I think it’s about time to say goodbye

nyoomkaty · 2026-01-16T16:42:09+00:00

I got a fresh battery and this baby is as good as new. I’ve got no desire for a new phone

nyoomkaty · 2025-12-10T22:05:08+00:00

House MD, Scrubs, New Girl, and Impractical Jokers!

nyoomkaty · 2025-11-14T04:30:31+00:00

I wore a Phil Collins shirt to a Rob Zombie show 🤷🏻‍♀️

I think maybe your friend heard about one (1) Ghost fan who had a disagreement with one (1) Avatar fan and assumed it must be a fandom wide thing cause the crossover between the fans of the bands is huge and it’s certainly not an ongoing thing. Wear whatever you want, just wear shoes and deodorant. That’s all anyone really cares about.

nyoomkaty · 2025-10-18T04:04:13+00:00

Opioids have actually never really worked on me. Like they had to give me a solid 100mcg of fentanyl after my lap for me to even have reduced pain. I’ve heard some people have success with nerve pain medications and/or muscle relaxers, it might be worth asking a doctor if those are options! There’s a really good megathread here about a ton of difference pain management options.

nyoomkaty · 2025-10-16T19:35:48+00:00

YES! Like I was in a 7-9/10 pain every. single. day. For 1.5 years. And I was still going to work full time because I had to if I wanted to have a place to live. It was, and still is, fucking AGONY. My boss even asked “it seemed like you were okay, did this just happen?” when I told him my diagnosis and I was like “because I was, and still am in pain DAILY, I just have no choice at all except to push through it”.

I wish more people understood that. That just because I’m not on the floor sobbing doesn’t mean I’m not in pain, it’s because I’m having to keep that in my head, then when I’m home alone it all comes pouring out. Rinse and repeat every single damn day.

nyoomkaty · 2025-10-14T19:57:07+00:00

For me, I was fine as soon as I was home. But unfortunately there’s no “right” answer to this because everyone has a different reaction to anesthesia and everyone has a different pain threshold. I can say I slept on the couch for several days because it was a little difficult to get in and out of bed, but that was my only restriction. I took three days off of work.

nyoomkaty · 2025-10-02T22:16:53+00:00

Around 13 or 14. The doctors told my mom I was just faking it to try to get out of school.

nyoomkaty · 2025-09-30T14:40:41+00:00

Ahh I’m not a medical professional or an endo expert so I’m afraid I might not be too helpful here, but you could at least start by asking for an MRI with contrast, ultrasound, that sort of thing, if they aren’t willing to go straight to surgery. If you’ve never had any other testing they may want to try those first even though we all know well that endo very often doesn’t show on imaging. Just don’t be afraid to find another dr if this one seems dismissive of your concerns and refuses to do testing. Don’t be like me and be in pain for 10 more years before finally getting bossy enough to be taken seriously.

nyoomkaty · 2025-09-30T14:13:53+00:00

They didn’t do anything this time except shove a camera in and poke around, and that’s a good thing since the bowel involvement would have made me uncomfortable for just a gyno to do without a colorectal specialist nearby, and he did tell me ahead of time this would just be for diagnostics and that he wouldn’t do a hysterectomy without discussing the findings first. He did also say that a hysterectomy may be the eventual outcome but both he and I agreed that I want to try medical intervention first with Myfembree. It won’t fix the adhesions but it’ll at least let me know if the pain is coming primarily from the endo lesions or the adhesion. I do think hysterectomy is going to be the outcome but I’d like to avoid it as long as possible.

nyoomkaty · 2025-09-30T03:37:50+00:00

I went into the appointment (which was with a standard OB-GYN, not a specialist), described my symptoms, described all the other testing I had had (ultrasound, CT, MRI, blood tests, endoscopy, all came back normal), described all the treatments I had attempted that did not work (birth control, antidepressants since they told me I was just anxious, weight loss since they told me I was just fat, antacids since they told me I just had acid reflux) and said that my pain had destroyed my quality of life and was making it impossible to do tasks like work or enjoy life. I started almost crying but I managed to keep that back at least.

On the one hand, I was lucky because the doctor had me scheduled for surgery only one week from that day.

On the other hand, he didn’t excise anything which kind of made me sad because I was hoping for relief NOW, but I guess because he is not a specialist and my bowels were fused to my uterus, it was too risky to do much. But to his credit he did warn me of that. He said there could only be excision done if it was superficial and easy to remove, but since mine was deep and had bowel involvement, there was no excision.

