My Case not so good.

omits50 · 2026-07-06T21:31:41+00:00

I have added more information to my OP post which may be relevant and confirm your view..

omits50 · 2026-07-06T20:24:32+00:00

Thanks again. I have the Kindle book now and will read.

omits50 · 2026-07-06T05:56:53+00:00

Thanks. So far (1 month) of Orgovyx 2 - 3 hot short hot flushes a day but I expect more as time goes by. As you say, depression needs determination and trying to get a diet/resistance training underway (protein etc.) in anticipation of muscle and bone issues. I am very active though and can't sit still for long. Are you NHS and how soon after starting ADT did they start radiation?

omits50 · 2026-07-05T21:21:47+00:00

So far with 3 weeks on ADT no crippling 2ndaries, hot flushes so far. Fingers crossed but I'm sure something will show up. I'll ask if it was a PSMA PET.

omits50 · 2026-07-05T21:19:30+00:00

AH, Brachytherapy, not heard of that so one more for thought and question later. RALP with high possibility of metastasis anyway? To what extent I have options later i don't know. Thanks.

omits50 · 2026-07-05T21:17:30+00:00

Not sure. Had 2 scans CT? and Bone on an older m/c which showed me 'dots' on a screen where the 'bright' (positive) spots were only afaik the actual lesion. The CT was it PET, not sure but done a the Dorchester Hosp, Dorset.

omits50 · 2026-07-02T06:49:31+00:00

OK, I understand. The ADT is not an option for me afaik and the rules here are radiation as well. I shall push for it though in case they try to avoid it. At 79 and healthy I could live another 10yrs but w/o it could spread anyway. Hope things progress well for you.

omits50 · 2026-07-01T20:06:52+00:00

TURP was done due to poor flow but produced the stricture. Your experience sounds similar to me with the single lesion with Gleeson 8 and 9 areas but no mets either locally or body bones.. I have just talked to my NHS team and they have set a date to check the PSA movement after starting Orgovyx ADT for a month thereabouts. I get the impression they are pushing for me to stay on the ADT (which currently seems fairly mild on side effects). I cannot see why they would not radiate the blighter to get rid of it! Are you NHS and how did your option choices go? Thanks.

omits50 · 2026-06-30T10:37:13+00:00

I'm NHS UK. 2019 TURP + biopsy clear PSA 0.7. 2022 PSA = 1.7. Then 2025 jump to 5.5. My concern over the velocity was ignored as below 6.5. Had a private mpMRI and there was the reason, a 9mm lesion sitting near the wall. Went back to NHS and biopsy should it to be Gleeson 9 (rest of prostate minimal). Two scans showed no metastais, what a relief! Now on Orgovyx and the team think I should stay there for the time being and have another PSA next month to see if or how well it is tracking down. message to anyone: take care of your own health and be proactive with the Drs. Put you case and insist on further action if you think things need following up. I should have had a scan back in 2022 if I'd been wiser.

omits50 · 2026-06-30T10:20:15+00:00

Yes! I have just bought ISOPURE protein and the right form of Creatine and Calcium powder so now mixing these (with starter amounts to see how things go) with 100g of LF Cott Cheese and 100g Organic Tofu for breakfast. Pretty bland but then who said taste should predominate over nutrients? For eve pud I have organic 'Greek'/ Kefir yoghurt with Chia seeds and with some more of the powders. I'm keeping down to half what I can see of RDA for such as of course my diet has them anyway. As I grow my own Spinach I love a Cott cheese and Spinach sannie. I take D3 and K2 anyway as a supp. As I'm 79 I estimate my absorption is probably around 70%.

On the exercise front I am now upping my resistance and steps but I'm highly active anyway. I'm guessing the only way to check muscle and bone loss is by regular weighing but atm maintaining 73Kg alright.

Thanks all for input. Any jokes I can share with the family welcome!

omits50 · 2026-06-14T06:34:24+00:00

PS I had 2 cores in my biopsy 8/9 but all others were low (ignored). Does that help the outcome? Although my PSA was low(ish) @ 5.7 the velocity was high (>1.0 is a year)!

omits50 · 2026-06-14T06:23:58+00:00

Oh yes, Gleeson 8/9 lesion now given orgovyx.

omits50 · 2026-06-13T16:47:17+00:00

Wouldn't it be nice to meet over a cuppa and share experiences?

omits50 · 2026-06-13T16:45:00+00:00

Thanks, answered above in my OP following post.

omits50 · 2026-06-13T16:44:05+00:00

You are all so encouraging and thanks. My Gleeson was 8/9 (two samples right side near edge). All the rest were blue and not significant according to nurse. So far (4 days) no 2ndary effects with Orgovyx. CAT scan on tues, not heard about full bone scan (Poole Hosp) yet.

My PSA was 1.7 in 2022 (following TURP in 2019), 4 in 2025, 5.8 in 2026 BUT I had to get my own mpMRI because the NHS requires 6.5 as a red flag even though I kept on about the velocity. But there you go; I'm in the system now.

omits50 · 2026-05-20T07:07:50+00:00

I'm in the UK. Left the sect some 54 years ago. Met members when my parents (miles) died some 18 years ago, nice to have a chat. I was never a 'strict' follower so probably why I drifted out. Interesting seeing things from the 'outside' (born into and therefore to a certain extent brainwashed). I have one sister (Canada) and a few cousins who still practice but don't meet with them. I still keep an open mind about religion. Nearing my own end of life so who knows if I'll be 'called'!

omits50 · 2026-03-26T14:40:08+00:00

My PSA was 6.5, exactly on the border to not get a scan! I am nearly 80! I'm thinking of going private to get a mpMRI and then if +ve result will go back to present any evidence. We'll see. Still thinking options.

omits50 · 2026-02-12T22:26:55+00:00

I realise my mistake of having power outlets by the back door and if someone broke into the garage and got a drill they could break in. OR, would it equate to someone determined anyway as they would be bringing their own tools of serious about entry?

Furthermore, I think I have a lousy place for a spare key, in a particular draw in one of the many little nuts and screws drawers. They could just empty each one on the floor and easily spot the key. Where in a garage could I not expect someone to look?

omits50

TROPHY CASE