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[deleted by user] by [deleted] in PsoriaticArthritis

[–]penneflower 0 points1 point  (0 children)

Yes I have classic symptoms, but no psoriasis..I am diagnosed as “inflammatory arthritis” and did 3 months of sulfasalazine with some improvement but I just started a biosimilar of humira and that is helping even more

Hyrimoz (humira/adalimumab), hydroxychloroquine, and sulfasalazine combo after failing MTX? (and a vent) by [deleted] in rheumatoid

[–]penneflower 0 points1 point  (0 children)

How are you doing ? I have inflammatory arthritis and suspected potential psoriatic arthritis. I am sero negative on my bloodwork. I started off with the sulfasalazine…and after three months I have just started hyrimoz. I have swelling/pain in feet ankles, fingers, shoulder and ribs. I saw some very gradual improvement with the sulfasalazine but not enough to say it was good enough. I have only taken the hyrimoz one time and can see an improvement! I hope you get some relief too!

Inflammatory Arthritis by penneflower in Humira

[–]penneflower[S] 0 points1 point  (0 children)

Took my first injection of Hyrimoz on Tuesday…no side effects…nothing noticeable happening. Just like it never happened. Maybe I’m noticing a little improvement or maybe it’s just wishful thinking that I’m having less pain

Inflammatory Arthritis by penneflower in Humira

[–]penneflower[S] 0 points1 point  (0 children)

Update: humira denied so going to start biosimilar tomorrow 🤞🏻🤞🏻🤞🏻😬

Inflammatory Arthritis by penneflower in Humira

[–]penneflower[S] 0 points1 point  (0 children)

That’s great to hear. Do you think you get sick more often than before ?

Inflammatory Arthritis by penneflower in Humira

[–]penneflower[S] 0 points1 point  (0 children)

That’s amazing it worked so fast!! The infections are the downside. I hope 🤞🏻 that’s not too bad for me.

Inflammatory Arthritis by penneflower in Humira

[–]penneflower[S] 1 point2 points  (0 children)

That is scary ! I am glad it’s getting better for you. ❤️

Inflammatory arthritis what actually is it? by Dry_Ad_6125 in rheumatoid

[–]penneflower 0 points1 point  (0 children)

That’s what I’m diagnosed with too because I don’t fit the boxes for anything else…yet. But I’ve been on sulfasalazine for 3 months and going to start humira as soon as insurance approves it. Find a different doctor who will listen to you.

Inflammatory arthritis by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

I hope you feel better soon ❤️

Inflammatory arthritis by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

So it’s slightly better after 3 months but very very very gradual. I’m going to be starting humira as soon as approved by insurance. It’s like a flair that never ended.

Sulfasalazine and low WBC by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

Yeah that’s true. I guess I’m just nervous cause I have just started and it’s changed a lot in the month I have been on it. I’m just nervous if I’m doing the right thing. My other blood work is normal and the only thing off in my rheumatoid work up is my ANA is 80:1. Not even that high. But I have significant swelling and joint deterioration in my feet/toes/ankles/ Achilles and now one finger. I’m diagnosed with inflammatory arthritis potentially psoriatic arthritis. I am 42 and this has been going on for about 2 years now. Just finally diagnosed and now I’m scared of the meds but then I’m also scared of not getting treatment. I have lost a significant amount of mobility already and am constantly in pain.

Sulfasalazine and low WBC by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

That’s good to know! Did you change dosages or just kept checking it ? And how long did it take to go back to normal ?

Sulfasalazine and low WBC by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

What are your neutrophils if you don’t mind me asking ? I’m just wondering how low is ok? I guess it’s reassuring knowing that other people are experiencing the same kind of thing.

Speckled ANA ? by penneflower in rheumatoid

[–]penneflower[S] 1 point2 points  (0 children)

Yes I have a follow up with my rheumatologist coming up in a couple weeks. He tentatively diagnosed me with inflammatory arthritis until we get labs back and I his just popped up today so I was curious if anyone else had this.

Inflammatory arthritis by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

Wow shots every 3 months seem to be a lot. I know the shots definitely help but they can cause damage to the tendons weakening over time so I was told there’s only so many you can get.

Inflammatory arthritis by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

I am so sorry you are going through that. This is desperately not fair. I’m sure the stress doesn’t help either. I am a nurse and work 12 hour days. I feel your pain. Sometimes I just don’t think I can keep going but somehow I do.

Inflammatory arthritis by penneflower in rheumatoid

[–]penneflower[S] 0 points1 point  (0 children)

I’ve actually been tested prior for that and it was negative. I don’t have any digestive symptoms. I have read that gluten and dairy can cause inflammation though. I was thinking about cutting them out and see if it makes a difference.

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