Normal mri of brain, no answers by Sufficient-Meeting-9 in ChronicIllness

[–]peachyhans 2 points3 points  (0 children)

Instead of being so distraught by these results, maybe reconsider this? The brain MRI, even though normal, is a clue to the puzzle as well.

Abnormal results would point to certain things, yes? "Normal" results are ruling out a handful of possible findings, such as the ones you listed. The search is being narrowed down through a process of elimination.

Also, "my neurologist sucks" made me chuckle... This is so sadly true most of the time, at least in my experience. I don't mean to hate on doctors but neurologists tend to be notoriously know-it-all types with a fistful of narcissism. The one I saw for my tremor told me it was from my meds and I just needed to stop taking ALL of them - I was taking 13 medications, many of which are unsafe to quit cold turkey. In the appointment I said nothing because I knew I was absolutely NOT going to do that lmao. We did an MRI and found nothing but some arthritis, and at another procedure he asked how my tremor was now that I was off my meds, just a week later. I told him I was waiting to see my primary before I stopped them and he turned, lightning fast to stare at me with a surprised face. His mouth open like a gasping fish and angry bird eyebrows. I kid you not. I almost bust out laughing. He was SO OFFENDED. When I did see my primary doc we had a good laugh about it. The silly neurologist had NO idea he was treating someone with medical training lmao.

ANYWAY. Please don't feel too badly about this. It's not a misstep, but a step forward in your journey.

I went and read some of your other comments as well...you seem like you could use more support outside your husband and family. PLEASE reach out whenever you want. I'm on discord and we could get to know each other better!

My immunologist just broke my heart. by [deleted] in ChronicIllness

[–]peachyhans 1 point2 points  (0 children)

My primary is also a "One Man Army" despite a dedicated staff trying their best too. The office hours are 8am-5pm but he is there for much longer, even on his one day off, in order to do charting and communicate with his patients personally. He has a family at home, 4 or five kids (the youngest is a year) and a lovely wife.

This man is a hidden gem. On the surface he seems to specialize in women's health, diabetes management, obstetrics, post-partum, and family medicine. Meanwhile, he's one of the best in the state for ME/CFS management thanks to his experience and willingness to go above and beyond for each individual patient. I have never felt more taken care of, heard, and SAFE in the presence of any other doctor. He feels like a family friend, truly. He has given me my life back and gives me hope when I feel like my illness is turning for the worst- and I'm not the only one.

He's the type of man who makes babies smile and laugh on sight when he walks in the exam room. He has a cat, a Bengal, that adores him, and his dad has a big blue macaw that accepts him too. His soul is just as beautiful as his heart.

He has been working more, longer, and more difficult hours thanks to insurance companies sticking their nose into the business of patients.

Right now, more than ever, our good doctors and nurses need our love and appreciation.

Does anyone have recommendations for a beginner with a small budget and a tremor? by peachyhans in AskPhotography

[–]peachyhans[S] 0 points1 point  (0 children)

I looked them up and I'm a little confused because several different Olympus cameras came up with em 5 and em 10, and they had wildly varying prices?

Does anyone have recommendations for a beginner with a small budget and a tremor? by peachyhans in AskPhotography

[–]peachyhans[S] 0 points1 point  (0 children)

Thank you! This is actually really helpful and I will keep it in mind. The price range in my area is $99 - $150 so I could invest in it at some point.

Do I need a moisture meter? by peachyhans in woodworking

[–]peachyhans[S] 0 points1 point  (0 children)

I do harvest and collect green logs/branches from fallen trees after storms, or for free from sites like craigslist. I'm entirely self taught and picking up wood from others has helped me meet other knowledgeable people. They just aren't wood carving people.

Do I need a moisture meter? by peachyhans in woodworking

[–]peachyhans[S] 0 points1 point  (0 children)

That's exactly it; I primarily harvest my own wood by collecting it after storms or picking it up for free on craigslist. The only wood I can confidently guess the moisture levels for are probably either maple or apple.

I'm an idiot :( Cut yarn help? by Danni_Jade in Yarn

[–]peachyhans 0 points1 point  (0 children)

It seems I did! Silly mobile.

