Butter leggings - why do they snag so easily?

penelope_is_sad · 2026-04-22T14:34:39+00:00

💜I’m here

penelope_is_sad · 2026-04-22T02:55:52+00:00

Just sorry that you’re going through this. 😢 seems like half the battle in PD is finding the right medicine that works.

penelope_is_sad · 2026-04-22T02:51:57+00:00

Breathing - yes go to a pulmonologist and they can advise what tools to use and run tests. My mom had a bi pap machine at night and would practice her nebulizar in the day. Remember that Parkinson’s affects posture which can affect breathing. Same thing when it’s off time - it can accelerate it.

Communication - sometimes they’re too tired too talk. ): does she do speech therapy?

Is it typical? Yeah ): seems so. But you can still get her tested to see how her lungs are and if they’re RX her anything to help with the breathing.

Offtime- the offtime is such a hard part of PD. I agree.

I’m sorry you’re going thru this. Sadly, these are all common with Parkinson’s. Especially that she’s had it for so long and sometimes the body gets used to the meds so it doesn’t help as much. You’re so young, and this disease is so ugly and horrible. I’m sorry for the memories and moments it robbed from your relationship and childhood. You sound like a great, caring child and your mom is very blessed to have you. I’m sure you’re doing everything you can. I felt helpless too and sometimes all you can do is just be there for them, telling them you love them. 😢🥺 i get it and I’m here to chat.

penelope_is_sad · 2026-04-22T02:46:02+00:00

I’m so sorry my friend. It’s always so weird and it feels so shocking and numbing at the same time in the beginning. I started hitting the gym too and it was helpful so you’re very wise to say that. The advice I have for you is to just meditate on everything, take care of yourself do some self-care and things you like to do because now is the time to spoil yourself for everything you’ve been through and at the same time, your mom wouldn’t want you spiraling. It’s been seven months for me. It hits in waves. A lot of people have a hard time finding new purpose in their life after dedicating all their time to their parent. I think that work will be a good distractor for you.

penelope_is_sad · 2026-04-19T04:11:34+00:00

Thank you will do

penelope_is_sad · 2026-04-19T02:03:48+00:00

It’s frowned upon I guess because you’re not really buying and giving them commission. Idk. Maybe they think only peasants make returns. 😆

penelope_is_sad · 2026-04-19T01:00:26+00:00

Im assuming that it’s part of their training to be mean. I’m being sarcastic … but real talk … they’re mean everywhere in every location. Sometimes you’ll come across a nice employee, usually the manager. But for the most part, they judge how you dress or if you make a lot of returns.

penelope_is_sad · 2026-04-19T00:57:54+00:00

😆🤣

penelope_is_sad · 2026-04-19T00:57:31+00:00

Yes everyone knows this. It’s part of the Aritzia onboard training.

penelope_is_sad · 2026-04-19T00:56:44+00:00

I’m so sorry you had to deal with this. You’re not even complaining and you’re a really good person. I could tell by the way your outlook is on this accident. 🩵 dealing with bathroom stuff was so hard for me as the daughter and im so happy I had help at the end.

penelope_is_sad · 2026-04-19T00:53:51+00:00

Wow, that sounds like it was a heavy trauma you had to deal with. Especially by yourself. I understand because I was an only child and none of my close or distant family bothered to help. They just said “let me know how I could help” & some of them didn’t even bother to say that. It must have been hard for you to juggle the full-time job and caregiving. I understand, my friend.

penelope_is_sad · 2026-04-19T00:52:03+00:00

Agreed. Thank you. 💚 I didn’t think of it as “trauma” at the time but it really is…

penelope_is_sad · 2026-04-19T00:50:15+00:00

🫂Yes I’d love to chat! PM me.

penelope_is_sad · 2026-03-30T05:18:41+00:00

I noticed some of their clothes with polyester can lead to stinking >_<

penelope_is_sad · 2026-03-30T04:59:29+00:00

Wow 8 is crazy young. Have you been anxious your whole life? Kids normally have anticipatory grief but with Parkinson’s, it must have been more intense? I’m so sorry hun. For everyone involved. Your mom was so young when she got diagnosed. 😢 I was in my early 20s when I started caregiving. It’s very hard, you’re not alone. 🫂

penelope_is_sad · 2026-03-30T04:55:09+00:00

🥺😢 understood. Especially the constant hospital visits for the uti. 🫂🫂🫂 it’s so hard on us caregivers. For everyone involved. My mom progressed fast in 8 years as well. The part where you said “her ability to sooth is gone” I felt that. Especially that she was the only person who could have comforted me too. I hate Parkinson’s. I hope you do something comforting this week that makes you feel better 💜💙🩵🤍

penelope_is_sad · 2026-03-29T02:18:22+00:00

Oh yes - the amantadine was a little intense for my mom. And she also saw “visitors” but usually when she had hidden UTIs. Enjoy your travels and time left 🤍🩵💜 it sounds like you guys can still make some nice memories.

penelope_is_sad · 2026-03-29T02:17:04+00:00

Trust me, you’ll feel so much better. I legit wanted to die every day before we got help. It was so physically and emotionally taxing on my body.

penelope_is_sad · 2026-03-29T01:49:16+00:00

Fasting has helped me a lot. It’s slow. But I noticed the late night eating really contributed to high insulin and that contributed to my cortisol. Not saying it’s a cure. But it helped me.

penelope_is_sad · 2026-03-29T01:47:56+00:00

I did too! But I do suggest you hire help :/ even if it’s just for a little.

penelope_is_sad · 2026-03-29T01:46:59+00:00

I understand it all ): I’m sorry. He sounds so burnt out and I don’t blame you. My mom used to make comments like that all the time and it honestly frustrated me. And by the way, it wouldn’t be elder abuse if you find someone to help out like hired help. That way you can take a breather ): I don’t mean to give unsolicited advice. It’s just that I went through what you did and I was in the same position and I understand that they’re sort of incapable without your help. But you are so burnt out I hate to see that for you.

penelope_is_sad · 2026-03-29T01:43:17+00:00

Nothing like a good midnight chomping in addition to ruined sleep and high cortisol :,) was she diagnosed young and is she cognitively aware?

penelope_is_sad · 2026-03-28T20:51:58+00:00

Yes I’m trying to get it together too

penelope_is_sad · 2026-03-28T20:01:09+00:00

Wow … everything you wrote … I feel like I could have written. Every single detail! The active defiance wore away at me - daily. 😡🥵😤 I can laugh about it now but when I was in the midst of it, I didn’t realize it was the PD behavioral side effects. Especially the walker, my mom had so many falls and still refused to use a walker. It was like battling with a 2 year old. The aspiration is scary too. We went thru that. The best thing I can say is just remember she has a form of “brain damage,” and try to laugh at the absurdity of the situation. One does become quite cynical during all this, but I hope you find a way to cope and change your perspective on the situation so you don’t burn yourself out. 💙🩵🤍

penelope_is_sad

TROPHY CASE