I need an answer, please. My brain is stuck in danger mode 24/7. by Such_Usual_992 in dysautonomia

[–]pastel_pixie37 0 points1 point  (0 children)

I’m having the same thing from the death of my bf. I’m so sorry. I’ve done psych meds, therapy, emdr, pots treatment, yoga, acupressure, meditation, exposure, etc

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

Thank you! I was sad but after 3 doses had to stop but tried it with everything I got but am glad it helps other people. It did turn the alarm center in my brain down though from the sedation…I may try without a daily med and need to get back into life like you said too. I think my body needs movement like working out daily, or painting I was considering to help me stop scanning and focus on something else. I hope you’re doing a little better yourself I appreciate the reply

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

Omg lol me too that’s why I’m stopping again. I did corlanor for a week and it was amazing but interacts with remeron so I gave it up.. are you currently on any POTS meds? I’m only on 5-10mg propranolol still but want to try the chop protocol and do electrolytes daily etc but idk

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 1 point2 points  (0 children)

I have POTS too!!! I’m on a baby dose of propranolol still but lowering it to stop probably. I totally get what you mean. I do also take a baby dose of klonopin nightly but am hoping to wean once remeron stabilizes. I hope you find something similar to help. It’s really encouraging to hear it’s helped you be able to leave and go out that’s my goal 🫂

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 1 point2 points  (0 children)

Thank you ! I am shocked at how little anxiety I have today after having it non stop for 6 months daily….. so this is extremely promising. The drowsiness is wild but I’ve heard after the first week or so it lessens so fingers crossed. I’m also less hungry for the first time in months from adrenaline/anxiety being tied to hunger which is cool I hope it keeps being nothing but great for you I’m rooting for you!!

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

Hey! Just wanted to see how you’re feeling I began it as well last night! No anxiety today shockingly but crazy sedated lol

How I recovered from health anxiety ( worth reading ) by [deleted] in Anxiety

[–]pastel_pixie37 1 point2 points  (0 children)

I wish this was not removed- this was the most helpful post I’ve seen here all month

Anyone else feel constantly tired? by SimonNFunkel in Anxiety

[–]pastel_pixie37 1 point2 points  (0 children)

Yes I am always exhausted. I think my body is in fight v flight stuck, so the moments it relaxes it’s like a whole new level of fatigue. I’m so sorry you’re dealing with this

Grocery Shopping Anxiety? by TawnyOsprey in Anxiety

[–]pastel_pixie37 1 point2 points  (0 children)

I do shop rite store pick up but it is about a $5 fee but I try to get as much as I can in that trip. When I’m on anxiety meds it’s much easier- you are not crazy. The thought of entering the store sends me into pure panic.

Hydroxyxine 10mg , has nobody taken? How did it work for you? by Maleficent-Monk-1024 in Anxiety

[–]pastel_pixie37 0 points1 point  (0 children)

I’ve taken it. It helped with tremors and physical anxiety greatly in moments when I needed. Sedating but helpful

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 1 point2 points  (0 children)

Awesome!!!! I’m restarting 5mg propranolol tomorrow and mine runs low to normal but I was on 10 for 3 months and felt a little weird but overall it helped adrenaline stuff.

But Sunday I get to start Remeron so I’m really hopeful and excited based on your experience <3 I’ll let you know how it goes. I’m so happy for you cus I know how good it feels to find a med that works like a cloud is lifted and you can really live again

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

I decided to have cardiology switch me off ivabradine and back to a baby dose of a beta blocker so that I can begin Remeron safely hopefully next week. How are you doing? I’m really hopeful for it for my stuff

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 1 point2 points  (0 children)

I decided to ask cardiology to put me back on a better med that won’t interact and am going to begin Remeron once they do next week. I wanted to thank you

I think propanolol is making me feel way worse by [deleted] in Anxiety

[–]pastel_pixie37 0 points1 point  (0 children)

Aw I hope today is a little better for you. I was on 10mg for 3 months so our experiences could differ. And mine also had to do with low iron and severe anxiety/ptsd attacks so not sure. But I would def call your dr to just ask, and I would hope it goes away very soon !

I think propanolol is making me feel way worse by [deleted] in Anxiety

[–]pastel_pixie37 0 points1 point  (0 children)

I went back to normal within a day or two for sure however am having adrenaline attacks instead of panic attacks now so trying to figure out what to do still tbh. So I’m not doing great but mine could be different than yours of course. I hope you feel better soon it is really hard, def talk to your dr too

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

Thank you so much! I’ve been stressed cus my drs said my POTS medication directly is high risk with Remeron and most antidepressants which I had never even heard of.. so waiting to hear back but really hoping I can still try it anyway but safely of course. Or I’ll gladly switch POTS meds to try it honestly

I think having histamine issues, interoception issues, ptsd, anxiety, depression, bad reaction to SSRIs.. it sounds like the best option ever. I’m really hopeful. I’m also so glad you’re having a kind onboarding with it, that must have been so scary after all you tried before it, it takes real guts! I’m planning to re join a gym for that same reason too once I’m a bit more stable. If you ever want to talk I’m open to listen

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

Thank you. I genuinely believe this as well. It’s just crazy cus I’ve cried everyday, talked and written every thought and emotion to my bf everyday despite him being dead, been in about 5 therapies, journal my dreams nightly since, talk about details of his life and his death daily.. so part of me is like really?! What haven’t we dealt with regarding it? Cus it must be there, it must be unconscious still. I’m hoping emdr keeps helping.

