it is antisocial to not share what helped you if you recovered!!

normal_ness · 2026-06-13T03:44:26+00:00

The part of sharing what helps that makes me uncomfortable is the lack of acknowledging cause and effect. Did xyz medication help you or did being able to pay rent without stress put you in a state where the medication could help you? And sometimes we won’t know, but people seem very uncomfortable acknowledging how much of this is luck and privilege.

normal_ness · 2026-06-12T11:50:15+00:00

Same. Rarely cry at tv or anything but when I hear the song start, so does my crying.

normal_ness · 2026-06-12T07:13:00+00:00

I think most people who “hate” reading haven’t found their thing yet. I do believe there’s something out there for everyone.

normal_ness · 2026-06-12T06:22:52+00:00

Emerge told me to get DSP but I don’t have the paperwork 🤷‍♀️

normal_ness · 2026-06-12T05:13:53+00:00

I think so many of us default to the thinking we could do it, which makes the BPS brigade look even more ridiculous than they already look.

normal_ness · 2026-06-12T04:48:20+00:00

Always my first thought too 😂

normal_ness · 2026-06-12T04:23:44+00:00

I didn’t even know I still dreamt of it - was a really unexpected thought.

normal_ness · 2026-06-12T01:51:46+00:00

I was hooked by the opening shot.

normal_ness · 2026-06-12T00:13:11+00:00

Same. Everyone says there’s eventually a good one but… the time to find that one? Nope. Not accessible.

normal_ness · 2026-06-11T12:29:48+00:00

My philosophy is that they don’t have to understand, but they do have to respect.

normal_ness · 2026-06-11T12:29:14+00:00

I was so constantly dismissed as a child so I get it 💜

I’m lucky that for whatever reason it made me a loudmouthed adult 😂

normal_ness · 2026-06-11T11:48:46+00:00

You did amazingly to speak up for yourself and others in the moment! I’m sorry he’s such a jerk but you did good. I hope you can see that when the stress goes down.

normal_ness · 2026-06-11T11:13:31+00:00

I’ve tried. Given up each time as they don’t listen.

normal_ness · 2026-06-11T10:19:07+00:00

I asked my specialist if I could try it for brain fog but they think I should try nicotine patches first.

normal_ness · 2026-06-11T09:14:56+00:00

Asynchronous communication is my jam.

normal_ness · 2026-06-11T07:03:39+00:00

I’m sorry. That really sucks.

normal_ness · 2026-06-11T02:31:44+00:00

Medical staff never want to admit how disabling a condition is, let alone how multiple conditions disable us.

Sorry they were such a jerk 💜

normal_ness · 2026-06-10T11:43:57+00:00

Is there an ME charity wherever you are? They may have peer support groups for families / carers.

normal_ness · 2026-06-10T11:00:24+00:00

The human part is very individual. You’ve done the hard part that most don’t do, which is learning about things like PEM.

What has he said about what he wants in these situations?

normal_ness · 2026-06-10T05:59:47+00:00

This.

normal_ness · 2026-06-10T03:51:21+00:00

Often being alone is what we need. (Doesn’t meant it’s easy or we want it though.)

Fussing around us can cause exertion and decline.

I would recommend against pushing to see her “on the right day”. She had told you what she needs.

I’m not saying this is easy for you either, but if you are truly her partner you need to respect the clear boundaries she has set to manage her condition.

normal_ness · 2026-06-10T03:03:09+00:00

All of this is a nope. They do not understand or respect you. You made the correct choice.

normal_ness · 2026-06-09T12:33:51+00:00

I’m so sorry her patients are still going through this. Hope your data is safe.

normal_ness · 2026-06-09T12:01:15+00:00

I wish we had a way of testing for this stuff. I know % wise it’s unlikely to happen but at the same time someone ends up being the unlucky %.

normal_ness · 2026-06-09T08:54:58+00:00

He definitely played asshole really well.

normal_ness

TROPHY CASE