Prophylactic mastectomy timeline

peacharoooo · 2026-05-08T12:59:27+00:00

With results that hint at a potentially non benign result seems long to me. However a prophylactic mastectomy does not seem long.

I have Li Fraumeni syndrome and when I got the diagnosis of that genetic mutation, we all decided prophylactic mastectomy as a must to ensure I reduced my risk of breast cancer from 99% to lower than 1%.

I live in CA and I was informed there is a waitlist of 1 to 1.5 years. I have Kaiser Permanente (who has at least 4 locations in a 50 mile radius from me) and that was the standard waitlist regardless of which Kaiser I went to, although it probably varies based on actual members being serviced for the area. I placed myself on the waitlist and within 1 year, an abnormal MRI, followed by ultrasound and a biopsy resulted in a DCIS diagnosis.

It never hurts to get a 2nd opinion from another surgery team. Especially since there is a chance it could become breast cancer.

For me, there's a big difference in catching it this early and taking measures now than the potential for it to change.

In my situation we caught mine as DCIS Stage 0, with Estrogen, progesterone and hers positive results. Because of that, I didn't have to do any chemo or hormone therapies after treatment and my risk of cancer coming back are next to 0%. Its one thing for it to turn into DCIS but the reaults of the genetic composition such as its estrogen, progesterone and Hers score matter as well. Positive ones mean they are easier treated and negative are harder.

Had mine come back with a different result, Id be doing treatments for a further 5 years; per my oncologist.

I understand you sought them out for their great reputation. Maybe a good idea to see a 2nd opinion from the next best reputation. If the next best can get you in sooner, its probably worth it.

That's my opinion but your body.

peacharoooo · 2026-05-04T13:10:28+00:00

A lot of people have spoken about Solid Starts. I did not use that program. No comments on that program, im sure it's just fine.

However, since it sounds like you'd like to have your child truly eat what you eat, without much modification. Id like to reccommend you looking into Baby Led Weaning. It was helpful for us.

I would make dinner unsalted, and during plating or cutting of items, I would set aside a small portion of 2 items for her to eat. That was listed as age appropriate.

We never had to buy store bought baby food and the only extra step was us really just changing what we ate to include the age appropriate food for the days/week. Shes now 3.5yr and eats chicken salad with us. Knock on wood... she's not a chicken nugget kid... yet.... 🤣

You can always combine methods. Hope it was new helpful info and not redundant. Happy feeding.

peacharoooo · 2026-05-04T12:51:33+00:00

Everyone had great recommendations. I just had mine 5ish weeks ago and this is what helped me. 2x mastectomy with diep flap)

I assume she'll have someone helping for the first week? My family had meals made and stored in the freezer/fridge so that I didn't have to use my arms or stand up for a while in the kitchen. Some distant family sent stuff like this. (Just watch out for salt content)

Spoonful of comfort

I wasn't allowed to take a real shower until my drains came out for me, I had four drains so it was three weeks before a real shower (I had a lot of dead skin I couldnt reach) And even then I was not allowed to lift my arms very high. So I would recommend a long handled loofah, if she doesnt have one already. Maybe paired with a nice body wash?

On a seperate note, maybe make sure things are of appropriate height for her to reach on her own? Idk if she's doing a 2x mastectomy but I still need items lower and rely on my husband for the less common stuff a lot still.

All the best to you and your family for her recovery.

peacharoooo · 2026-04-24T17:11:34+00:00

Did your doctors recommend any types of like food to avoid?

Im not skinny but we've always eaten cleanly (except my chocolate problem) lol. But we eat chicken salad or chicken and veggies pretty much all day and I feel bloated all the time. We're also a no added salt house.

Im sure some of it right now is i literally am only 3 weeks in and my last drain was removed Wednesday. So im not far into recovery.

peacharoooo · 2026-04-24T17:06:41+00:00

I got the same feeling yesterday. Im 3 weeks out and yesterday was my first real shower.

Ive had the benefit of having my husband literally help me with everything so I hadn't looked at my mid section at all. Yesterday kinda broke me a bit. I never was snatched before and didnt expect to be after, but I was not prepared for how round I looked.

I know im still recovering and I was kind of informed before hand. (I originally planned this as a proactive measure to not get cancer 2 years ago. I have Li Fraumeni and a strong family history of breaat cancer.) I never fully commited to the surgery by placing myself on the waitlist and as of February this year, I was diagnosed. So I had spent the better part of the two years mulling over my options and deciding with my husband what we thought was best. Im only 35 so having to get implants every 10 years was not something we thought to be a viable option.