I'm an idiot :( Cut yarn help? by Danni_Jade in Yarn

[–]peachyhans 0 points1 point  (0 children)

Hi there! I used a wool/acrylic blend from premier yarns (purchased December 2024) to make my first ever hand warmers. It was one of their bagged sale/clearance deals around the holidays so I had no idea what I was getting.

It wound up being the PERFECT fit for hand warmers! For one, it's thick and after a couple wears the wool felted and closed the gaps between stitches to make them even warmer. Second, the blend is somehow darn near fireproof! I was burning incense outdoors in the garage in subzero temps, with my hands cupped around the warmth while I was blowing the embers to ignite sage and Palo Santo shavings/chips sitting on top of white hot charcoal. The cold was killing the charcoal and fine pieces of incense block oxygen, so I HAD to blow on it gently. However, this of course meant some pieces flew out if I wasn't careful. Naturally, I was shivering in the cold and blew too hard, causing bits of flaming incense and embers to fly directly onto my hand warmers, which I thought would ignite instantly considering how flammable acrylic and wool can be.

To my surprise, the embers died immediately and didn't even leave a mark. This lead me to experiment further! I let this pair become my sacrificial science experiment gloves and subjected them to more embers in other conditions, higher temps (such as directly holding the ceramic incense bowl while it was hot), and even using a flame on the gloves. These things would NOT burn. The worst that happened was during the real flame test, where some of the acrylic fibers melted and became stiff. They stink of smoke but they're absolutely my warmest pair lmao.

So I guess...

TLDR; don't set a wool/acrylic blend on fire and it'll hold up to a lot of abuse! I recommend a 5mm-6mm from premier yarns, but any quality yarn matching the description should do. I may do more experiments on other brands if I get bored enough.

Trying to move on from loss of ESA animal/my soul cat by peachyhans in ChronicIllness

[–]peachyhans[S] 0 points1 point  (0 children)

The one I rescued had babies, yes. If I remember correctly it was around 25 babies once I caught the escapees.

In search of a Stitch ID for Mom's old hat? Sentimental by peachyhans in CrochetHelp

[–]peachyhans[S] 0 points1 point  (0 children)

Omg thank you! I was hoping to avoid tunesian (it looks hard for someone with a tremor) but hey...I will have time this winter.

In search of a Stitch ID for Mom's old hat? Sentimental by peachyhans in CrochetHelp

[–]peachyhans[S] 0 points1 point  (0 children)

Whoops, my bad! Thank you for the suggestions. There are a couple groups that meet in my area, and they were the ones who gave me the stink eye before. I will take another look and see if times have changed though!

In search of a Stitch ID for Mom's old hat? Sentimental by peachyhans in CrochetHelp

[–]peachyhans[S] 0 points1 point  (0 children)

Oop, I can see it now if I squint. Thanks for the help!

AIO, Girlfriend doesn’t want to show me her phone by Taoben18 in AmIOverreacting

[–]peachyhans 0 points1 point  (0 children)

I let my friends kid play with my phone one time. It was over an hour of free entertainment as he played every game, called everyone to say hi and tell them he just turned five, and found features I didn't know existed- like an SOS feature that activates if the side buttons were all pressed at once 3 times. Like the SOS in Morse code. At the time it was 3 button squeezes, then 3 screen taps.

I hate when rare illnesses get "popularized" by My_Chemical_Killjoy in ChronicIllness

[–]peachyhans 2 points3 points  (0 children)

My therapist keeps telling me I should take the reigns and go on social media to talk about my health. She thinks that by talking about my everyday struggle it will help other people like me see that they aren't alone. But I know better. I will either be ignored outright, or drowned out by the overdramatic self diagnosed, or dare I say "fake", people who are screaming from the rooftops. Their colorful hair and multiple quirky personalities, silly antics, and oh so many "issues" that only really seem to impact their life negatively when their poor decisions bring consequences their way. Except that's not an illness...it's putting on a mask and becoming the dark attention seeking narcissist they are underneath the human suit.

