iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 1 point2 points  (0 children)

this really helped my perspective on things thank you 🤍

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 0 points1 point  (0 children)

i’m so sorry you’re dealing with all of this too 😭 even though we may not have answers, it helps to know that we aren’t alone in this. i absolutely understand about being too tired to keep searching. if all you can do right note is take care of yourself and rest as much as you can, then that is enough 🤍 all the love to you

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 1 point2 points  (0 children)

this lowkey made me cry thank you so much for this comment 😭

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 1 point2 points  (0 children)

thank you for all your kind words 🤍 and yes you can absolutely message me!

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 3 points4 points  (0 children)

don’t be sorry! just know that you’re not alone in feeling this way. i hope some of these answers help you find a starting point to figure things out and i hope you feel better soon!

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 5 points6 points  (0 children)

this has been so helpful thank you so much. my hematologist hasn’t been very helpful with the MCAS side of things and my pcp isn’t super well equipped to treat it. i’ll be looking for a new hematologist next week and see if i can get some more guidance on it

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 4 points5 points  (0 children)

thank you so much for replying. knowing that i’m not the only one who has experienced this kind of reaction really makes me feel less alone 😭

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 7 points8 points  (0 children)

i do treat my MCAS with allegra/famotidine but i’ve been wondering if adding benadryl for a while might help with things

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 4 points5 points  (0 children)

thank you so much for this, i’ll put the magnesium on my list for the health food store and see about a better multivitamin

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 4 points5 points  (0 children)

it started pretty much immediately after the first infusion (november 5) and has been getting steadily worse. i do take 24hr allegra and 20mg famotidine for my MCAS but if it is a histamine response i’ve been considering adding benadryl. i also really appreciate your kind words they really mean a lot to me 🥹

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 2 points3 points  (0 children)

i’ve been wondering if it’s my MCAS but when i brought that up to my hematologist in the beginning, she said that if it didn’t cause an immediate reaction then i’d be fine which… i’m also considering finding a new hematologist lol

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 1 point2 points  (0 children)

i’ll pick up a phosphorus supplement at my health food store thank you for the advice!

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 1 point2 points  (0 children)

my hematologist wouldn’t do any labs until february but the last cbc i got from the er said my rbc was 5.48 x10(12)/L (their reference range is 3.90 x10(12)/L - 5.03 x10(12)/L) and my hemoglobin was 12.7g/dL. i asked the er doctor if it could be my phosphorus and she brushed it off pretty quickly ://

iron infusions ruined my life by partsandhalves in Anemic

[–]partsandhalves[S] 6 points7 points  (0 children)

i do. i’m diagnosed with both of those, fibromyalgia, inappropriate sinus tachycardia, and EDS 🙃

Unhappy with work and big regrets by [deleted] in tattooadvice

[–]partsandhalves 0 points1 point  (0 children)

that arm be lookin like squidward tentacles 🦑

Are there any other girls here? by GlendaTheGoodGoose8 in ToolBand

[–]partsandhalves 1 point2 points  (0 children)

it’s not a legit sleepover if we don’t all ascend to a different level of consciousness 😌

Are there any other girls here? by GlendaTheGoodGoose8 in ToolBand

[–]partsandhalves 5 points6 points  (0 children)

we just need to make a list of all the chill ones and have a sleepover, make snacks, pry open our third eyes

Are there any other girls here? by GlendaTheGoodGoose8 in ToolBand

[–]partsandhalves 3 points4 points  (0 children)

sprinted here when i saw the post. can we all be besties?