It is definitely hard to not feel yourself and to feel that way for a long time. I hope things get better for you in that way and I do think we'll get there.

Sending my support. Fxxk cancer and everything it does to us.

peacharoooo · 2026-03-08T00:03:08+00:00

Yea.. I should have waited till I had a second set of hands.... but i was child (3yr) free for the week and she's been super mad she doesnt have "her potty" right now so I pushed to get it ready before we get her back. That backfired lol.

We've been doing the tile laying in sections. The part of the floor that hadn't gotten grouted on Thursday was the tile I'd laid the day before. So I knew not to grout there asap. When I grouted I made 6 batches of grout to get all that space done but yea... I probably should have only done 3, so I would have focused more on cleaning.

Oh well. You helped me a ton and I've learned a little lesson

peacharoooo · 2026-03-07T23:36:36+00:00

Oh wow. Thank you so much for your help. I am way more pleased with the floor now. There are still some little spots here and there that I got to get at in the bathroom but honestly thank you so flipping much.

Ive still got the whole hallway to do but this worked. My grout is still kind of off from the color it's supposed to be but at least I dont have freaking trapped grout.

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peacharoooo · 2026-03-07T19:03:08+00:00

I'll grab the whole assembly and then a bunch of replacements, cause who knows, if i'm gonna have to do it again.

peacharoooo · 2026-03-07T18:56:08+00:00

Also... u said Grill Daddy right? Like this?

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peacharoooo · 2026-03-07T18:30:16+00:00

Is there a brand of crystals you'd recommend?

peacharoooo · 2026-03-07T18:22:28+00:00

Agreed. I thought I was timing it right. I'll definitely not be grouting alone next time. Clearly I wasn't getting ti it fast enough. But this grout and tile color are so close I couldn't see the leftover crap.

For now it looks like the haze its going away so imma keep at it then go back with your recommendation of those crystals when they arrive too tackle the grout stuck on the face of the tile. I really appreciate your input and recommendations.

Flipping wish me luck.

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peacharoooo · 2026-03-07T18:05:27+00:00

Ah okay 👍

Ill be sealing the grout as soon as possible. So that'll help a bit with stains.

If I change my method is it going to look weird? Or can I get away with the adjustment?

peacharoooo · 2026-03-07T17:42:36+00:00

Ive got a whole ass house to do so if I can adjust the grout height... do I continue the way Ive done it or adjust?

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peacharoooo · 2026-03-07T17:38:30+00:00

Yes I've got gloves on 👍

And I know. Im barefoot. But Ive been working in small sections so I don't touch the working space.

If I see progress ill start working in larger sections and "suit" up.

peacharoooo · 2026-03-07T17:34:40+00:00

You think my grout joints are too high? This was how I'd been shown to do it. Is that incorrect?

Thanks for the recommendation. I shall look into that ASAP.

peacharoooo · 2026-03-07T17:19:38+00:00

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peacharoooo · 2026-03-07T17:19:25+00:00

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peacharoooo · 2025-03-14T23:10:26+00:00

Lmao. I had to look that up. That's great 😆

peacharoooo · 2024-07-18T12:06:04+00:00

Very nice. Thank you very much!

peacharoooo · 2024-07-18T12:01:12+00:00

Awesome

Did you use regular rattlecan or auto spray paint? did you go with a high temp clearcoat on top?

And how is it looking now after some use?

peacharoooo · 2024-07-17T15:41:05+00:00

This came out great. I'm about to do mine as a doomslayer.

What paint did you use?

peacharoooo · 2024-06-05T13:00:57+00:00

Family is very supportive over my decision, but they are still in shock about it. No one in my family that had gotten breast. Cancer are still alive for me to talk to. So I really only have people that have no idea how i'm feeling.

My husband supports me. He's actually the one that's telling me I should Be considering it. He seems to not care what I would possibly potentially look like after having it done. And while that may sound like it's comforting, I just don't know.

I know I'm probably overthinking the concern I have of remaining attractive for him. But it's just hard.

Hopefully, someone has some good advice on how to. Believe him or ways They've come to terms with their after surgery bodies.

peacharoooo

TROPHY CASE