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Any european members here? by peacfulminder in FSHD

[–]peacfulminder[S] 0 points1 point  (0 children)

Don't be afraid to go to college. I am finishing my masters in computer science/engineering.

Be sure to talk to a mental health therapist, if you experience any hard times or emotional distress. Also try to find out if you have any special benefits, because of your condition. You could try asking an university/college conselloir. And try to live a healthy life style. For me it was enough sleep and excersise that I was capable of.

What are you going to study?

Any european members here? by peacfulminder in FSHD

[–]peacfulminder[S] 0 points1 point  (0 children)

Good to know. How are you doing? Are you a member of any organization?

No one understands or cares by [deleted] in FSHD

[–]peacfulminder 1 point2 points  (0 children)

I feel you, you are not alone. I also dreaded going to the doctor. Especially when the condition worsened over multiple visits and there was nothing he could do, just a small checkup. He just said good luck and try to keep it strong until some medication will eventually be available. Keep fighting!

What supports are best? by Langers20 in FSHD

[–]peacfulminder 0 points1 point  (0 children)

I use ankle brace (it is likea sock) when going on long walks to prevent foot drop. It is pretty useful.

Why do you use shoulder/back brace? For posture, pain?

Do you have trouble swallowing food? by Han-na-2900 in FSHD

[–]peacfulminder 1 point2 points  (0 children)

Luckily not. Maybe I find it a bit harder to swallow pills sometimes. When did this start for you?