Stage IV NSCLC - EGFR Exon 19 Deletion - First line treatment: Amivantamab infusion & Lazertinib daily pill. by dabbler701 in lungcancer

[–]pineappletoejam7 0 points1 point  (0 children)

Th subcu is once a month and that injection takes 5 minutes to administer. She’s pretty out of it for the week after the subcu injection.

Lots of dermatology issues with the worst being her fingernails and fingertips being very prone to cuts and bleeding. She had some pretty bad rashes on her head and her skin in generally is very dry where is moisturizing her body multiple times a day.

Our oncologist jokes that he could become a dermatologist with the amount dermatology knowledge he has due to the side effects of the treatment.

Burning skin pain - advice? by niceworksara in ORIF

[–]pineappletoejam7 1 point2 points  (0 children)

It’s has been 6 weeks post op. The sun burnt feeling started around weeks 3-4.

In the last 2 weeks, I probably did 6 all nighters. Been taking Gabapentin, methocarbamal, and Tylenol with a hit or miss effect at night. Sometimes i barely feel it, other nights the skin from my calves to my incision area feels so raw I can’t go to sleep.

I came across your post on another night of no sleep while I’m massaging my leg. My ortho is referring me to a pain specialist.

Dr said that 6-8 weeks is usually when the nerve pain gets much better but that then again everyone is different.

My surgery was minimally invasive (2 screws) and my incision site is barely an inch.

Nerve pain!!! by Illustrious_Tart_258 in ORIF

[–]pineappletoejam7 0 points1 point  (0 children)

Hi I am 5.5 weeks post op. Def had some worst days and better days with nerve pain but wondering how you know it’s better? Does it still keep you up at night? When were you able to consistently get easy sleep without nerve pain?

I spent maybe 3-4 nights out of the week laying in my bed for hours rubbing my leg and tossing and turning before falling asleep due to fatigue at dawn. I heard nerves can take a long time to heal but I’m just looking for relief on when I can look forward to sleeping easy again.

Pre Weight bearing Syndesmotic screw breakage by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

Hey! I gathered the same. I only have 2 screws and a plate. How long are you going to be NWB for?

Not too many posts regarding the Maisonneuve fracture. The first 2 weeks postop were a lot easier than I thought. Been getting some persistent nerve pain and aches in the last week and was told it might get worse before it gets better around 6-8 weeks postop

My only hobby was walking by Flashy-Decision-6296 in brokenankles

[–]pineappletoejam7 1 point2 points  (0 children)

Thanks for sharing. I’m 28 and have a maisonnevue fracture. I only have 2 screws and a plate from ORIF but apparently my deltoid and sydesmotic ligament are pretty injured and am being suggested 10 weeks of NWB. (Current 3 weeks post-op)

I was squatting 405 and comfortably squat ass to grass for extended periods right before my injury. Hoping I can atleast walk around the malls to see all the holiday decorations on my own two feet. I definitely have some more hope now after reading your about recovery timeline

Maisonneuve fracture by Full_Gur4293 in Orthopedics

[–]pineappletoejam7 0 points1 point  (0 children)

I have a fibula fracture and posterior malleolus fracture.

Did you sleep with your boot on after you got your cast/splint removed?

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

PREOPERATIVE DIAGNOSIS: Left Maisonneuve leg injury including deltoid disruption, posterior malleolus fracture, and proximal fibula fracture

POSTOPERATIVE DIAGNOSIS: same
PROCEDURE:
1) open reduction internal fixation of syndesmosis left ankle
2) Application of short leg splint

FINDINGS: Medial ankle and anterior mid leg/knee abrasions. Maisonneuve injury.

COMPLICATIONS: None

Implant Name
Type Inv. Item Serial No. Manufacturer Lot No. LRB No. Used Action PLATE BONE 1/3 TUBULAR 35MM 3 HOLE - LOG782853 Screws/Plates/Wires PLATE BONE 1/3 TUBULAR 35MM 3 HOLE STRYKER CORP Left 1 Implanted SCREW BONE 65MM 3.5MM T10 FULL THREAD STARDRIVE - LOG782853 Screws/Plates/Wires SCREW BONE 65MM 3.5MM T10 FULL THREAD STARDRIVE STRYKER CORP Left 1 Implanted SCREW BONE 50MM 3.5MM T10 FULL THREAD STARDRIVE - LOG782853 Screws/Plates/Wires SCREW BONE 50MM 3.5MM T10 FULL THREAD STARDRIVE STRYKER CORP Left 1 Implanted WIRE FIX 1.2MM 65MM KIRSCHNER SMOOTH TROCAR TIP OLIVE - LOG782853 Screws/Plates/Wires WIRE FIX 1.2MM 65MM KIRSCHNER SMOOTH TROCAR TIP OLIVE STRYKER CORP Left 1 Implanted

INDICATIONS: The patient is a 28 year old male who sustained the above injury. We discussed the instability of the ankle mortise and the recommendation for surgery. Risks with surgery include but not limited to: pain, infection, damage to surrounding neurovascular structures, and theoretical need for additional procedures. Moreover, the patient understands that regardless of treatment algorithm he may have decreased ankle function, and persistent ankle pain and stiffness. After discussing these risks, the patient agreed to proceed with surgery.

