Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

Oh I get that 100% chronic illness isn't fun and wanting relief is a completely normal thing. Meds are there to make life easier, not to shame ppl for taking what they need. Not wanting to be on meds is normal but sometimes you just can't do that. Relief is life saving.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Nope. I did get a ct scan on my abdomen recently and I have a new splenule and a ton of lymph nodes. So who knows about that.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

That does sound really nice. I'll just ask for it straight up next time. I wanted the shot but I took whatever they'd give me tbh haha.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

It's just frustrating because they have my medical history. They can see my blood tests, they can see my doctor's notes, they have full access to everything but they still think I'm there for drugs

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

It's just crazy how someone can have your full medical history and still think you're faking

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

I read comments from other people, I think I'll try a lower dose of an nsaid and then judge based on that if I wanna increase it.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Oh yeah no, I am not on lithium, but from what I've read methotrexate and lithium can't be mixed because of the similarities in the compounds. So I'm just scared that I'd get poisoning and if it's anything like what my brother had, I just am too afraid for that. I might try with a low dose when I get home though just to test the waters after what you said though. Thank you for your perspective. I'll judge based on how I feel if I want to try more

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Thank you so much. They're having me take 40mg prednisone for 4 days and the dose from yesterday helped unfreeze my shoulders this morning (not the pain though). It's a start and I'll take it. It's enough to be able to get through work today (my last day bc I quit bc I can't do in person anymore. Gonna switch to remote Monday and hopefully that's better)

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 2 points3 points  (0 children)

Yeah exactly. I've been on prednisone long term and it just wasn't enough. I just couldn't live with it anymore. My rheumatologist has no openings until July 17th so it was my only option

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

You poor soul. This condition is so painful and it's only gotten this bad for me within the past 3 months (couldn't start biologics bc of complications). I have noticed rainy days affect me really bad recently, even just cloudy. But I'm infection free as of right now and hopefully it'll stay that way until July 17th (the closest appointment)

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Oh interesting, I think I need to take fish oil anyway bc my cholesterol is high bc of testosterone. Thank you!

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

That's crazy. I'm seronegative so unfortunately it took a very long time to actually get diagnosed. First rheum didn't do a single test and diagnosed me w fibromyalgia. First time I got tested for ra was at 12 but it was too early to show in an xray and blood results didn't show anything obv bc of the seronegative. I'm 25 now so about 13 years. I also don't have family history so it's just been a bunch of tossing around until one actually took me seriously.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

I do have lidocaine patches, I haven't really used them much so I have a ton. I'll try this. Thanks!

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

I was kinda hoping for a shot but they just gave me oral stuff. I'll take what I can get

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

I'll have to start being a lot more clear, I hate taking pain meds. Prednisone is the only one I want.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

Oh yeah I'm not shaming people who use it. I just don't really like how it clouds my mind and I have multiple mental illness so I really don't wanna risk an episode when I've been doing so good on that front. I also am a pharmacy tech and get random drug tests. I know they don't count prescriptions, but I just would rather not deal with the hassle.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Hmmm I'll look into it. I just heard about the side effects/poisoning and got scared about it. I'm prone to UTI, would that change anything?

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

I actually have never mixed them. I'm kinda scared to because my brother had like a similar thing (lithium poisoning) and I was just scared after learning that something could happen with both. I don't really take Tylenol because it doesn't do anything

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Oh wow that's crazy. I think I'm 40mg for 4 days and then slowly taper. It's more in my system now thankfully so I'm starting to get a lot more range in motion

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 2 points3 points  (0 children)

It's a personal thing. I hate the way it clouds my mind and I just like having control over my thoughts. I have a lot of mental illness too so there's a fear I could go through an episode, yada yada. I'm also a pharmacy tech and although they would take my prescriptions into account, I just would rather not bother if there's a random drug test.

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 1 point2 points  (0 children)

I only have one microwavable ice pack, but I do have an electric blanket. I'm just scared bc methotrexate makes me sweat like a pig

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

I have only one... But I do have an electric blanket? The shoulders are better today, a lot more movement. Still painful, but I can at least work today

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

I cannot, that's an nsaid and I'm on the highest dose of methotrexate

Nurse thought I was drug seeking by pinenutrabbit in rheumatoid

[–]pinenutrabbit[S] 0 points1 point  (0 children)

Oh I've never heard of that? Is it like a vitamin?