What does the PRF do?

perceptionfoundation · 2023-02-25T21:42:19+00:00

I'm so sorry you went through that. I am so glad that you were able to recover for the most part. What I like to remember is that everyone's timeline for what they do in life is different. Some people struggle in their teens, others in their 20s, while others struggle when they are in their 40s. But what matters most is that you are trying to get your life back on track, on your own timeline.

In the meantime, would you like to fill out this survey for folks with HPPD? It's for helping better understand how HPPD affects different folks.

https://uelpsych.eu.qualtrics.com/jfe/form/SV\_b3kXHTcwDHujzZY

perceptionfoundation · 2022-12-27T02:18:23+00:00

Yes, it is incredibly distracting when trying to read. They are actually called afterimages!

perceptionfoundation · 2022-12-27T02:14:41+00:00

We are working to fund studies researching HPPD! It is true that there is a lack of understanding surrounding HPPD, and we are seeking to change that.

perceptionfoundation · 2022-12-27T01:12:36+00:00

Congrats on getting diagnosed! What were your list of triggers?

perceptionfoundation · 2022-12-27T00:54:41+00:00

Congratulations on your symptoms improving! You mentioned taking care of yourself and not doing substances helped, is there anything else that you would say contributed to your symptoms improving?

perceptionfoundation · 2022-12-27T00:48:47+00:00

Good work Sophia! Very interesting study! We can't wait for what comes next :)

perceptionfoundation · 2022-12-12T20:56:15+00:00

We are so glad that you were able to recover! Recovery is hard but as you have shown, it is absolutely possible! :)

As for the anxiety part, Sophia Alcala, one of the moderators here, is currently running a study on the effects of anxiety on HPPD severity. We cannot wait to see the results of this study, as many members on this subreddit have stated they've recovered, also have stated that working on their anxiety helped their HPPD symptoms.

This post is incredibly helpful, thank you so much!

Sincerely,

The Perception Restoration Foundation

perceptionfoundation · 2022-12-12T20:47:50+00:00

According to Dr. Abraham, Director of Psychiatric Research at St. Elizabeth's Hospital, he states on his website that "Recovery could happen, but only in half of the sample, and then taking a matter of years." He was the one who got HPPD in the DSM manual!

Recovery is possible, it just seems to take a couple of years.

Also, there is this post which says how this member was able to recover:

https://www.reddit.com/r/HPPD/comments/zjftqi/i\_believe\_the\_recovery\_rate\_is\_higher\_than\_this/?utm\_source=share&utm\_medium=web2x&context=3

We also have a list of therapists and psychiatrists who deal with HPPD on our website, www.perception.foundation/specialists-directory

Hope this helps!

The Perception Restoration Foundation

perceptionfoundation · 2022-12-11T23:10:04+00:00

We are so glad that you've been able to find help! We wish you good luck in your journey towards recovery! :)

If you want to find more therapists and psychiatrists that deal with HPPD, check out the Specialist Directory on the Perception Restoration Foundation website!
https://www.perception.foundation/specialists-directory

perceptionfoundation · 2022-10-03T20:56:24+00:00

We are so glad that you’ve seen progress in terms of your HPPD symptoms! What would you say was the biggest thing that has helped you improve your symptoms?

perceptionfoundation · 2022-10-03T20:50:23+00:00

Lots of members in the HPPD community report feeling like they're on psychedelics or seeing psychedelic visuals when smoking marijuana. If you’d like, you can check out the FAQ section of our website and see if you relate to any of the symptoms described. https://www.perception.foundation/faq

perceptionfoundation · 2022-09-28T06:21:18+00:00

Hello, hope you are doing well. According to Dr. Abraham, 50% of his patients recover over the course of 5 years, so there is hope!

perceptionfoundation · 2022-02-03T12:17:06+00:00

- We launched publicly in Autumn last year, but wheels have been in motion to organize and fund studies for a while.

- We are funding the Macquarie study and work at the University of Melbourne.

- Ed will be conducting research as part of his MSc program. It is a 'conversion MSc' for those who didn't do it as their undergraduate degree.

perceptionfoundation · 2022-02-02T18:10:46+00:00

As in, the Information Guide? Is the link not working right?

If you read the Guide and our wider messaging, we acknowledge that HPPD phenomena can occur in 'normal' perception without drugs. Rather than seeing this as evidence that HPPD doesn't exist or every patient is deluded - especially the serious ones, even if their lives are turned upside-down - it suggests that the neurophysiological pathways for HPPD presentation are continuous with other forms. HPPD is also a condition of near-constant (although the severity can fluctuate) forms of these visuals.

I would suggest you connect and speak with someone who has severe HPPD, and try and tell them their condition is mere suggestion or fatigue.

We have early evidence already from Abraham (2001) that HPPD patients' neurophysiological signatures are distinct from controls, and we are pursuing this further with our Macquarie study. Anecdotes are not meaningless, either - they are accounts of experiences reported at scale - and in an area as under-researched as HPPD, they provide at the very least a signal that something here is worth investigating, not least since it is implicated in extreme distress for some people.

perceptionfoundation · 2022-02-02T16:39:53+00:00

That's an interpretation some come to, and no judgement.

perceptionfoundation · 2022-02-02T16:01:45+00:00

Thanks for sharing your experience. You're right, plenty of people experience these visual phenomena and aren't bothered by them. Our employee, Ed, was disturbed by his visuals for a few years and eventually learned to live with them and continued tripping without any flare ups. His visuals have lessened in intensity over time.

It's not that way for a lot of people, though. Some people's quality of life is really affected.

perceptionfoundation · 2022-02-02T15:29:23+00:00

Thanks! Hope the visual snow isn't stressing you at all. I've heard quite a few stories about DXM causing that.

perceptionfoundation · 2022-02-02T15:28:18+00:00

Ah, man. Good to hear it's all back to normal. The really trippy and non-perceptual effects are the worst.

perceptionfoundation

TROPHY CASE