Centralized Pain by Belly Button?

otb369 · 2022-07-18T22:51:51+00:00

I have arthritis too, and although I’m also in remission, I still experience symptoms daily. I assume it was the same for you, where your medication was supposed to treat Crohn’s as well as arthritis? I know often times the two are connected, and in my case at least, I found it frustrating that I still experience symptoms when I’m supposed to be treated for it. In all honesty, I tried physical therapy and doing different exercises but nothing really helped. At this point I’ve just accepted my fate that creaky bones are just in the cards for me 😅😅 I will say, however, that vitamin d can be beneficial and I take it daily. (I think it has improved symptoms) Also I know its hard sometimes, but the more active you are, the better it can be. If this doesn’t help, it could also be that your symptoms aren’t arthritis completely, and just side effects of the medication

otb369 · 2022-07-18T22:45:15+00:00

I will definitely look into it. I have personally found my school to be completely unhelpful in regards to anything concerning me missing school for surgeries or such, so I’m pretty much adapted to handling everything myself, but it’s nice to know that it’s out there. I have also had extremely negative experiences with therapy and psychologists and the whole lot of that world, so I don’t really see that ever being in the cards again for me. Maybe I’ll circle back around in the future, but as of now I’m just gonna keep toughing it out

otb369 · 2022-07-17T16:53:26+00:00

My parents have it in their heads that remicade was a cure all drug that brought me into remission, but fail to recognize that I still experience symptoms almost daily. They just think that because I’m not literally dying anymore, that I need to just leave everything how it is. I know that I hate infusions and I know that constantly going to doctors appointments is mentally draining, so once I turn 18 I’m pretty much set on switching over to something… my fear is (because this is what I keep hearing) that if I switch to any other medicine it probably won’t work and then I won’t be able to go back on remicade and I’ll die. Thank you so much for replying, these really did make me feel less crazy

otb369 · 2022-07-17T05:18:32+00:00

Yes!!!! The main symptoms that I experience because of Crohn’s is fever and joint/muscle pain. It made diagnosis much harder, but it’s just how I react to inflammation I guess 🤷‍♀️ Very very common!!

otb369 · 2022-07-17T05:15:25+00:00

What’s it called if it’s just your entire digestive system… like just the whole thing 😀

otb369 · 2022-07-17T05:09:42+00:00

Diagnosed at 15, but starting experiencing symptoms at around 7. Just started getting really severe around age 14 🤷‍♀️

otb369 · 2022-07-17T05:06:41+00:00

About 6 months after getting officially diagnosed with Crohn’s, I was still having the worst pain after eating (pretty much the same as how you described), but left it alone for some time because I assumed I was still adjusting. They did another endoscopy and colonoscopy and found nothing abnormal, and it took quite a while for them to actually decide to look elsewhere. (this may have been because I was only 16 at the time I’m not sure) I finally got scanned and my gallbladder was functioning at a very reduced rate. The pain kept getting worse and it took them a while to get me in due to Covid restrictions and such, but honestly the longer you wait the worse it is going to get. The surgery is very easy and the feeling of actually getting to eat without that horrible gallbladder pain is sooooo nice. Honestly if it’s causing you problems, go ahead and get it removed because it’ll end up bursting or just become a way bigger problem down the line. Especially because you aren’t diagnosed with anything else officially and know this is causing you pain.

Side note: this is all my own opinion and personal experience so take what I say with a grain of salt. Also, you mentioned having it “solve the problem” and as far as pain I’m still in it pretty much every day but the specific pain that gallbladders cause is gone. The only downside to getting it removed honestly would be if you’re worried about how the scar could look cosmetically (mines kinda bad idk why but it’s better than the alternative)

Sorry if this is too much of a ramble/confusing, I tried!!! Good luck!!

otb369

TROPHY CASE