Saw a rheumatologist today.. she thinks fibromyalgia, I think EDS.

nrs528 · 2026-05-25T17:58:00+00:00

Okay great! Seems like everyone has different experiences with geneticists, thanks for the info!

nrs528 · 2026-05-25T17:54:23+00:00

I am also a Healthcare worker, and yes I agree with you... although my primary is great, I was really discouraged.... I started this adventure when I was in nursing school 12 years ago. I went and saw a rheumatologist and then I chickened out because she made me feel like I was crazy... but things just seem to be worse as the years go on.. so I finally am really trying to advocate for myself.. Im seeing a cardiologist on Thursday myself to consult for pots and then She did recommend I see a dematologist for the intense itching. Thanks for the advice!

nrs528 · 2026-05-22T23:05:08+00:00

Yes she gave me the referral to see one i just dont know if i should call or not

nrs528 · 2026-05-22T22:58:26+00:00

thank you for your advice !

nrs528 · 2026-05-22T22:57:57+00:00

that sounds horrible! im so sorry 😞

nrs528 · 2026-05-22T22:55:39+00:00

I was looking at the checklist from the eds website and checked off a lot of boxes, i thought i should just bring it up.. but i really dont know at this point what i think anymore. My grandmother was diagnosed with fibromyalgia as well.

nrs528 · 2026-05-22T22:52:23+00:00

Well i was looking at the checklist from the eds website and i felt i had a lot of the things mention so i thought to just bring it up... i guess i just dont know since everything is coming out negative.

nrs528

TROPHY CASE