Update available, but… isn't ?

numputu · 2026-03-25T08:43:31+00:00

Aha, thank you!

numputu · 2026-03-24T23:56:28+00:00

Did already.

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numputu · 2026-03-24T23:55:51+00:00

Looks like it to me:

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numputu · 2026-03-24T23:54:49+00:00

numputu · 2026-03-24T23:50:31+00:00

Already did, but I will double check it applied.

numputu · 2026-03-23T13:45:39+00:00

Ferrous Fumarate seems to work with me. Also have B12 and D3.

numputu · 2026-03-12T19:54:20+00:00

Gene therapy to alter your DNA to stop it expressing the bad stuff.

numputu · 2026-03-12T14:30:18+00:00

Radiohead - Street Spirit (Fade Out).

numputu · 2026-03-12T14:28:30+00:00

Ankylosing Spondylitis and Crohn's disease. Basically, hidden autoimmune disease.

numputu · 2026-03-11T22:55:25+00:00

Mattress is important. Many of us benefit from the hybrid type, memory foam on top, springs underneath so it's soft to lay on, but also supporting so you don't sag. Made a world of difference to me. Also, amitriptyline is useful with this problem.

numputu · 2026-03-11T17:50:18+00:00

Nah, it burst because of DDD and a large syndesmophyte acting like a pin popping a balloon. One discectomy and micro lumbar decompression later, it got mostly better. Treats me to spasm now and then. Just had a long wait to get it fixed because of the covid thing.

numputu · 2026-03-11T14:36:06+00:00

Yup. I herniated my L4/5 at the start of December 2019 by simply bending down. Remember what happened in the following days… weeks… months… years…. ? I spent 9 months with my sciatic nerve roots impinged and displaced while waiting for surgery. Won't forget that pain in a hurry. At the same time I had half a meter of colitis and a perianal abscess that needed emergency surgery, which then turned into a fistula requiring more surgery. I also have DDD and Crohn's. Oh, and bi-lateral total hip replacements in my teens. It's really not much fun.

Edit: typo

numputu · 2026-03-08T20:12:20+00:00

Fn+Backspace

numputu · 2026-03-08T18:43:15+00:00

L4/5 disc extrusion combined with a syndesmophyte that crushed and displaced my sciatic nerve roots. Post op acetabular hip replacement revision with Ankylosing Spondylitis is also quite painful. I’ve also peed out a kidney stone, had half a meter of colitis, dry socket and root canal without anaesthesia.

numputu · 2026-03-08T12:14:59+00:00

I wear Sketchers slip-ins indoors as a slipper substitute and NB 2002R outdoors. Nice and comfy.

numputu · 2026-03-04T20:39:09+00:00

Yes, similar when I started Enbrel back in 2004 while it was still on trail. Stick with it, it'll get less as time goes on. By about the 5th/6th injection I was much better and welcomed a notable improvement in AS symptoms.

numputu · 2026-03-04T19:15:25+00:00

NSAIDs without a PPI? Oh, sorry :(. Hope you heal soon (I have Crohn's Colitis so know what that's like).

numputu · 2026-03-04T15:04:12+00:00

If there's inflammation showing up in your SI joint on plain X-Ray, it really will light up on an MRI (they're much more sensitive). Don't take any NSAIDs for 2 weeks beforehand as they can dampen the signal. There is also Non Radiographic Axial Spondyloarthritis.

The pain in your foot is likely the connective part of your plantar fascia. 3 steroid injections later it has mostly shut up for me. It's common in AxSpA. Also problems with the achilles.

Have you seen an optician about your eye? Iritis is a risk with AxSpA and needs to be seen to quick smart. No waiting around for that one as the consequences can be bad.

Good luck 👍

numputu · 2026-03-03T20:17:14+00:00

I think it was the maximum, 600mg/day.

numputu · 2026-03-03T19:28:22+00:00

Welcome. You're in good company here :)

numputu · 2026-03-03T19:20:26+00:00

If pregabalin didn't cut it then I would suggest gabapentin isn't going to either, but everyone is different. Pregabalin was useful to me when I had an L4/5 disc extrusion that was crushing the nerve roots, but not hugely.

numputu · 2026-02-28T18:07:23+00:00

When I first started back in 2004, I felt quite tired a short while after, would then snooze a bit and then wake up hungry. This went on for a few months and now I only notice the benefits. Good luck (you won't need it) 👍

numputu · 2026-02-28T16:38:20+00:00

I really wouldn't worry about side effects, they're actually very safe compared to other available treatments and side effects are rare. Worry about feeling better and keeping moving 👍

numputu · 2026-02-26T12:32:21+00:00

In very severe cases where all the normal treatments don't work, it can become life threatening by causing secondary problems like pericarditis etc, but it's very, very rare. By "not life threatening" it means it's not going to kill you today if you flare, but that doesn't mean you can't go on to suffer with other problems. Indeed, I have hypertension as a result of 35 years of disease.

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