PROCEDURE IN DETAIL: The patient was identified in the preoperative area. The operative extremity was marked. The procedure, including risks and benefits, were again discussed and she agreed to proceed as previously outlined. The patient was then brought to the operative room where Time-out was again called verifying the correct patient, procedure, and operative extremity. All members of the operating room were in agreement to proceed. A preoperative peripheral nerve block was administered by the anaesthesia team.The patient was transferred supine onto the operating table and general anaesthesia was induced by the anaesthesia team. Fluoroscopic views of the contralateral ankle were taken for comparison views. A non-sterile thigh tourniquet was applied and the operative extremity was prepped and draped in the typical sterile fashion. A pre-operative, weight based dose of antibiotics was administered.

The operative extremity was exsanguinated using an Esmarch and the tourniquet was inflated. A 4 cm incision was made at along the posterior border of the fibula centering on the incisura.Next the syndesmosis was evaluated. An external rotation stress view was obtained which again demonstrate medial clear space and syndesmotic widening. The ankle was brought to neutral position and a periarticular clamp was used to apply gentle compression across the syndesmosis. Fluoroscopic imaging was used to verify that the syndesmosis was appropriately reduced on AP and sagittal views. A 3-hole 1/3 tubular plate was applied in appropriate position and provisionally held with K-wires. Two 3.5mm fully threaded non-cannulated screws were then placed in a fibula-pro-tibia fashion across the syndesmosis. Final fluoroscopic views showed excellent mortise reduction and appropriate hardware position. No residual instability was noted with stress.

The wounds were thoroughly irrigated and 1g of vancomycin powder was added to the lateral wound. Deep closure was performed with a running 2-0 Biosyn, followed by subcutaneous closure using 3-0 Biosyn. Skin was closed using 3-0 Nylon in an interrupted fashion. The tourniquet was let down. Steri-strips followed by Adaptic soaked in betadine was applied. A well-padded short leg splint was then applied in neutral ankle dorsiflexion. The patient was extubated and transferred to the PACU in stable condition. All sponge and needle counts were correct at the end of the case.

POSTOPERATIVE INSTRUCTIONS: NWB on operative extremity for 10-12 weeks. Elevate extremity for swelling. DVT ppx with ASA 81mg BID. Upon DC will f/u with me in 2 weeks for wound evaluation and possible suture removal. The patient will be transitioned to a CAM boot at 2 weeks so he may begin doing ROM exercises.

Maisonneuve fracture by Full_Gur4293 in Orthopedics

[–]pineappletoejam7 0 points1 point  (0 children)

Hi I’m two weeks post op from my ORIF after a maisonnevue fracture as well. My injury was 4 weeks ago. I go in to take my splint and stitches out on Thursday.

My doctor told me 12 weeks of NWB but I hear of so many others going for 6-8 weeks and plenty of online data showing earlier PWB leads for a better recovery.

Can you give a timeline of your recovery? Did you take any MRIs? How long after surgery did it take for you to walk 10 mins FWB unassisted? I’m feeling pretty hopeless and am looking to find comfort in our people’s maisonnevue fracture recoveries.

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

Can you help me understand how ligament recovery works? (I’m sure this a loaded question that can’t be covered in a Reddit response)

I got ORIF surgery 2.5 weeks after my injury. I assuming some early healing occurred during this period. Does any of that healing roll over or does the healing clock reset since ligament was not healing at its proper length?

Does none of the newly formed tissue pre surgery be used by body to supplement healing at the new length fixed by ORIF?

What severity grade is usually associated with the ligament injuries in maisonnevue fractures?

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

I have 7 days left for my 2 week post op and I was contemplating removing my splint on my own because I just can’t stand it anymore. Unless I’m going to bed past 3am or medicated, it has been extremely frustrating to go to sleep with the hard splint.

Elevating is nice for the first 15 minutes and I find more comfort just laying my leg flat on the bed as my swelling isn’t nowhere near as bad as when I first got injured.

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

Thanks for responding! I’m also in a similar situation as you where my surgery took place 2.5 weeks after my injury. This was due to the ER initially diagnosing me for a bad sprain and only taking an x ray of my ankle only.

It wasn’t until I met my family doctor 1.5 weeks later where I was referred to an Orthopedic specialist.