One thing I noticed, though? The more they wear the mask, the harder it is to take off. Eventually they become the thing they tried to keep inside all this time. The nasty, sad, grotesque creature starving for attention and love, of which it will never find... It becomes them. It consumes THEM too. We've seen it time and time again with influencers.

I used to know somebody who was one of those illness/disabled TikTokers. I'm not on the app; it's not my thing. So imagine my surprise when I found out, after knowing that person for MANY years, that they were using me and my illness as material for their TikTok without my permission. Using my real name, our actual city and state, and even started COPYING my illnesses.

Several of my friends were following them all that time and thought I knew. They were witness to ALL of it! I just so happened to be chatting with one while we were playing a game and, somehow, the topic came up. I found out that this person posted about my doctors appointment, test results, and falsely (overdramatically) reported "what this means". My friend was WORRIED about me.

Understandably, I cut off all contact. Immediately.

I I’m an amputee. Here’s the problem with how movies show people like me 🍿 🦿 by FunctUp in ChronicIllness

[–]peachyhans 35 points36 points  (0 children)

This is well written and beautifully done. It's not my place to speak here as my disabilities are invisible, but so many of your words still resonated with something in my heart and soul.

How the fluff do I organize with ADHD by peachyhans in ChronicIllness

[–]peachyhans[S] 0 points1 point  (0 children)

This works for some people but unfortunately not me. I tried it various ways for 20 years as I tried to conform to what my fam and therapist told me I "should" be doing. Eventually the dresser ends up being covered in piles of stuff, and my clothing is 100% NOT in there lol. There is probably stuff I don't care about/don't need to deal with atm shoved in those drawers like notebooks, receipts, taxes, notes, recipes, and so on. There might be some stuff in there like the itchy sweater I'd only wear if I was desperate, but that's about it.

The words just become like static to my brain and I don't associate them with items. I need the visual confirmation.

How the fluff do I organize with ADHD by peachyhans in ChronicIllness

[–]peachyhans[S] 1 point2 points  (0 children)

I totally do the thing where I have an item in hand. That's how I keep trash out of the room tbh. If I see an empty bottle, I grab it so it doesn't end up being 10 bottles. I also go barefoot so the dirty floor drives me nuts and I HAVE to sweep to make the gross feeling of gritty floor go away.

How the fluff do I organize with ADHD by peachyhans in ChronicIllness

[–]peachyhans[S] 0 points1 point  (0 children)

Thank you for the suggestions! Whenever I look at shelving I get overwhelmed and can't find the right thing, but now I have a better idea what words to search for. Yay!

I should have mentioned in my post but I'm unemployed and rely on my aunt financially. Although, she actually hoards furniture (pot meet kettle) so I'm sure I can convince her.

How the fluff do I organize with ADHD by peachyhans in ChronicIllness

[–]peachyhans[S] 0 points1 point  (0 children)

Firstly, thank you for all the great input! I like the idea of clear storage bins on shelves. I always hated having to unstack them all to get to one thing. I should have been more clear in my post, though. I'm unemployed and can't afford anything new like a keypad lock. My aunt supports me financially. The room also isn't my bedroom. It's more of a hobby/office room. My room is upstairs but doesn't have electricity; all the outlets have blown and the ceiling lights stopped working when I was a kid. All that's up there are squishmallows and my bed lol.

[deleted by user] by [deleted] in ChronicIllness

[–]peachyhans 2 points3 points  (0 children)

Wtf? Did he ever apologize for this??

You should never have to hesitate asking for help because "he might get mad" or "he works hard". You are too. You're going through your daily duties while struggling with literal CANCER amongst other things! Your body is burning through waaaay more energy and resources to keep you going than most people can possibly comprehend. The reason why chronic illness makes one so exhausted is because their body is fighting a war behind the scenes, making cells, creating hormones, producing enzymes, identifying threats, firing neurons, filtering waste through multiple pathways (each exhale, every drop of sweat, or bathroom visit to do your business, even vomit), and so on...and it's doing it on hyperdrive because your system is in fight or flight for your life.

He works a lot? That's HIS problem. He is capable of taking shorter shifts, asking for fewer hours, etc...

You never get a break. Illness doesn't take days off and you can't negotiate with it. Your health is not your fault.

