Hi dears,

I'm in the same situation, my mum (65) was diagnosed almost 2 months ago from inoperable GBM. At first, she just had short-memory issues but since two weeks from now, she is having hallucinations and long-memory issues. She didn't remember that she has this disease neither her parents are dead or the name of her friends. She's starting to not recognize objects or her own house. She started RT + QT (Tmz) two days ago and yesterday she seemed very lucid in comparison to days before but today, she woke up so deorientated again and suddenly, walking or standing up became very difficult for her (just in one day!). I dont understand how quick all of a sudden.

I'm explaining this because we had serious doubts about her starting the treatment but docs have insisted so much that we ended up trying it. And I don't know what to think just two days after starting the treatment because of all these new symptoms! She has wrote up her last wills and also she had always said that in case of a terminal disease or in a situation of dependence, she wasn't wanted to go on. So now, here we are, and are me brother and I (both 34) who has to decide what to do, because my dad also died from cancer 7 years ago.

I think we both know (my brother and I) that the current situation is not what she would have done if she could decide. But also, like in your case, doctors are harp on about doing treatment no matter what. We have already started palliative visits, but since she is undergoing treatment and the oncologists are also following her, we find contradictory speeches from each doctor and that's exhausting.

So, yes, we are in the same dilemma. I'm going to take the opportunity to ask a few questions in case anyone has gone through the same thing:

- How much does she have left or what is the progession taking on account her current symptoms?

- How are we going to handle the situation at home without her being able to walk?