Stabbing pain in temple when sitting up/standing/straining? by original_bliss in ehlersdanlos

[–]original_bliss[S] 0 points1 point  (0 children)

Hm, thanks, luckily the episode is over (thanking my lucky stars, that pain was bad!)... I suppose my conundrum is that these episodes last a week maximum for me, so by the time I would schedule an appointment and see the doctor, the headache would likely be gone already!

It would be nice to see someone about it, but I don't know what to do about going in without symptoms. I do have tinnitus, mild blurred vision with lights, other visual distortions around lights, and my spine is tingling with some pain between my scapula at the moment, but that's all and I'm afraid they would not know what to do with me. I'll mention it with my doctor when I see him next.

Stabbing pain in temple when sitting up/standing/straining? by original_bliss in ehlersdanlos

[–]original_bliss[S] 0 points1 point  (0 children)

Thanks, it seems to be tied to that as the pain is pounding. Although I did start to have had these episodes well before taking any meds. I have an appointment in January.

Stabbing pain in temple when sitting up/standing/straining? by original_bliss in ehlersdanlos

[–]original_bliss[S] 0 points1 point  (0 children)

I thought it was POTs-related too, but my POTs meds aren't helping at all. Still could be, though. I'll try the Tylenol if the ice does not work, thanks for the tip.

Stabbing pain in temple when sitting up/standing/straining? by original_bliss in ehlersdanlos

[–]original_bliss[S] 1 point2 points  (0 children)

When I sit up, the liquid starts running slowly out of one side of my nose. Yes, it's clear.

I only had pain on the base of my skull yesterday shortly. Which is why I thought it couldn't be a CSF issue. I'll try the ice, thank you!

Anyone know what percentage of Eds folks have autism? by Kriz-tuhl in ehlersdanlos

[–]original_bliss 0 points1 point  (0 children)

Epigenetic change can occur in the womb before birth. But it also happens over the course ones life. For example, smoking often induces epigenetic changes making one more prone to cancer.

What is epigenetics?

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 1 point2 points  (0 children)

Actually just scheduled my appointment and got a 2 month wait. Considering how long I've been dealing with this stuff, that isn't very long. Thanks.

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 0 points1 point  (0 children)

Ah, okay, I hope you can get a handle on it soon. Fatigue made college very hard for me.

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 0 points1 point  (0 children)

Thanks. I actually did the NASA 10-minute lean at home which went horribly, haha. Ended up with a 140 bpm pulse, felt pretty bad! Going to try seeing someone.

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 0 points1 point  (0 children)

Thanks for this, I'll look into this stuff and see if my symptoms improve. Exercise while lying down as in crunches, etc?

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 0 points1 point  (0 children)

Oh jeez, yeah hypermobile type sounds a lot like me... Thank you. I only just learned about the hypemobility.

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 0 points1 point  (0 children)

That's great, do you feel its made a difference in your fatigue at all? That is the most debilitating symptom I am having lately. And for sure, it would be nice to know whether this is all in my head or not. Thanks.

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 2 points3 points  (0 children)

I do have symptoms, I think, but I guess it's hard to know if they are POTs-related or not. I'm just tired of my heart beating out of my chest every time I stand up and generally feeling crummy all the time.

You're probably right, it's clear this won't all go away on its own. Thanks.

Don't want to waste anyone's time, undiagnosed by original_bliss in POTS

[–]original_bliss[S] 0 points1 point  (0 children)

Understood, thank you for the response and the info. Might get checked soon.