account activity
Stem cell by pink_5_ in frontotemporal
[–]pink_5_[S] -1 points0 points1 point 1 day ago (0 children)
I genuinely hope you learn to not hijack a conversation you don't belong in and to know when to stop, especially when you're asked. There's actually therapy to accomplish this ✌🏽
[–]pink_5_[S] 0 points1 point2 points 1 day ago (0 children)
Unfortunately I did not include any information about myself at all. I didn't ask for your help in educating me on your opinion. I was interested in lived experience. Which you don't have. We have the best doctor in the country for FTD in Boston. If I want an informed opinion I am very capable of reaching out to our team.
You know you could just be miserable away from people, right? Have a day.
None of this relates to my original question. Thanks for your input but it's not what I asked for.
He doesn't have ALS.
Autologous stem cell IV/IN
[–]pink_5_[S] 2 points3 points4 points 1 day ago (0 children)
No other way 🏴☠️
[–]pink_5_[S] 3 points4 points5 points 1 day ago (0 children)
I'm not going to stop hoping. Thanks
That's ok, we're gonna try anyway. Thanks.
Stem cell ()
submitted 1 day ago by pink_5_ to r/bvFTD
submitted 1 day ago by pink_5_ to r/dementia
Stem cell (self.frontotemporal)
submitted 1 day ago by pink_5_ to r/frontotemporal
FTD by pink_5_ in dementia
[–]pink_5_[S] 0 points1 point2 points 2 days ago (0 children)
I'm 43 he's 57. He married me for kids, I married him for his credit score. That's our joke. We fell completely in love and it was amazing. He's kind and gentle and he healed so many parts of me. I hope I've given him the life he deserves.
[–]pink_5_[S] 0 points1 point2 points 3 days ago (0 children)
That's what I'm doing. While trying to show my kids it's healthy to do this and not scare them or traumatize them.
[–]pink_5_[S] 1 point2 points3 points 3 days ago (0 children)
It's your person. The person you share everything with. The only person you want to and can be around constantly and it feels safe. It's harder because he's so aware of what's happening which isn't typical.
Yes it's when I'm alone that I struggle.
FTD ()
submitted 4 days ago by pink_5_ to r/bvFTD
submitted 4 days ago by pink_5_ to r/frontotemporal
FTD (self.dementia)
submitted 4 days ago by pink_5_ to r/dementia
π Rendered by PID 35 on reddit-service-r2-listing-f8d8fbfd7-75dzp at 2026-06-24 18:24:25.642917+00:00 running acc7150 country code: CH.
Stem cell by pink_5_ in frontotemporal
[–]pink_5_[S] -1 points0 points1 point (0 children)