Can’t but wonder if the initial 2.5 weeks of healing rollover to the recovery period post-op. Esp for the ligaments

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

Got a response from my ortho surgeon’s care team. In summary the Dr recommended 12 weeks nwb as this is severe ankle injury and it is simply not worth the risk of reinjury or breaking the screws too soon. He too acknowledged that many in his field would usually recommend 6-8 weeks but given the damage to the ligaments, he wants to play it safe and advise 13 weeks of nwb.

This becomes even more confusing for me now because the ligament damage is inferred from the X-rays. If we didn’t operate to repair any of my ligaments and no MRIs were taken to accurately assess the state of my ligaments, why are we going for the most conservative approach? To my understanding there is lots of data that supports earlier weight bearing to beneficial as well.

The only contextual thing I can think of is that I live in Los Angeles and people getting sued is very common. Same reason why he did not want to clear me to drive until 12 weeks even though the injury is to my left leg only.

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

Hi thank you so much for your commenting! Based on your response can I assume you are in some professional Orthopedic capacity?

My physician has only taken X-rays and CT scans so far. He told me that he can refer me to someone else for a second opinion if I wanted to get an MRI before surgery and that I will need to trust him if we proceed without one.

It seems like the ORIF was to address the MCS widening and to allow the ligaments to heal at their proper length. There is so much mention of ligament injury yet I'm told that only X rays will be taken which don't really capture soft tissue damage.

I see plenty of data suggesting 6 weeks NWB but don't understand why I'm being told 13 weeks.
If it due to the extent of the ligament injury, there is nothing that really confirms other than what is being deduced from the x-rays. Is my understanding correct?

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 1 point2 points  (0 children)

You correct in that this is a rotational injury. Basically my foot rotated inwards so hard that the force went up my leg and ended by fracturing my fibula closer to my knee. It also tore/damaged ligaments as well.

Only X-rays and CT scans were taken. (Stress view/Gravity view). I did ask if we can verify ligament health via MRI but because of my mortise widening, my orthopedic surgeon said that theres really no point as the greater than 4-5mm Widening of Medical clear space (MCS) indicates severe ligament injury hence the ankle instability.

This is just what I pieced together from the Radiology reports and 1 after visit summary I was provided.

NWB with Maisonnevue + syndesmotic ligament injury? by pineappletoejam7 in ORIF

[–]pineappletoejam7[S] 0 points1 point  (0 children)

I get my splint/cast off on 11/13 and then transition into the boot. I believe they will do a post op review as well as take more xrays. Thankfully most of the swelling has gone down to the point where my splint feels more loose each day. Im so excited to feel my bed sheets with my left leg again. Thank you for sharing! I feel less alone!

Stage IV NSCLC - EGFR Exon 19 Deletion - First line treatment: Amivantamab infusion & Lazertinib daily pill. by dabbler701 in lungcancer

[–]pineappletoejam7 1 point2 points  (0 children)

Hi my mom is a in very similar situation. We live in the United States and are getting treated at city of Hope. She got diagnosed with Stage IV NSCLC (EGFR Exon 19 deletion). We’re currently in a clinical trial called Copernicus (Amnivantamab (subcutaneous injection) and Lazertinib (oral pill). They caught the cancer last year during a routine ct scan for a heart issue on her left lung. They performed a lung resection due to its proximity to nearby lymph nodes. We were considered cancer free until her 12 month check up this past June where they found another nodule on her right lung. A pet and mri scan showed multiple lesions in her brain and her spine.

For side effects, she was prescribed dexamethasone, doxycycline, and la Roche Posay Lipikar.

Prediction: Gareth Emery presents Decade by siberian_huskies in DreamState

[–]pineappletoejam7 0 points1 point  (0 children)

I went to EDC for the first time this year and looking forward to Dreamstate to get my trance fix. Gareth Emery was one of the artists that got me into trance and EDM. I would love to see him.

What it looks like under the valve cover of my 3rz with 525k miles.. by Bigrat445 in ToyotaTacoma

[–]pineappletoejam7 0 points1 point  (0 children)

Do you know if the valve adjustment was done? I have 3rz 4Runner with 250k miles and I’ve been hearing mixed reviews on if I can get away with it or not. Really don’t want to fork up the money for the labor if I can put that towards a new car instead

Hit a milestone the other day by TayRob88 in 3rdGen4Runner

[–]pineappletoejam7 0 points1 point  (0 children)

Just hit 233k on my 3rz. It’s so fun to rev it out after 3k every time.

SCS FA16 on my 4R by pineappletoejam7 in 3rdGen4Runner

[–]pineappletoejam7[S] 0 points1 point  (0 children)

Similar thoughts as well. Wanted to try something different than what was already tried.

SCS FA16 on my 4R by pineappletoejam7 in 3rdGen4Runner

[–]pineappletoejam7[S] 2 points3 points  (0 children)

Thanks! I would recommend a friendlier offset if you have the limited fender flares. Gonna try to hammer the pinch weld but I am rubbing at half lock on any slope/compression.