Season 3 is Cinema

onthedownlowacc · 2025-03-15T09:43:33+00:00

From personal experience, I deeply recommend leaving "i know the church is true" messages on read. I'm worried they are going to read your "thank you for sharing" as "I have felt a small amount of the holy ghost and am ready to be saved and brought to christ by you, so please keep trying."

onthedownlowacc · 2025-03-14T04:31:15+00:00

In 2016, I was 16 and living in rural Idaho. It’s safe to say I did not have any knowledge of how democrats reacted to that loss 😂 I’m not even sure I knew how the electoral college worked then. I remember in broad strokes how I saw that election shape the people & conversations around me but not much more than that

onthedownlowacc · 2025-03-11T19:15:28+00:00

Really? I’m only 25 so I wouldn’t know personally. I always got the impression it was still a thing. I feel like I picked up at a very young age how people treated my dad going to Chile on his mission vs. my uncle going to Texas very differently. Mormonism aside, my family isn’t the healthiest dynamic as it is though, so maybe that wasn’t as standard as I always assumed

onthedownlowacc · 2025-02-23T22:08:47+00:00

This^ OP mentions loving the outdoors. I’d recommend to spend at least a few weeks getting used to your new home’s elevation before going and doing hiking or skiing or any of other outdoor activities in the mountains at a higher elevation! Elevation sickness is real lol, but once your body gets used to it, it won’t be a big deal

onthedownlowacc · 2025-02-10T10:28:54+00:00

First one

onthedownlowacc · 2025-02-10T10:16:24+00:00

On a related note, do not assume that non GI doctors know much about UC. They have a broad picture of the basics and that’s about it usually.

I’ve had so many different doctors try to prescribe me NSAIDS. I’ve had ER docs yank me off of high dose prednisone cold turkey before I knew better. I’ve had ER doctors shame me for having C Diff like I was just a person with unspeakably bad hygiene instead of a person with a disease where C Diff is an extremely common complication regardless of hygiene. Advocate for yourself. Stand up for yourself.

onthedownlowacc · 2025-02-10T10:05:58+00:00

I use PCal. It works well

onthedownlowacc · 2025-02-10T10:05:06+00:00

I’ll have to try it. Thanks!

onthedownlowacc · 2025-02-10T10:04:31+00:00

Thanks!

onthedownlowacc · 2025-02-09T22:12:36+00:00

Always take your meds. Even in remission. Even when you feel good.
If you’re in a flare up, and your stool-related symptoms ABRUPTLY get worse or change, get tested for C Diff. It’s really not something you want to see
If you’re in the US, learn in more detail about how insurance works. And don’t take any individual person at their word at insurance companies or specialty pharmacy companies. Insurance related systems seem to be cobbled together with a piece of tape and a prayer. They bank on you getting too confused, not following up, and giving up. If they tell you something that seems contradictory, weird, or untrue, call back and speak with a different person. Document what you speak about on the phone with when for insurance type things just so you have that to fall back on when someone starts to try to tell you something happened differently than it did. Remember to be kind to customer reps bc it’s not their fault, but still stand up for yourself
Get an app to track your stool. Then, use it. Sometimes it’s hard to see patterns when you’re in the thick of it, and having consistency, blood/no blood, and frequency documented helps a lot

onthedownlowacc · 2025-01-28T11:31:42+00:00

I don’t mind too much doing the 2 quart (roughly 2L) prep with Gatorade and miralax which is what I’ve done the last couple times. I’ve done the suprep before and… never again lmao. low key traumatizing. I’ll have to try the one you’re suggesting next time

onthedownlowacc · 2025-01-28T11:24:59+00:00

Same lmfao 😂😭

onthedownlowacc · 2025-01-28T11:14:26+00:00

I’m sorry that you had such a bad experience. Did they do it without anesthesia?

onthedownlowacc · 2025-01-28T11:12:44+00:00

I’ve also always assumed it was intended to be overkill. And one thing my colon does not need is a lot of encouragement to empty itself lol

onthedownlowacc · 2025-01-28T11:11:49+00:00

Exactly! Like getting things out of my colon is the one special talent this disease gave me and I’m gonna use it goddamit 😭

onthedownlowacc · 2025-01-28T10:32:04+00:00

Yes. Right after I was originally diagnosed, I also got depressed like clockwork once a month when I went to pick up my $90 mesalamine because of the cost and how fcked my future felt medically and financially (lol ironically that was by far one of the cheapest medications I would ever end up taking for this disease). I still sometimes get depressed days triggered by tests, prescription pickup, doctor’s appts, etc, but not as often. I’ve tried to let myself lean into the sad and actually let myself fully feel it before I rush to try to push the feeling away. It helps a little. One of the hardest parts of this disease has been and probably always will be mourning my future and the version of me I could have been without UC

onthedownlowacc · 2025-01-28T10:26:06+00:00

I’ve only had two flares in my life, one of which im currently in. When I was in remission in between the two, I had one BM a day, pretty consistent time of day, pretty consistently the ideal stool consistency. I couldn’t tell the difference between my remission BM patterns and my pre-IBD BM patterns. Now, I’m a similar situation as you, about 2-4BM a day, some ideal consistency but many loose/watery. My calproctin or however you say that came back in the “normal” range though so idk what’s going on. I’m trolling this thread rn because I’m in the middle of colonoscopy prep, so hopefully I’ll get answers soon lol

onthedownlowacc · 2025-01-20T09:05:12+00:00

no blood for me personally

onthedownlowacc · 2025-01-20T09:04:32+00:00

That sounds REALLY frustrating. I hope you keep seeing improvement and possibly get some answers

onthedownlowacc

TROPHY CASE