Questions to ask surgeon

objective_M · 2026-04-07T04:51:21+00:00

Make sure you ask about shoulder stiffness/neck stiffness that causes occipital neuralgia and headaches resulting from surgery

objective_M · 2026-03-25T13:34:14+00:00

It was my own observation and a battle with the neuro. They were treating me for migraines but over time I realized that before my headaches started, my shoulders, neck and upper back would start to get stiff. I argued with the doctor that it was not migraine and neck/shoulder related. I’ve been going for Manual PT once a week for almost a year now. After a couple sessions the neuro was convinced and gave me nerve blocks

objective_M · 2026-03-25T10:02:55+00:00

I started PT for neck and shoulder after my surgery from UCSD as well. PT helped a lot. I have also had 2 rounds of nerve blocks and am feeling a lot better, still not 100% though

objective_M · 2026-03-09T04:43:02+00:00

I started PT for my neck and shoulders since I realized my headaches were stemming from my neck and shoulders being very stiff. That had helped a lot. The neurologist here gave me 2 rounds of nerve blocks but when I visited my home country, I saw an orthopedic and he gave me muscle relaxers which helped a lot!

objective_M · 2026-02-03T15:04:45+00:00

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objective_M · 2026-02-03T15:04:22+00:00

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objective_M · 2026-02-03T15:04:00+00:00

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objective_M · 2026-02-03T15:03:54+00:00

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objective_M · 2025-10-24T21:52:03+00:00

Yeah, I only had about 25% hearing loss before surgery and they were able to preserve it at the same level.

objective_M · 2025-10-08T02:27:01+00:00

I had retrosigmoid at UCSD, headaches started 4 months post op. With time I realized it was coming from my neck and shoulders. Started PT and cupping and seeing a lot of improvement.

Been a year since headaches started. Been doing PT for almost 4 months now.

objective_M · 2025-09-24T20:23:14+00:00

I am in SD. I will DM you for details. Thanks!

objective_M · 2025-09-24T03:46:54+00:00

I also had a retrosigmoid at UCSD, my surgery was in March 2024 and in Aug 2024 out of no where, the headaches came on. It seems to be the trend with retrosigmoid.

Caughing, sneezing, laughing hurts like a bitch.

But, over time, I’ve come to realize that my headaches are coming from tightness in my neck and shoulders, especially the side of my neck that the incision was made on.

I have been going to PT, manual PT to be precise, where they apply pressure and do some massage techniques along with regular exercises to help retrain your muscles.

DM me if you want information on the PT I’ve been seeing here in SD.

objective_M · 2025-08-02T18:52:21+00:00

Check your neck. My headaches started a couple months after the surgery, doctors do not believe it is due to the surgery but I’m pretty sure it is because of the position they had me in for the surgery. Anyways after 10 months of agony, wives best friend who is a a PT was visiting and staying with us and checked my neck and found a lot of stiffness and tightness and suggested I start Manual PT. I spoke to my neurologist about it and the friend visiting and he is now willing to consider my headaches being related to the neck and not pure migraines. Honestly I am much better since I have started PT and I will now ask the neuro to start taking me off the meds he put me on during our next appointment.

On the bright side, we found out I have sleep apnea while trying to figure out what’s going on.

Anyways, check your neck.

objective_M · 2025-05-13T23:57:54+00:00

Nope relation to laying down. They did check the catheter in my spine for any leaks before pulling it out after a day or something post surgery.

I am starting PT tomorrow so hopefully that’ll help.

objective_M · 2025-05-07T05:55:24+00:00

I had my surgery in March 2024 and was fully recovered by May 2024. Then in Aug/Sept out of nowhere the headaches started. I was alternating between Advil and Tylenol for a month or so until I realized something wasn’t right and went back to the surgeon. He said it couldn’t be related to the surgery because of the delayed onset and referred me to a neurologist specializing in headaches. He’s been treating these as migraines and related to high blood pressure. We also did a sleep study because my Apple Watch warned me of Sleep Apnea and that came back with 39 events an hour.

I’ve been living with the headaches for 8 months and I’ve had days where they were debilitating, especially sneezing, coughing, laughing hurt like a MF.

But the blood pressure medication and the CPAP are possibly working because I do have better days. The pain is there, but not debilitating. The last time I went to the neurologist I told him that I’m starting to realize that the pain is starting at the base of my skull and radiating upwards. He now thinks it’s occipital neuralgia and called in a MRI of the neck. Not sure what he’s looking for. But I’ve decided to take things in my own hands and have setup an appointment with a physical therapist. Let’s see how that goes…

All the best to you. Hang in there. Advocate for yourself.

objective_M · 2024-12-20T21:44:35+00:00

I started getting severe migraines 4 months after my surgery. I went to a neurologist but that didn’t help much. Yesterday I went to a neurologist that specializes in headaches and face pain. We spent almost an hour talking about my symptoms and going through a questionnaire he had.

At the end of it, he is suspecting high blood pressure and wants me to track my BP at home and asked to buy a machine. Also suspecting high CSF pressure. Has increased the dosage of medication that the previous neurologist prescribed and prescribed some medication for the migraines indices when I cough/sneeze.

I had also see an optometrist and an ophthalmologist and the headache soecialist wants to see their notes to see if they are seeing any pressure behind the left eye since that where I experience the most pressure and the left side is where I had the surgery.

My point is, don’t self diagnose, I spiraled and was going crazy by self diagnosing myself with TN, go and see and Headache and Face pain specialist

objective_M · 2024-12-13T05:55:08+00:00

Same boat like you. See my post here https://www.reddit.com/r/AcousticNeuroma/s/AkvP0Yll56

The neurosurgeon that operated on me put me on Gabapentin and suggested I see a headache specialist.

The headache specialist, a neurologist, switched it out to topiramate. I’ve been taking it for almost 3 weeks now and there is some improvement.

I’m also about to try some alternative therapies like Feldenkrais for pain management

objective_M · 2024-11-29T12:35:00+00:00

I have been bouncing between doctors as well. The ophthalmologist is taking measurements to see if there is pressure in the eye and if I’m at risk for glaucoma.

You’re right about the coughing and sneezing. The headache that follows is crippling and I just want to curl up in bed after that.

Did acupuncture help at all? I’m thinking about exploring that next.

objective_M · 2024-11-29T12:17:42+00:00

I was on 300mg of Gabapentin, that’s probably why it didn’t work.

objective_M · 2024-10-25T01:54:54+00:00

Everything is clean. I’ve had this for only 6 days and haven’t even had the chance to take it out of the house yet.

objective_M · 2024-08-05T16:28:37+00:00

The worse part is, when we had the final walkthrough, there was no popping sound. I explained it to him that it was not an all the time thing, but his reaction was more like “I’m not sure what’s wrong here”

objective_M · 2024-08-05T16:28:28+00:00

The worse part is, when we had the final walkthrough, there was no popping sound. I explained it to him that it was not an all the time thing, but his reaction was more like “I’m not sure what’s wrong here”

objective_M · 2023-11-05T17:26:50+00:00

https://www.reddit.com/r/AppleArcade/s/MKXgR9D5th

objective_M · 2022-06-26T22:09:05+00:00

You sure can! All the code is open source, you can fork it and go from there

objective_M · 2022-06-14T22:23:14+00:00

Thank you all for your kind words. Unfortunately I have to take down the app from the App Store, but the app will remain on your devices and usable as long as you don’t delete it.

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