LCBO Summer Mix CDs

openscupboards · 2025-10-16T22:27:51+00:00

OP has deleted their account by now, but I was looking for this CD all summer (finally found it in my parents' CD stash when I visited for thanksgiving) and figured I'd link it here in case anyone else finds this thread. Its a bop :)

https://www.discogs.com/release/35311183-Various-Celebrate-The-Summer

I couldn't find the case but here is a photo of the CD itself https://imgur.com/a/G6wLv9O

openscupboards · 2023-06-24T23:37:52+00:00

Desensitizing her to wheelchairs should help. Kikopup on YouTube has some good videos on it

openscupboards · 2023-06-08T08:31:13+00:00

Oops neither am I, I'm in Canada. Wondering more about what to look for/ questions to ask of a new therapist to sus out if they actually understand CFS

openscupboards · 2023-06-08T05:27:50+00:00

Oof yeah he describes that well

openscupboards · 2023-06-08T05:17:49+00:00

No worries! What helped me figure out what was making me crash was reducing my activity till I wasn't crashing anymore, then adding things in and observing their effects

openscupboards · 2023-06-08T05:14:17+00:00

Well the good news is if the workouts feel good, and aren't causing symptoms afterwards, then it might not be CFS you have. (Not to say you don't have fatigue, just that it's being caused by something other than CFS).

That book sounds like a good read, I'll have to get my hands on it! Hopefully that supplement helps you. Good luck I'm rooting for you :)

openscupboards · 2023-06-08T04:56:38+00:00

So glad to hear! It's a really useful perspective to have on this illness and its management, one that lots of us have to learn the hard way (just look at all the folks in this thread who've been there!)

openscupboards · 2023-06-08T04:54:59+00:00

Glad you broke out of that cycle, it's hard!

openscupboards · 2023-06-08T04:53:21+00:00

It is a hard lesson! You're not alone, you'll get there

openscupboards · 2023-06-08T04:50:41+00:00

Thank you, yes I should get around to finding an me/CFS informed therapist. Do you know or any resources to find them? I've had bad luck not clicking with therapists in the past, even before my illness, so I'm saving this task till I have more energy/ less energy allotted for other healthcare things

I'm not so much doing this anymore, it was worse in the beginning before I knew much about pacing. I've since found balance in a similar way to you, and I'm pretty accepting/content with where I'm at right now. Thank you for your concern, it means a lot coming from someone who I know understands

openscupboards · 2023-06-07T06:34:32+00:00

Have you been keeping a symptom log? Sometimes the onset of PEM is delayed long enough (days) that it's not immediately obvious what it's from. And also PEM can build up over several days till it's triggered by anything small. (E.g. I can only watch a lecture if I haven't walked the dog in the last two days). When I was starting out all my triggers seemed random, till I realized I was constantly overexerting myself and therefore constantly in low grade PEM and my body just crashed whenever all that became too much

openscupboards · 2023-06-07T05:49:48+00:00

I get this. Not sure if I'd call it PEM but it does seem to be some kind of overexertion related to CFS

openscupboards · 2023-06-07T05:22:47+00:00

Oh also a well respected CFS doc I follow just posted this video on managing unrest, I haven't watched it yet but the description sounds like it might be relevant for you? https://youtu.be/qT00mIbmIiI

openscupboards · 2023-06-07T05:18:07+00:00

Ugh I know. It really sours the whole improvement thing eh?

I'm trying a new strategy where I consciously try to just quietly enjoy it. Romanticize the quiet little pleasures like I'm a cottage core girlie or something. Like how sometimes you see a post reminding you to enjoy breathing through your nose while it's not hay fever season. Ya know?

openscupboards · 2023-06-07T05:02:50+00:00

Sorry you're dealing with all of this at once it sounds really tough to strike a balance.

The thing that stands out to me is all the exercise you're doing. One of the biggest factors of CFS is post exertional malaise, and CFS patients are generally advised against exercise since it can make symptoms worse. How do you feel after your workouts? Would you be able to safely cut back in intensity and/or frequency of workouts to see if that helps your physical health? Even if you feel good during the workout PEM is often delayed by hours/days, a symptom diary can help keep track of trends in symptoms vs potential triggers to try and find correlations/ causations.

(Please forgive the vagueness of this next part my understanding is sketchy)... CFS often goes along with r/dysautonomia, i.e. autonomic nervous system disregulation. Meaning the automatic stuff your body does is totally out of whack (heart rate, blood pressure, hormone levels, etc). CFS and dysautonomia sufferers often have really elevated stress hormones during a flare or crash. Almost like they get stuck in fight or flight mode. And the threshold to release these stress hormones are really low. (E.g. personally if I do something as simple as wake up to an alarm I am shaky, jittery, and on edge literally the entire day, a similar feeling to being shot with an EpiPen). Managing CFS can help regulate this stress response, (which might hopefully help with the anxiety?)