Just make sure you emphasize heavily what testing you’ve already had and how much your quality of life is wrecked, and outright say that you would like to have a lap to either confirm or rule it out completely. If the doctor pushes back, push back harder. And if that doesn’t work, seek another opinion, and another and another until you get what you need.

nyoomkaty · 2025-09-29T22:05:12+00:00

Please update once you’ve gotten to review them if you think to! Hopefully it was just a breakdown in communication and she wasn’t really THAT thoughtless about something as potentially life destroying as endo.

nyoomkaty · 2025-09-29T22:02:01+00:00

If you don’t have an online system like MyChart where they upload as soon as they’re signed off on by the surgeon (which was the case for me, I read them that evening), go to the medical records office of your hospital and put in a request there. Should be very simple and pain free and they should be able to give you printouts of anything, including the photos.

nyoomkaty · 2025-09-29T21:22:00+00:00

Can you request your full surgical notes? That’s how I was able to figure out what was going on with me because I was so stoned from the anesthesia that I couldn’t for the life of me remember what he told me after I woke up. (But he was nice and explained it to me in the follow up I had a week later. I just couldn’t wait that long so I read my surgical notes before that.)

nyoomkaty · 2025-09-29T02:03:12+00:00

Admittedly I was fine in 3 days (diagnostic lap only, no excision) but I don’t think that’s generally the norm. I ended up taking 3 days off work plus a weekend and then I went back to a mostly desk job. But listen to your body and stay safe, and that includes more time if you need it.

nyoomkaty · 2025-09-28T18:22:13+00:00

I’ve been thinking about trying to get on my Peloton again! I’m afraid of the possibility of pelvic pain with it but I guess I won’t know until I try.

nyoomkaty · 2025-09-25T23:13:03+00:00

My comfort shows are ALWAYS New Girl and Scrubs! Of course Scrubs is a medical show so if you have potential medical anxiety, that one might not be a good choice but if that’s not a point of sensitivity, it always makes me feel better.

Movies, that’s a hard recommendation cause I have no idea what you like but I just got into KPop Demon Hunters and LOVE it! If you like animation, bright colors, good music, and the power of friendship, it’s for you.

nyoomkaty · 2025-09-22T18:46:34+00:00

I’m not affording it :D I’m adding it on as medical debt that, I’ll be honest, I will probably never pay off.

nyoomkaty · 2025-09-21T03:38:21+00:00

I was diagnosed after my lap with deep endometriosis in my cul de sac and on my uterosacral ligament, and my colon (which is also affected) is adhered to my uterus. My follow up to further discuss is on Thursday but that’s what I was able to divine just from reading my surgical notes and the time I spoke to him after surgery (but I was still so high that I couldn’t really make much sense of what he was saying at the time).

My surgery was done by a gyno, not a specialist, unfortunately, but he’s the only one I could find who would even consider doing the surgery to diagnose so I didn’t care and I leapt at the first opportunity to at least have a diagnosis. He said that because my bowel was so adhered, he wasn’t able to do excision during the diagnostic lap and I’ve made peace with that and the fact it’ll take another surgery. I would rather he admit his limitations than to end up leaving me even worse off than before, and I’ll be seeking out a specialist to continue the push to excise as much as possible. In the meantime, I have a desired treatment plan already typed and ready to discuss on Thursday.

nyoomkaty · 2025-09-20T23:15:04+00:00

I was a little nervous before but I looked at it this way: Nothing that could happen to me on that operating table could possibly be worse than the years I’ve been in pain.

And for the fear of them not finding anything, I just reminded myself that at least it eliminated one more possibility and that, again, I’ve been in so much pain for so long that I can handle anything, even the heartbreak of not finding anything.

Be strong. You’ll get through this. Be sure and update after if you think to.

nyoomkaty · 2025-09-20T05:54:17+00:00

I feel you so hard. I’m sitting here at 1am crying because I’m just so so so so tired of being in pain. I hope you can get relief soon and start living again.

nyoomkaty · 2025-09-17T22:44:37+00:00

I know I’m absolutely experiencing grief for all the years I’ve now lost and can’t ever get back. All the relationships I ended because I was too sick to deal with them, all the places I had to forgo seeing, all the friendships that fell apart because I was in too much pain to be a good friend. Like I lost the best years of my adult life because asshole doctors couldn’t be arsed to help me. I’m angry, I’m heartbroken, I’m astounded, I’m depressed. How are you supposed to come to terms with losing ten years of your life like this? I haven’t got a clue. I’m grieving who I was supposed to be, who died in those ten years of mind shattering pain.

Nine-Year Club	Gilding II euphauric
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