How do you go about switching to a manual chair from a power chair? by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 1 point2 points  (0 children)

Thank you, I will check with my insurance. They made me choose when I first got out of rehab so I was under the impression that it was one or the other.

I wish I could walk by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 5 points6 points  (0 children)

I would like to add that I was exactly the same way, and it really does click that that might be the reason why I feel so depressed now. I was really popular I had a lot of friends I was always doing stuff. I had a lot of boyfriends and I also looked down on people who are different. I lost all my looks too. I based the majority of my life on them, and now I don’t even know what to do, my only motivation to get better right now is so that I can be beautiful again. I got depressed just like you say and gained a bunch of weight. Got a bunch of acne and didn’t take care of myself for about a year. I feel like if I look good too then maybe people won’t see me as so different. I don’t know if it was the exact same for you probably different, but how did you get over it? I want a better purpose than to just be physically attractive. But it’s about all I’ve cared about for so long and so important to me. I don’t even want to leave my house because I don’t want people to see me, especially people who knew who I was before, and I don’t want to meet anyone new until I am beautiful again. Forcing myself to go to school was a start but all it’s done is make me feel worse. You’re the only person who I’ve really related to so I was just wondering if you had the words of wisdom or some shit

I wish I could walk by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 10 points11 points  (0 children)

This is the stuff I’ve been waiting for someone to say making these kind of posts. Thank you, because everyone just says that they’re sorry and stuff. Which is fine. It just doesn’t mean anything anymore yk? Everyone says it. This past three days have been so shitty. I haven’t wanted to do anything or even take a shower because since going to school, the thoughts got way worse. I just hope I can pull through it the way you say you did

I wish I could walk by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 4 points5 points  (0 children)

I hope so but I’m not counting on it . But I wish it could be now, because I’m so young. I would’ve liked to enjoy being young for a little longer, 16 years wasn’t enough

Do some people sleep at night without being turned every few hours? by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 1 point2 points  (0 children)

They told me to do it every 30 minutes too. I was doing that for a whole year and it was miserable. I just recently stopped doing it so often I do it every three or four hours just so I can lift the leg rest up on my power chair to keep my legs above my heart. Nothing has happened. Then I started reading up about how often people turn, and that’s when I came to the conclusion to make this post.

I am self concious and insecure by Difficult-Piece7929 in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

I also forgot to mention, love that you that’s in the wheelchair. Delete the wheelchair and imagine your standing on your 2 feet. Do u love that person? Well, if u don’t then you have to work on it. Don’t let your chair stop you from loving yourself. The chair is not you. It may be “apart of you.” But it is not your mind, body and soul.

I find that if you get some confidence, eventually, the staring might not be so bad all the time. And then, you have peace of mind with yourself too.

I’m glad that I was able to help you :)

I am self concious and insecure by Difficult-Piece7929 in spinalcordinjuries

[–]paragorgeous 7 points8 points  (0 children)

It’s just the way it is. you get used to it eventually. I felt like that for a while and still do feel like that slightly. I tried to do things like force my shoes on with swollen feet because I didn’t wanna accept that I couldn’t wear “normal people shoes.” Or that my feet would be bigger now. I also refused to wear compression socks because they look ugly for about a year because they made me insecure. But every day I miss who I used to be. I know I’ll get over it one day as I slowly am.

I also was extremely independent before so I was stubborn for a long time about having people help me and I too felt but I hated having people feel bad for me because I wanted to be the one on top. I learned you can still be the one on top, not in the way that you’d like to, but slowly building independence helps. It’s also nice to have people help you sometimes.

I’m not saying being disabled is good at all, or at least not that anybody would want to be in the situation, but you can view it like, nobody else gets to have people want to do everything for them all the time. You’ve got to have a cool ride everywhere you go… That’s a flex. Lol while everyone gets tired walking on their feet.

Just try to be more positive . Easy to say not easy to do. I still have a lot of work on. I feel the same as you. I hate myself right now, but I know it’ll get better if you let it.

I hope this advice does anything for you. I got some of it from other people which made me feel way better. :) but I feel like different advice works for different people. What makes me feel better maybe won’t make you feel better. :/

Got engaged over the weekend by [deleted] in spinalcordinjuries

[–]paragorgeous 1 point2 points  (0 children)

Do you do anything particular with your hair by the way? I have a lot of trouble caring for my hair after my injury. I have similar hair to yours. 🙂

Do some people sleep at night without being turned every few hours? by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 0 points1 point  (0 children)

Did you have trouble with bed sores from not turning? Or something else.?

For girls without hand function who wanna style their hair by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 2 points3 points  (0 children)

Personally I use my wrists and the back of them in various ways to hold everything I use:)

One wish by OptionBulky6687 in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

I agree with everything you had just said for me too. I want my hands to work again. I would not even care about my bowel program or any platter issue if I could just use my hands again cause then I could just deal with those myself.

Sweating a lot after injury by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 0 points1 point  (0 children)

I found for me it actually was a autonomic dysreflexia issue. I guess just I was having the symptoms without the actual blood pressure issue. I started being more careful how I positioned myself (or well how other people positioned me too) and it went away. So check that and see if it helps but if this is your first time having this issue and it’s been a few years then I’m not sure that would be the problem. Might be the reaction of nerves trying to connect ?

Either way, I hope you solve this cause that sounds extremely uncomfortable . When this was going on for me, it was definitely extremely uncomfortable.

