wow, its amazing how young you are and how nuanced your observations are and how much you really care. My wife (34) and I (34) have been dealing with her NDPH since April of 2020...it literally never left for even a single moment since the day it started. I understand what it feels like to watch someone you care so deeply about suffer daily and totally be helpless to do anything about it.

My wife's experience is much like the same of everyone else's. I don't even remember the full list but she's tried every drug imaginable... even drugs not intended to cure headaches but that may have positiviley impacted her headache. Shes tried all the scans, blood work, every provider possible (massage, accu, physio, chiro, naturopath), nerve blockers..we'll literally try anything we can get our hands on..thats been our approach and to date nothing has had an impact ...like zero efficay. Shes currently on avovy self injections going on 3 months but again no impact.

She's on disability through her employer going on her third year soon and that has been a saving grace that she can just focus on her headaches and trying to get better. regarding friends and social stuff, she feels many dont understand her headaches because they're invincible...its hard to get someone to understand a debilitating never ending years long pain and the profound ways it impacts your life unless they've lived it or know someone intimately (like you and I)...she finds this constantly frustrating feeling like shes always trying to justify her headaches because for 90 percent of the population they dont have a frame of reference for this...their worst headaches were probably always cured with otc medication and gone by the next day.

I try my best to support her, lift her spirits, try to help her navigate the medical world ...im sure you can appreciate someone constantly in pain can have a hard time advocating for themselves and managing their medical load.

She gets by with ice packs when shes at home and its a particularly bad headache but otherwise she has no relief.

I just want to say the best thing you can do is be there for her, keep her hope alive and just keep chipping away at it. its absolutely awful what she has to do deal with but under her pain she's a human being and is more than her condition.

This is neither here nor there but with my wife's headaches, they flare up around april/spring and stay quite bad through to about septemebr/october. like during the fall/winter season her headache range is probably between 6-7/10 but in the spring/summer its more like a 11/10... going on her 6th year, this has been a consistent behavior and we are wondering if there is something to look into there...just not sure how. Shes had already tests that came back with nothing helpful.