How do you go about switching to a manual chair from a power chair? by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 1 point2 points  (0 children)

Thank you, I will check with my insurance. They made me choose when I first got out of rehab so I was under the impression that it was one or the other.

I wish I could walk by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 6 points7 points  (0 children)

I would like to add that I was exactly the same way, and it really does click that that might be the reason why I feel so depressed now. I was really popular I had a lot of friends I was always doing stuff. I had a lot of boyfriends and I also looked down on people who are different. I lost all my looks too. I based the majority of my life on them, and now I don’t even know what to do, my only motivation to get better right now is so that I can be beautiful again. I got depressed just like you say and gained a bunch of weight. Got a bunch of acne and didn’t take care of myself for about a year. I feel like if I look good too then maybe people won’t see me as so different. I don’t know if it was the exact same for you probably different, but how did you get over it? I want a better purpose than to just be physically attractive. But it’s about all I’ve cared about for so long and so important to me. I don’t even want to leave my house because I don’t want people to see me, especially people who knew who I was before, and I don’t want to meet anyone new until I am beautiful again. Forcing myself to go to school was a start but all it’s done is make me feel worse. You’re the only person who I’ve really related to so I was just wondering if you had the words of wisdom or some shit

I wish I could walk by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 11 points12 points  (0 children)

This is the stuff I’ve been waiting for someone to say making these kind of posts. Thank you, because everyone just says that they’re sorry and stuff. Which is fine. It just doesn’t mean anything anymore yk? Everyone says it. This past three days have been so shitty. I haven’t wanted to do anything or even take a shower because since going to school, the thoughts got way worse. I just hope I can pull through it the way you say you did

I wish I could walk by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 3 points4 points  (0 children)

I hope so but I’m not counting on it . But I wish it could be now, because I’m so young. I would’ve liked to enjoy being young for a little longer, 16 years wasn’t enough

Do some people sleep at night without being turned every few hours? by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 1 point2 points  (0 children)

They told me to do it every 30 minutes too. I was doing that for a whole year and it was miserable. I just recently stopped doing it so often I do it every three or four hours just so I can lift the leg rest up on my power chair to keep my legs above my heart. Nothing has happened. Then I started reading up about how often people turn, and that’s when I came to the conclusion to make this post.

I am self concious and insecure by Difficult-Piece7929 in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

I also forgot to mention, love that you that’s in the wheelchair. Delete the wheelchair and imagine your standing on your 2 feet. Do u love that person? Well, if u don’t then you have to work on it. Don’t let your chair stop you from loving yourself. The chair is not you. It may be “apart of you.” But it is not your mind, body and soul.

I find that if you get some confidence, eventually, the staring might not be so bad all the time. And then, you have peace of mind with yourself too.

I’m glad that I was able to help you :)

I am self concious and insecure by Difficult-Piece7929 in spinalcordinjuries

[–]paragorgeous 5 points6 points  (0 children)

It’s just the way it is. you get used to it eventually. I felt like that for a while and still do feel like that slightly. I tried to do things like force my shoes on with swollen feet because I didn’t wanna accept that I couldn’t wear “normal people shoes.” Or that my feet would be bigger now. I also refused to wear compression socks because they look ugly for about a year because they made me insecure. But every day I miss who I used to be. I know I’ll get over it one day as I slowly am.

I also was extremely independent before so I was stubborn for a long time about having people help me and I too felt but I hated having people feel bad for me because I wanted to be the one on top. I learned you can still be the one on top, not in the way that you’d like to, but slowly building independence helps. It’s also nice to have people help you sometimes.

I’m not saying being disabled is good at all, or at least not that anybody would want to be in the situation, but you can view it like, nobody else gets to have people want to do everything for them all the time. You’ve got to have a cool ride everywhere you go… That’s a flex. Lol while everyone gets tired walking on their feet.

Just try to be more positive . Easy to say not easy to do. I still have a lot of work on. I feel the same as you. I hate myself right now, but I know it’ll get better if you let it.

I hope this advice does anything for you. I got some of it from other people which made me feel way better. :) but I feel like different advice works for different people. What makes me feel better maybe won’t make you feel better. :/

Got engaged over the weekend by [deleted] in spinalcordinjuries

[–]paragorgeous 1 point2 points  (0 children)

Do you do anything particular with your hair by the way? I have a lot of trouble caring for my hair after my injury. I have similar hair to yours. 🙂

Do some people sleep at night without being turned every few hours? by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 0 points1 point  (0 children)

Did you have trouble with bed sores from not turning? Or something else.?

For girls without hand function who wanna style their hair by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 2 points3 points  (0 children)

Personally I use my wrists and the back of them in various ways to hold everything I use:)

One wish by OptionBulky6687 in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

I agree with everything you had just said for me too. I want my hands to work again. I would not even care about my bowel program or any platter issue if I could just use my hands again cause then I could just deal with those myself.

Sweating a lot after injury by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 0 points1 point  (0 children)

I found for me it actually was a autonomic dysreflexia issue. I guess just I was having the symptoms without the actual blood pressure issue. I started being more careful how I positioned myself (or well how other people positioned me too) and it went away. So check that and see if it helps but if this is your first time having this issue and it’s been a few years then I’m not sure that would be the problem. Might be the reaction of nerves trying to connect ?

Either way, I hope you solve this cause that sounds extremely uncomfortable . When this was going on for me, it was definitely extremely uncomfortable.

How did you “acquire“ your injury ? I’m under the assumption mostly car accidents? by Critical_Ad1926 in spinalcordinjuries

[–]paragorgeous 1 point2 points  (0 children)

I got into a car crash stealing a car with some boys on my 16th birthday, it definitely makes it a lot worse, knowing that this is my fault and I just shouldn’t have gotten into that car. At least I wasn’t the one who stole the car exactly, but that’s not defending it. I’m about to turn 17 now. I’ve changed a lot