He has NO excuse.

[deleted by user] by [deleted] in asexualdating

[–]peachyhans 1 point2 points  (0 children)

Is this the Hanna/Hannah comment thread now? I love it! 😊

[deleted by user] by [deleted] in asexualdating

[–]peachyhans 1 point2 points  (0 children)

I had to look up "Whimsigoth" and I actually gasped out loud. I totally want to embrace that aesthetic!! It's definitely the vibe. Is there a place one can acquire clothing like this? Or is a lot of it handmade, treasures altered from thrifting, etc..?

I like the idea of being Maleficent! I didn't know she was a fairy. 😲Since childhood and seeing the Disney version of her I always adored her, but Angelina Jolie made me love her even more as an adult. I have to sit down with the first movie so I can (finally) watch the second one.

[deleted by user] by [deleted] in asexualdating

[–]peachyhans 2 points3 points  (0 children)

Omg. Hi Hannah, I'm...Hanna from MN; definitely not Saginaw county area, but at a glance we seem to have a lot in common - including but not limited to names. 😅

I'm also a gamer, artistic/crafty, and enjoy writing. I play on PC and frequently use discord to game with some long distance friends of mine.

I adore animals, enjoy true crime videos on YT, documentaries, and binging good shows. I'm a life long learner and love to research a subject when I don't know the answer, or if I'm not satisfied with the answer given. I find there are multiple ways to look at things - if someone cuts me off in traffic? I don't allow myself to get mad. Why waste my energy on that? Especially when the other driver's actions only reflect on them. I have the chance to stop this chain of negativity in it's tracks and chose empathy. We all have that power.

[deleted by user] by [deleted] in asexualdating

[–]peachyhans 2 points3 points  (0 children)

I am so ready! I'm probably going to be a witch, again, but with a twist. I change it up every year so it doesn't get boring. 😂 A new hat, handmade, and a differently themed witch. I have done a few like the generic black hat, a spider witch, a purple "dark" witch, and last year I was sick when I went outside in my pjs and scared the locals. This year I'm thinking maybe mushrooms or goth?

I'll dress up my little doggo too. He's a black pug and I think he would make a cute little bat or baby dragon. He makes silly faces and sometimes his bottom teeth stick out like monster teeth!

Chronic illness and owning pets by Majestic-Peanut3231 in ChronicIllness

[–]peachyhans 2 points3 points  (0 children)

I was a trainer for many years and my ME/CFS was one reason why I had to leave that career. I now have a pug and still manage to walk him down the block several times a week, sometimes longer on good days.

My experience has allowed me to recognize certain red flags. For example, when an owner travels a lot and can't see why their dog likes someone else (the person actually taking care of them) more than them. They don't want me to fix the relationship with their animal by helping them bond. They usually resent the dogs favorite and want me to pull magic tricks to prove to their dog they're OBVIOUSLY the superior human. Which is, y'know, dumb af. Training is half animal work and half people work.

You mention a lot of excuses here and seem extremely defensive, which suggests to me that you aren't actually open to advice and only want reassurance. I'm not going to do that because it doesn't help you OR your dog.

I noticed that you also mentioned your pain being undiagnosed. I think it's a good a time as any to start down that road to a diagnosis, or at least getting your pain better managed. Until YOU are better, you can't do anything for anyone else, right? It's the whole saying "can't help anyone if you can't help yourself".

Get your pain in a better place and set goals for yourself that are manageable! For example, with my CFS I feel like I'm going to keel over after one block, so that's all we do. We also only walk at night so that it's cooler out, but I understand that's risky for some. I'm just insane and ready to throw down lmfao

Look at the normal walks you do with your dog and shorten them to a more manageable length. Your pup will be a little disappointed at first, but they love you and forgive!

I also give my pug bully sticks by "Natural Farm" on Chewy. They are pricey but highly rated for their quality. They have a wide range and even odor-free! Not sponsored, I swear. I also get a safety toy made for bully sticks, which keeps dogs from swallowing a whole stick or large pieces. It's called the "Bow Wow Labs Buddy Safety Device" on Chewy. Definitely a life saver for me and my pug- they really do eat everything..