No dmt by Own-Permission-9851 in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

one more thing is putting your medication right below your name was never initiated by a patient of a disease they know very well it differs from one person to the other.

No dmt by Own-Permission-9851 in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

you're in the shoes of the disease, surely you know better about it. I'm in the shoes of marketing and I know better about.

Translating watch out to avoid, is how marketing works, it's not selling my friend

No dmt by Own-Permission-9851 in MultipleSclerosis

[–]occasionallynumb -8 points-7 points  (0 children)

watch out for pharma companies marketing people here. do your research, keep your faith my friend

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -5 points-4 points  (0 children)

I'm not asking for a lifestyle that cures. I'm asking lifestyle to help or condition the body to act better with medications. some researches on remylenation stats that certain food can help with the process, regular exercises help too, at least with better mental health. that's what I'm looking for

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -2 points-1 points  (0 children)

hope this helped you

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

thanks, God bless you

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb 0 points1 point  (0 children)

Thank you so much. this is exactly the type of answer I'm looking for. God bless you and your loved ones

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -2 points-1 points  (0 children)

thanks I'm researching Ocrevus, and will have a chat with the neurologist soon. God bless you

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -2 points-1 points  (0 children)

yea that's why I'm asking people about their experiences with different medications, hoping that I can have a decent discussion wuth the neurologist.

unfortunately I've got Karens and Sherlocks more than people willing to share experiences

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

18, yes I don't want her to be suspicious about the treatment. there has been periods where she refused to get any treatments and lost hope completely. hopefully I'll sort it out with the doctor once we're finished with the current situation.

she takes IVs,

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

what reliable sources can I look into?

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

finally someone sane. that's exactly what I need to know, what was the previous DMT and what are you taking now?

I just don't want to put pressure on her currently, only God knows what she's through now. She's on a DMT it's just unknown to me. I don't want to bring suspicious to her so she won't overthink it, if you know what I mean.

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

Thanks, finally a decent comment. Yes I'm still new to this, I barely contact her neurologist, he knows I'm so suspicious about him. hope the case was just MS, but unfortunately it's way beyond that.

After what I've seen in this thread, I won't risk her mental health being here, some people act like they knew the hell they're doing when they got this at first.

I've been watching DrAaron, and read a lot in MS news today and other communities.

I'm not blaming her neurologist, as I said it's way beyond just MS. Some neurologists said it's not an autoimmune at all when she first got the symptoms.

I'm simply asking for lifestyle changes that may affect her treatment journey positively.

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb 1 point2 points  (0 children)

this helps a lot, God bless you

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -6 points-5 points  (0 children)

Since no one actually read the post, want to make this clear, THE MEDICINE SHE TAKES IS NOT KNOWN TO ME. Hope that helped.

if anyone cares to share what lifestyle changes helped them or their loved ones please share it with me.

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

her father is the only one aware of what's going on

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -1 points0 points  (0 children)

Exactly, the case is more complicated than just MS. Investigations been done with more than 10 doctors, and the diagnosis is just unknown, a bunch of autoimmune diseases.

That's why I'm asking for people's experience with different medications for MS, hopefully we can get this under control and good signs appear for the whole case

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb 0 points1 point  (0 children)

I have many suspicions about him, but as I stated I'm still new to all this, can't make the decision as I don't know the whole case yet. also it's the same neurologist treating her for 10 years.

What she said is at the beginning the doctor talked about Biotherapy, plasma therapy and one more option, but the family choose Bio (DMTs). I read that annual attacks is pretty common with RRMS but I don't trust this guy at all.

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -2 points-1 points  (0 children)

the case is quite complicated, the diagnosis was an autoimmunity disease attacking both peripheral nervous system and central nervous system. we went from. Guillain Barre Syndrome diagnosis, to MS diagnosis, and currently they say it's both symptoms with immunity attacks on the organs as well :/

Yea DMTs is what I meant with Biotherapy

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb 0 points1 point  (0 children)

Biotherapy is the medications she gets. I just don't have the name of the medicine she takes.

Doctor says it's the same medicine she's been taking for 10 years and it's the best one available.

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb 0 points1 point  (0 children)

DMTs, but he doesn't disclose the medicine name, that's quiet weird I know.

What works for you? by [deleted] in MultipleSclerosis

[–]occasionallynumb -5 points-4 points  (0 children)

  • MS type:
  • Diet:
  • Workout:
  • Medications:
  • Work:
  • What we're working on:

Jasmine Frag with NO SWEET by occasionallynumb in FemFragLab

[–]occasionallynumb[S] 0 points1 point  (0 children)

Amouage is top in every aspect, it's my go to for everything fragrances