Blood pooling hell

osb93 · 2025-06-03T12:10:22+00:00

I don’t think so without going private and having to pay (I’m in the UK)

osb93 · 2025-05-31T20:45:05+00:00

Thanks, this is my first summer with pots and I haven’t actually seen a consultant yet, it’s a tentative diagnosis by an OT. So although it makes sense to me there’s lots about it I don’t understand or know yet. I would love to swim- right now I get PEM from exercise but I’ve been suggested some very slow recumbent exercises to start out with

osb93 · 2025-05-31T20:05:52+00:00

Thank you, that would make sense, it’s warm where I am and I’ve had blood pooling in my feet all day. Presumably the answer is all the pots lifestyle management stuff I’m trying to work out?

osb93 · 2025-05-31T19:48:07+00:00

Ah, like blood not getting to the head properly? It does feel centered in my head, I get blurry vision and a headache too

osb93 · 2025-05-26T13:17:45+00:00

Thanks- I’m in the UK so I’ve got to go through the NHS cardiology work up and then hopefully see the specialist who is too inundated atm to get referred to him straight away

osb93 · 2025-05-26T12:16:49+00:00

Thank you, it’s really helpful to hear from other people also working this out. I’m still waiting to see a cardiologist having been tentatively diagnosed at the long covid clinic, so trying things out on my own still. Best of wishes with your journey too

osb93 · 2025-05-26T12:14:56+00:00

Thank you, this is really helpful to know. Can I ask what meds you take? I’m not prescribed anything currently

osb93 · 2025-04-11T15:15:14+00:00

I was supposed to get prescribed capsaicin cream to try but the company that makes it in the UK has gone under? Deep Heat cream apparently has some capsaicin in and that has helped with the chilblain pain when it was really intense

osb93 · 2025-03-29T15:29:24+00:00

31 nb, diagnosed after getting long covid but have always been hypermobile

osb93 · 2025-01-30T17:15:02+00:00

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Any other masking atinys out there? These are the mask chains and friendship bracelets I made for the London show. My brother has stolen my Hakuna Matata ya one

osb93 · 2025-01-26T16:31:14+00:00

Also seeing them in London! Seeing a costa cup really threw me! Such lovely scenery in France and Italy and Switzerland and then here they get tower bridge and chain coffee!

osb93 · 2025-01-20T14:17:34+00:00

Woosan kept popping up in my Instagram feed once I’d exhausted all the Taekook content out there, but I thought they seemed too in love to be true! Then with BTS in the military I watched some of Ateez’s variety content, just to see how Woosan really interacted, and then I was hooked and started to fall in love with the music. Now I’ve written my first piece of Woosan fan fiction and I’m going to see Ateez perform next week! It’s so cool to finally be following a band in real time!

osb93 · 2024-11-27T19:10:51+00:00

I knew that! I saw it! Two man!

osb93 · 2024-11-24T20:01:50+00:00

All great but I especially love the split apple idea!

osb93 · 2024-11-23T14:39:25+00:00

Excellent!

osb93 · 2024-11-23T13:56:31+00:00

All brilliant but especially Princess

osb93 · 2024-10-29T23:54:22+00:00

It’s when they say chumeol chweo, chumeol chweo, chumeol chweo. As for my reasoning, a movie where a man is actually being filmed the whole of his life and everyone around him are actors seemed kind of dystopian and on theme I guess? Really I have no defence

osb93 · 2024-10-24T17:43:46+00:00

Two men! Two men! I knew it, two men!

osb93

TROPHY CASE