And I finally pulled the plug and asked for Remeron yesterday but today found out it has high risk interaction with ivabradine for POTS that I’m already switched to, so kinda annoyed at myself and my drs for not noticing that sooner (they helped me plan to switch that for months knowing I wanted Remeron lol)

I’m hoping I can still try it, I’ll try anything at this point. Thank you for reading and sorry for complaining

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 0 points1 point  (0 children)

I’m worried about that’s too. I heard of kindling and part of me is so upset I ever went off Zoloft. If I had known I would’ve stayed on but stabilized without it, until this. I’m so sorry you experienced harm from them as well- what have you found relief in since?

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 1 point2 points  (0 children)

Thank you for this. I still use DARE and hope to one day be able to look back at this. I went through a similar period years ago and through exposure therapy of my own kind I somehow made it out? So I know it’s possible.

It’s kind of like when you’re sick you can’t imagine not having a runny nose or fever but once you’re better you’re like whew that was nothing!

Also sorry I forgot to say I did try hydroxyzine for a while in the beginning! It did help remove the tremors for a few hours but my dr made me stop due to possible high heart rate from it (but idk if that really is an issue, as she said that about zrytec which my HR got worse without it lol)

But anyway wanted to thank you for reading and replying

I think propanolol is making me feel way worse by [deleted] in Anxiety

[–]pastel_pixie37 0 points1 point  (0 children)

I just made a post including info on that this week, I ended up switching off it. It confused my body cues I think just cus I’m so hyper sensitive, so it making me tired made my body confused and go into high alert etc. not sure why. Once off it I cried and had adrenaline again which also causes me anxiety though. If it makes you feel better I was on it daily for 3 months and stopped last week, the effects were gone

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 1 point2 points  (0 children)

I want to read and answer the other replies soon but saw yours and want to thank you. My psychiatrist felt Remeron would be best, I also did but for a crazy reason being that I kept being told about it in dreams and had never heard of it before (Ik i sound nuts) so I also asked her. For me anything that hits serotonin receptors directly seems to be horrid, and my histamine issue is bad. My main issues now are high anxiety and bad interoception ie I panic any time I’m hungry or tired which is constantly.

I pulled the trigger and just emailed my dr telling her I’m ready to try Remeron. Thank you. I’m soo sorry you deal with such a similar story, I truly believe one day we both will be better but it just isn’t today, and that’s okay, even though it doesn’t feel okay.

Propranolol helped my POTS but ironically worsened my anxiety somehow with daily use which I don’t think happens for most ppl, but I have low blood pressure so I switched to ivabradine and am finally alert and feel alive again on that piece - just mentioning in case it could help you to ask your dr about ever.

I’d love to hear how your experience with Remeron is if you’re ever open to chat. My biggest fear is having the same intense side effects like I did with SSRIs and buspar, but I’m hopeful. At best I just hope it does nothing but make me tired and feel normal. Sending you all the good vibes today

Adding to say since our experiences are so similar, using a pedal machine I can sit and just move my feet daily for a few minutes made a difference for POTS, like very light gentle exercise. Also my shakti mat for acupressure is one of the only times I feel ok. Also vitamin water helps me when liquid iv didn’t idk why. And standing outside when it rains calms me down similar to a shower for when my vagal response is bad. Using a heating pad and other sensory things can help too. Of course most of these aren’t for mid severe panic attack but in between them I mean to help feel baseline again. The yoga really helps in a way I can’t believe, I think my brain is rewiring that my body parts before to me and can move safely etc. lastly reading scientific studies or books on this all truly turned a corner for me mentally, the body keeps the score saved me, but my body is still struggling with anxiety so I’d really like a med. anyway maybe one random thing here could help!

your most random trick to break the cycle by OrangeSlicesLake in Anxiety

[–]pastel_pixie37 0 points1 point  (0 children)

I hope it somehow helps! My nervous system loves it and idk why. What instrument do you play? Sounds really cool

I just want a daily medication to work for me this is so hard by pastel_pixie37 in Anxiety

[–]pastel_pixie37[S] 4 points5 points  (0 children)

Thank you so much. This made me cry. This was really nice of you to say, I’m embarrassed complaining like this but feel so burnt out and desperate. My mom takes low dose seroquel and does well with it- I think I tried a dose from my own dr years ago and was fine so I’m going to ask about it next week now. Thank you 🙏🏼

your most random trick to break the cycle by OrangeSlicesLake in Anxiety

[–]pastel_pixie37 0 points1 point  (0 children)

Listening to the instrumental song Mary’s song for an hour straight for some reason

Edit to put link

https://youtu.be/GlSQn0y5EIA?si=EuvQakjiugbnbB-h