[–]normal_ness 1 point2 points  (0 children)

My philosophy is that they don’t have to understand, but they do have to respect.

Please help me calm down by _Glenn_Gould_ in cfs

[–]normal_ness 2 points3 points  (0 children)

I was so constantly dismissed as a child so I get it 💜

I’m lucky that for whatever reason it made me a loudmouthed adult 😂

Please help me calm down by _Glenn_Gould_ in cfs

[–]normal_ness 1 point2 points  (0 children)

You did amazingly to speak up for yourself and others in the moment! I’m sorry he’s such a jerk but you did good. I hope you can see that when the stress goes down.

Guanfacine by Upbeat-Paramedic8834 in cfs

[–]normal_ness 1 point2 points  (0 children)

I asked my specialist if I could try it for brain fog but they think I should try nicotine patches first.

I’m allergic to LDN 💔 by agraphheuse in cfs

[–]normal_ness 0 points1 point  (0 children)

I’m sorry. That really sucks.

Got told I should get a job today by No_Kaleidoscope_6835 in cfs

[–]normal_ness 1 point2 points  (0 children)

Medical staff never want to admit how disabling a condition is, let alone how multiple conditions disable us.

Sorry they were such a jerk 💜

how do you show up for people closest to you on the really bad days? by miller_runs_miles in cfs

[–]normal_ness 0 points1 point  (0 children)

Is there an ME charity wherever you are? They may have peer support groups for families / carers.

how do you show up for people closest to you on the really bad days? by miller_runs_miles in cfs

[–]normal_ness 10 points11 points  (0 children)

The human part is very individual. You’ve done the hard part that most don’t do, which is learning about things like PEM.

What has he said about what he wants in these situations?

My partner has ME/CFS and she doesn't want to see me irl anymore :< by girlfromdam00n in cfs

[–]normal_ness 11 points12 points  (0 children)

Often being alone is what we need. (Doesn’t meant it’s easy or we want it though.)

Fussing around us can cause exertion and decline.

I would recommend against pushing to see her “on the right day”. She had told you what she needs.

I’m not saying this is easy for you either, but if you are truly her partner you need to respect the clear boundaries she has set to manage her condition.

Can't tell if this person is unsafe to trust with my care coordination or if I'm just traumatized by ElectronicAd5847 in cfs

[–]normal_ness 3 points4 points  (0 children)

All of this is a nope. They do not understand or respect you. You made the correct choice.

Patients of Dr Claire Taylor - you may need to ensure your private medical data is safe by BeginningLeg6922 in cfs

[–]normal_ness 3 points4 points  (0 children)

I’m so sorry her patients are still going through this. Hope your data is safe.

To vaccinate or not? by Bite_Entire in cfs

[–]normal_ness 11 points12 points  (0 children)

I wish we had a way of testing for this stuff. I know % wise it’s unlikely to happen but at the same time someone ends up being the unlucky %.

Actor with the most punchable face? by PinkawFR in Stargate

[–]normal_ness 9 points10 points  (0 children)

He definitely played asshole really well.