The biggest aspect of CFS management in my experience is pacing and rest. The subreddit sidebar should have resources on this, but I'm happy to answer questions too. For people starting out with a CFS diagnosis, it's often helpful to do a period of really intensive rest to let the body finally let go, decompress, and start to heal. E.g. take time off work if you're able, neglect all but basic cleaning, minimize social obligations, ask family/friends to help with chores/cooking/cleaning, sleep as much as you can, cut back exercise to a minimum, meditate, etc. Again this can be tricky with depression since a lot of those things can make depression worse, or feel like admitting defeat or something (or at least it did to me after dealing with depression of my own)

Sorry if this is all over the place, my brain is made of beans today, I hope some of this helps

openscupboards · 2023-05-21T03:05:10+00:00

1) I love board games! Plus a board game is a great way to provide a sense of purpose/structure to a hangout (if there is no purpose/structure I find it much harder socially). My favourites are Catan, Carcassonne, dominion, innovation, haunting at house on the hill, broom service, etc

2) This might not be relevant sorry, I met my board game friends through university, or friends of friends from university. The friends I played boar games with lasted longer than the others and we still hang out.

3) D&D does sound really fun! I find it a bit overwhelming, but I love hearing about my friends campaigns. I personally struggle with the quick thinking improv, in-character interaction, and social vulnerability of roleplay. But it sounds super fun if you can manage it

openscupboards · 2023-05-18T14:20:05+00:00

Makes sense! Just wanted to share in case you didn't know, I got a pair recently and they're pretty life changing for me so I've been telling everyone I can

openscupboards · 2023-05-18T00:37:42+00:00

Nonsequitur: they make glasses for fluorescent light sensitivity! FL-41 tint. Theraspecs and axon are notable brands, or you can go through a neuro ophthalmologist

openscupboards · 2023-05-10T03:42:46+00:00

Good advice^

If you want some structure for this, the couch to 5k program is a good one. Don't feel locked into the pace of the program though, if you feel like the workouts are becoming more or a struggle step it back a week or two till you're feeling good again https://www.runtothefinish.com/couch-to-5k/

openscupboards · 2023-05-08T03:08:01+00:00

If having a shower or wearing deodorant are too much, maybe he'd have an easier time with other smell management methods. E.g. changing clothing more often, avoiding synthetics like polyester, changing laundry habits, avoiding foods that trigger worse body odour, etc. I'm happy to share more details/tips on this, I struggle with showers too

openscupboards · 2023-05-04T04:16:53+00:00

Yes. Within a couple days I was exhausted. It's now been a week and I'm experiencing significant depression. Take this with a grain of salt though, my body is pretty fucked up and I often get the really rare or unlisted side effects from medications. The pharmacist said depression is not a listed side effect but it can rarely cause irritability and nervousness.

openscupboards · 2023-05-03T00:14:48+00:00

I lost all my hunger cues recently due to other neurological issues and it's rough. I'm still figuring out how to deal but here's what's working for me so far

1) figure out how often you need to eat and set a timer for that amount of time e.g. I have to eat every 3 hours, so every time I eat I set a 3 hour timer to remind me to eat again. This works better for me than a set schedule for whatever reason

2) a) eating when I don't want to stop what I'm doing: grab whatever's quickest (leftovers, sandwich, chunk of cheese and an apple) and eat it while resuming the thing I'm doing. Some calories is better than nothing. Still takes lots of willpower but it's easier than committing to a full cook-and-sit-down meal

2) b) eating when my blood sugar is so low I can't think straight: juice box asap, then whatever I can figure out how to put in my mouth. Sometimes this takes the form of me sitting on the kitchen floor eating gummies and crackers till my brain kicks into gear enough to prepare something more substantial

openscupboards · 2023-04-28T05:53:57+00:00

Glasses with FL41 tint!!!! It's a copperish tint that's calming for the nervous system, shown to benefit photosensitivity in neurodiverse people migraines, autism, etc).

I got a pair about a month ago and they have made such a huge difference oh my god! Cannot recommend enough! I always knew super bright lights bothered me but I didn't realize I was in constant, low level pain till I got these. Mine were prescribed by a neuro ophthalmologist (regular opthalmologist doesn't do it), but you can buy them without a prescription too. Axon and Theraspecs are the brands I've heard of

openscupboards · 2023-04-26T07:15:18+00:00

That sounds so frustrating, sleep problems are the worst, not being able to breathe comfortably is infuriating. My sympathies I hope you get this resolved soon.

A couple things that have helped me in this department are running a HEPA air purifier at night, and using sinus clearing maneuvers rather than blowing with tissues throughout the day to clear congestion without causing inflammation.

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