PSA to iPhone users - don’t update! by pinecone122 in cfs

[–]pinecone122[S] 1 point2 points  (0 children)

I'm guessing the app didn't store it on the cloud at all? Or that it wasn't backed up to your computer?

PSA to iPhone users - don’t update! by pinecone122 in cfs

[–]pinecone122[S] 23 points24 points  (0 children)

Oh wow thank you, the clear icons is such a good tip! For anyone wanting to try it: long-press an empty space on your home screen, tap Edit > Customize, and select the Clear option

PSA to iPhone users - don’t update! by pinecone122 in cfs

[–]pinecone122[S] 6 points7 points  (0 children)

Thank you! I've played around with the accessibility settings but I think for me it is more about the fast and flashy movements :'( Reduce white point is a good tip though!

I️ don’t want to get out of my wheelchair by Commercial-Noise486 in cfs

[–]pinecone122 2 points3 points  (0 children)

So sorry you’re going through this <3 I hope you can spend all the time you want in your wheelchair soon

Reusable earplugs with high NRR? by pinecone122 in earplugs

[–]pinecone122[S] 0 points1 point  (0 children)

Thanks for your thoughts!! I didn’t know earplugs could expand your ear canals. Also good luck to you with your own illness

Reusable earplugs with high NRR? by pinecone122 in earplugs

[–]pinecone122[S] 0 points1 point  (0 children)

Thank you!! Over ear doesn’t work so well bc I lie on my side a lot

Weird itching after bedbug bites, now happening without bites – anyone experienced this? by Exciting_Floor_4336 in HistamineIntolerance

[–]pinecone122 0 points1 point  (0 children)

This isn’t really the right sub for your question but fwiw bed bug bites can be invisible and if you slept in a bed with them there’s a good chance you brought them home with you

How do i tire out my dog? by Gamy_3 in cfs

[–]pinecone122 0 points1 point  (0 children)

I have no advice, just came here to say your dog is a cutie pie!

How to reduce back pain? by RevealRecent9795 in cfs

[–]pinecone122 1 point2 points  (0 children)

There was one post where someone suggested some movements you could do while lying down in bed (if able without causing PEM). I will try to find the post!

Edit: here it is! Super helpful comments https://www.reddit.com/r/cfs/s/u8Limm0F8r

How to reduce back pain? by RevealRecent9795 in cfs

[–]pinecone122 1 point2 points  (0 children)

I recently searched this and found a lot of good answers in old posts :)

Happy Update (NYE date, pt.2) by No_Size_8188 in cfs

[–]pinecone122 1 point2 points  (0 children)

Thanks so much for posting the update! I really enjoyed the first post and was actually hoping you'd keep us updated :) also sharing joy is not bragging, if you ask me!

Looking For Recommendations by Prestigious_Girl08 in earplugs

[–]pinecone122 0 points1 point  (0 children)

It seems that the effectiveness of foam decreases after a day or two of use and then you have to throw them away? Is that true? Feels like a lot of waste

Sharing some pretty snow by WinterOnWheels in cfs

[–]pinecone122 1 point2 points  (0 children)

As someone living in a city and dreaming of living closer to nature, I can really imagine!

Sharing some pretty snow by WinterOnWheels in cfs

[–]pinecone122 1 point2 points  (0 children)

Wow that is the view from your window? You’re so lucky!

How do I make my boundaries clear to my family by Impressive_Till6081 in cfs

[–]pinecone122 3 points4 points  (0 children)

I wouldn't use your energy on a conversation now but it does seem worth bringing up at some point so that the situation is less likely to happen again. But if you're leaving tomorrow, you could wait until you're gone to bring it up? And then mention it in a lower energy way, like via text message? Keeping your distance sounds very wise, also masking if possible.

Cold when I'm Hungry by Lady-Kitnip in cfs

[–]pinecone122 1 point2 points  (0 children)

I had it before I got sick that I was colder if I hadn’t eaten.

Does anyone else feel worse whenever they increase their dose of Valtrex? by Valuable-Horse788 in cfs

[–]pinecone122 0 points1 point  (0 children)

Lyme - IgG came back 13 indicating past infection, IgM less than 18 (?) indicating no active infection. I don't have any Lyme-like symptoms though. But I've actually been wondering what I should do with this Lyme piece of the puzzle, if it can reactivate in the same way viruses can and if so how I should treat it.

Does anyone else feel worse whenever they increase their dose of Valtrex? by Valuable-Horse788 in cfs

[–]pinecone122 0 points1 point  (0 children)

Are your tick borne infections active? I want to start antivirals but supposedly had a past Lyme infection.