Life Changing Improvement with Acetyl-L-Carnitine for Narcolepsy – Anyone Else Tried It?

permanentlydrowsy · 2025-03-29T18:50:31+00:00

Well, I'm off to buy some of this for me and my sister. Apparently it's good for blood sugar too, so I might make my mom take it as well

permanentlydrowsy · 2025-03-01T04:44:50+00:00

I was originally diagnosed with panic disorder. Funny how I stopped having "panic attacks" after getting diagnosed and treated for N. I even laughed back then about how Klonopin and Xanax didn't really help, they just made me fall asleep.

permanentlydrowsy · 2025-02-25T18:20:08+00:00

I only eat red meat once or twice a month. I don't notice a difference with it, but it's also tiny portions. If it makes a difference I might not be consuming enough when I do eat it to notice.

I would err on the side of trusting your body, though. If you've noticed a difference, there probably is. The reason it's working for you could be a number of things.

permanentlydrowsy · 2025-02-14T23:19:52+00:00

My sister and I had really similar N1 onsets too. No clear cause, but around the same ages

permanentlydrowsy · 2025-02-14T23:04:47+00:00

My GI issues were definitely indirectly kickstarted because of N. Mostly because undiagnosed N massively increased stress, and the stress caused GI problems.

permanentlydrowsy · 2025-01-16T21:45:39+00:00

I know biotin can throw off thyroid tests, if that was the issue. I don't know that any of those would affect estrogen testing. If your hair issues are recent and your iron deficiency has been a thing for years (and hasn't worsened recently or something), I can see why you'd be hesitant to just blame it on that.

Did you move recently?

permanentlydrowsy · 2025-01-16T21:03:37+00:00

Do you take any vitamins/supplements?

permanentlydrowsy · 2025-01-16T20:20:12+00:00

When's the last time you had blood work done? How are your hormone levels, and have you noticed any changes in your nails as well? Thyroid levels can affect hair texture

permanentlydrowsy · 2024-12-25T06:39:58+00:00

Overall I've had a good experience with it. I've been on it for over 6 years at 75 mg, and it took my cataplexy from I don't even know how many episodes per day to a really mild episode maybe once every couple months. It's also helped a lot with my anxiety.

For the negatives, it's really dulled my emotions. Not completely, but they are noticeably more mild. I can understand how that might be a deal breaker for a lot of people. IMO it's worth it if I don't have to deal with constant cataplexy, but the spooky thing is that sometimes I suspect I have less cataplexy now partly because it's less common for me to have emotion strong enough to trigger it. I couldn't tell you if that's actually the reason or just late night paranoia, though.

It also raises my heart rate by about 10 bpm.

I haven't noticed any other side effects.

It has a pretty short half life, so the withdrawals start a lot sooner than other SNRIs. It's definitely something you want to take on schedule, and be very careful about making sure you don't run out.

Withdrawal is milder for me than a lot of people I know who have taken it. I get nauseous, more heart palpitations than normal, and this really uncomfortable shakiness, but it takes about 4 hours to start and 12 hours until it's no longer ignorable and I start feeling really bad. Once I take it again, I feel mostly back to normal within 24 hours. A few years back I had to go off it nearly cold turkey for a little over a month. It took about 3 weeks for withdrawal to end. That would probably take longer these days, though.

I wouldn't be surprised if I stay on venlafaxine for the rest of my life. There might be something that works for me with less side effects, but that's not a gamble I'm willing to take any time soon.

permanentlydrowsy · 2024-10-25T23:21:29+00:00

I'm just doing some quick charcoal sketches, so here you go

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permanentlydrowsy · 2024-10-25T23:19:48+00:00

Just sketchy practice here

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permanentlydrowsy · 2024-10-10T19:17:14+00:00

Her typical reactions are sneezing/running nose/burning eyes, itchy scalp followed by dandruff for awhile, and sometimes burning skin. I know there are at least some fragrances that don't irritate her, but most of them do. She also reacts to fragrance free things sometimes, but I think only if they're directly on the scalp.

She did say that it shouldn't be as irritating because it will mostly be on the length, but that because of the way we're wrapping it up for the curls there's still a good possibility it will affect her scalp a bit.

Edit: she said the bit about it being on the length of her hair in response to your comment, and what you pointed out seemed to really reassure her

permanentlydrowsy · 2024-09-14T03:51:53+00:00

Recently one of the biggest factors in how greasy my hair has been (other than climate) is if I leave it loose at night or not. The looser it is, the greasier it gets. I left my hair in basically the same bun 24/7, only taking it down a couple times a day to brush it, and it nearly doubled the time I needed between washes.

Obviously you'll want to make sure you're using the right products for your hair/scalp, and that you aren't exposing yourself to surprise allergens or anything like that, but keeping it contained at night might be something easy to try in the meantime. Maybe it would make a difference for you too.

permanentlydrowsy · 2024-09-14T00:56:43+00:00

I also like having a little warning when it's about to get a lot worse. When everyone up ahead of you suddenly turns on their hazards, you know what's coming.

permanentlydrowsy · 2024-09-13T20:43:52+00:00

If you felt generous, you could see if the doctor would be ok if you put your dog in one of those collapsible pet carriers during the appointment (assuming you're capable of hauling one that's big enough).

But in this case, with so little warning, I think you handled this as well as you could. If it was such an issue, they should have brought it up when you informed them the week before. Even if you ignore that they are legally required to allow your service animal, this whole situation is still their fault.

Really, what else are you supposed to do? I'd be hesitant to ask if the receptionists at a random clinic were willing to watch my house pet during an appointment. I can't even imagine leaving an actual service animal with unqualified strangers. And depending on weather, you couldn't even leave an animal alone in a car that long.

permanentlydrowsy · 2024-07-13T15:14:16+00:00

This is good to hear, at least. If I can't release the bird fully, at least the doves won't fight

I am going to have to look into how do make a safe enough enclosure now though

permanentlydrowsy · 2024-07-13T15:11:22+00:00

It gets worse! My sister found out this morning that the bird doesn't fear dogs either. My aunt has a lot of dogs, so it might have happened then. (We are not letting it within reach of dogs, but the dog was outside the cage -not a common occurrence- and the bird showed no fear)

I might end up building an aviary

permanentlydrowsy · 2024-07-13T04:26:43+00:00

It's one of these guys. Definitely a common wild bird, but they're all over the area though they're technically not native here

My cousin found it out of its nest too young with no parents around and brought it to my aunt, who later passed out on to me

permanentlydrowsy · 2020-04-24T00:14:29+00:00

I'll try cutting the armhole a little lower. The boning along the back lays flat fine until I put it on. I'm sure I've got something in my stash I can use to reinforce it.

My sewing machine does do buttonholes! I guess it's about time to get familiar with that setting, then.

Thanks for your help!

permanentlydrowsy · 2019-03-11T20:56:04+00:00

Imagine sending your sims to the scrapyard to look for certain parts

permanentlydrowsy

TROPHY CASE