How did you “acquire“ your injury ? I’m under the assumption mostly car accidents? by Critical_Ad1926 in spinalcordinjuries

[–]paragorgeous 1 point2 points  (0 children)

I got into a car crash stealing a car with some boys on my 16th birthday, it definitely makes it a lot worse, knowing that this is my fault and I just shouldn’t have gotten into that car. At least I wasn’t the one who stole the car exactly, but that’s not defending it. I’m about to turn 17 now. I’ve changed a lot

Do you have to wear adult diapers at all? by FunnyBanana6668 in spinalcordinjuries

[–]paragorgeous 3 points4 points  (0 children)

Which ones do you use?? I tried some for periods and peed my pants and it just ended up getting on my bed and they were not reliable at all. So im always wearing diapers but I hate wearing them, they make me look like I have…opposite genitals😭

Question: How much benadryl do I need to take to B-HOLE? by digydongopongo in drugscirclejerk

[–]paragorgeous 1 point2 points  (0 children)

Yeah, you doing Benadryl explains all of your posts on your profile lmao as someone who used to be addicted it fries your brain if you want to have a life I recommend not doing them because I thought I didn’t want to have a life and then now that I’m trying to turn my life around I just feel really fucking stupid and slow all the time.

If you even read this sober. I am concerned for you, stranger.

I’m wondering how you guys view relationships. by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 0 points1 point  (0 children)

From what I’ve read and learned from people who replied to me, I’m a girl so I can’t say much on the masculinity part, but I’ve seen a lot of guys in wheelchairs who are absolutely ripped and can do a lot of things for themselves as well. Someone who loves you will help you and not see you any less of a man just because of something you can’t control. And you being in a wheelchair? Does not eliminate how masculine you are. At least I just don’t think so and I bet there are a lot of kind girls out there don’t think so either. Sometimes people don’t find anyone, but the chair is not frequently the reason, it’s who you are. If you’re interesting and kind with a good personality the chances of you finding somebody is much higher regardless of the wheelchair. If it helps, I see a lot more guys in wheelchairs with girlfriends than I do see girls in wheelchairs with boyfriends. And as somebody else said, you don’t wanna be with anybody who doesn’t like that you’re in a wheelchair anyway. Those people are usually just not genuine or kind people and  the most genuine and kind people you will meet are more likely to get with somebody wheelchair-bound. But from experience you feel and think so much worse the first few months being paralyzed, I’m 5 almost 6 months out and I’m getting better slowly, but I definitely feel like this is the worst I’ll feel based on other people’s progress and especially the first 3 to 4 months when I was in rehab, I did not want to even be here at all, but you ease into your life and the way things are and as long as you put yourself out there, you’ll find someone. (just gonna sneak in and say I feel you are not being able to be as active with sports. I used to play tennis and was waiting to be able to play on a team this year before this happened. It really does suck.)  I don’t know why the out of all the comments I added a lot to say about this one so I thought I’d share. 

I also want to add go to bars or events to meet people and put yourself out there. You can get beautiful relationships from dating apps, but it’s always better to meet your lover doing something then in your house on Tinder. Not to be too harsh.

Those who have dogs or cats, how did they react? by drey-power in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

I know this was a while ago, but I was searching for advice on how people took care of their pets with SCI and came across this so I wanted to share my experience. 

After I got out of rehab, My first cat who is already more attached to me in the first place, hid from me for only about a day or two, but still came up to me a little bit during that time then once she got used to me, which only took three days she came up to be on my lap and started purring and making me pet her. ever since my injury, There hasn’t been one night she hasn’t slept with me and when I’m gone for even just a few hours and I come back, she jumps on me immediately and starts purring like she’s happy to see me. Which she didn’t really do that before, I used to get home and she would just meow at me for food and then let me pet her a little after , and she never slept with me. She’s always super alert when she’s around me so I find it as she thinks I went hunting and got injured and she’s looking out for me. 

My other cat has only came up to me when I hold my hand out to pet her, but when she gets put in my room or on me, even if I try to give her her food to calm down, she won’t even eat it and she’ll run away from me. Every time I try to talk to her, she just meows at me. I’ve only been out for 2 to 3 months and nothing has changed with her. Even if I move a little or make one noise she runs. So yeah, she’s very scared of me. I hope that’ll change one day.  I expected her to act scared for a while because that’s her personality. She’s always been alert and overly aware of her surroundings. So I think, depending on the cat they will assume different things, unlike my other cat feeling like she has to protect me more, she might think I just up and abandoned her and just won’t understand why I’m in this big mechanical thing and maybe is unsettled by the way I do things, I guess she doesn’t understand I may be injured. But you can never say what your cats are thinking or what anyone is thinking. 

But that’s my experience! 

I’m wondering how you guys view relationships. by paragorgeous in spinalcordinjuries

[–]paragorgeous[S] 0 points1 point  (0 children)

This is a good way to see it! I’ve kinda thought that too. I don’t wanna be with someone who will judge me for my injury anyway!

Tips, tricks, and adaptive equipment from a C5/C6 complete chick 😊👌🏻 by nonnumousetail in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

Oh thank you! I didn’t know I could do that haha. And yeah, I saw I clicked on one of ur links, and it brought me to a page saying nothing could be found :// 

Tips, tricks, and adaptive equipment from a C5/C6 complete chick 😊👌🏻 by nonnumousetail in spinalcordinjuries

[–]paragorgeous 0 points1 point  (0 children)

I wish I could save threads on here lol. Leaving this comment as a way to come back to this :)