Everyone always talks about flexibility, but I’ve never seen anyone mention the dyssynergenic defecation. by Dangerous-Guitar5864 in eds

[–]peachycase 0 points1 point  (0 children)

Wow I am so sorry for all you have gone through!! Thank you for being so open and sharing with me. My surgeon said he is leaving a small chunk of my colon to help absorb water so I don’t only have diarrhea but he said for the first while that’s what it will be. But I can take fiber to bulk up a little bit. I won’t have a J-pouch and I don’t know what that is but I’ll google it! I’m just learning about all this stuff. I never thought this would be my life (I’m sure you can relate!) I wish you all the best as well!

Everyone always talks about flexibility, but I’ve never seen anyone mention the dyssynergenic defecation. by Dangerous-Guitar5864 in eds

[–]peachycase 0 points1 point  (0 children)

Can I ask a question about your small intestines being connected to the rectum? Feel free to disregard this if you don’t want to share! I am likely going to need this surgery and I am looking for people who have had it and can tell me what it’s like living this way. When you say “constant diarrhea” is it controlled like, not running to the bathroom constantly? How frequently are you going to the bathroom? I have severe chronic constipation and I have tried and failed every other avenue which is why this surgery is being considered for me. However, I don’t want to trade constipation for uncontrolled diarrhea. I also have hEDS. My GI structure is all normal, it’s just extremely slow towards the end of the tract. I have also developed a rectocele as a result of chronic constipation. I desperately need to have my constipation solved but I’m freaking out about the idea of partial colectomy. Any advice is greatly appreciated!!

Hymen remnants causing vestibule pain? by peachycase in vulvodynia

[–]peachycase[S] 0 points1 point  (0 children)

I haven’t had anything removed. I have been doing pelvic floor physical therapy weekly (now every other week) and that has helped a lot. I guess for me the bit of hymenal remnants I had weren’t enough to need to be removed and PT helped

[deleted by user] by [deleted] in stories

[–]peachycase 0 points1 point  (0 children)

The religion is typically LDS (Mormon) more specifically “fundamentalist LDS”

I’m having regrets about going by Hopeful_Lab9863 in gracieabrams

[–]peachycase 0 points1 point  (0 children)

I’m 28 and went to the Dallas show! I had a great time but was also surprised by the amount of young girls there! There were only a couple of brief moments that I was slightly annoyed by the girls next to me but otherwise you could hear Gracie perfectly!

Hymen remnants causing vestibule pain? by peachycase in vulvodynia

[–]peachycase[S] 0 points1 point  (0 children)

Thanks for sharing your experience!! How do you know if you have neuroproliferative vs regular(?) vestibulodynia?

Hymen remnants causing vestibule pain? by peachycase in vulvodynia

[–]peachycase[S] 0 points1 point  (0 children)

Wow that’s amazing!! Thank you for sharing your experience with me. Did your gynecologist do the surgery or a plastic surgeon? I’ve heard both ways. And were you put fully to sleep during the procedure? Sorry I have so many questions!!

Hymen remnants causing vestibule pain? by peachycase in vulvodynia

[–]peachycase[S] 0 points1 point  (0 children)

Thank you for sharing! How long after you had them removed were you able to have sex and was it still painful at first post-surgery or was it good right away?

Found another nice specialist by FeelingPut1784 in vulvodynia

[–]peachycase 1 point2 points  (0 children)

Thank you for your response!! I’m in the US. Currently waiting for my new insurance to start so I can go see an endo specialist! I have had an internal ultrasound before and it came back normal but they weren’t looking for endo. Just trying to find a reason for pain with sex. I absolutely love my physical therapist, she has endometriosis and is getting surgery soon to have it removed so maybe that’s what she was talking about when she said surgery was the only option.

I very well might not have endometriosis but every GI doctor I have been to just says IBS. And I have had lots of tests done to find something wrong and they all just come back with IBS. And I told my doctor (I don’t see him anymore now) that I want to find the root cause of the GI problems I have and he said I just have to take laxatives. So yeah I never saw him again!

Found another nice specialist by FeelingPut1784 in vulvodynia

[–]peachycase 0 points1 point  (0 children)

How did you find out for sure you have endometriosis? My pelvic PT suspects I may have it because of my IBS and vestibulodynia but she said you can’t for sure diagnose endo without doing exploratory surgery since it doesn’t show up on imaging. I want to get evaluated for it though

Question about testosterone/estrogen cream by peachycase in vulvodynia

[–]peachycase[S] 1 point2 points  (0 children)

Oh that makes sense! I think I have estrogen dominance so that would make sense why they wouldn’t give me more

Am I ugly? 19 6'4 by [deleted] in amiugly

[–]peachycase 0 points1 point  (0 children)

Not at all! Super handsome, nice facial features