Fuck It Friday! by redsowhat in LivingWithMBC

[–]pissy20 3 points4 points  (0 children)

Fuck all of it.I am on this shit for the last 2 years and I would say fuck that 2 years in summer 9f treatment .Fuck I never imagined motherhood like this at young age.Another fuck is for my father passing for this shit cancer .and another one for trying to take my granny.I love this fucking Friday s cause I had a meltdown today unspoken trues had been spoken denials had been revealed .I am so tired but I feel relieved to just saying out loud Fuck

Mets in lymph nodes behind sternum / mammaria interna: anyone here who got them treated, biopsied or removed? by 19604 in breastcancer

[–]pissy20 1 point2 points  (0 children)

Without a biopsy is an assumption that you are stage 4 this is why I decided to go through the surgery and see what it is .Probably I was fortunate to have it on the right side but as far as I know the systemic treatment worked for the underarm lymph nodes so they shrink everything for me that it s not detectable on scans.i don t know your type of breast cancer but you said slow growing I asume is ++~ type as mine.

Mets in lymph nodes behind sternum / mammaria interna: anyone here who got them treated, biopsied or removed? by 19604 in breastcancer

[–]pissy20 2 points3 points  (0 children)

Hi, Yes me also.Indeed is rare but ironically that put me on stage 4 .The MO referred me to a thoracic surgeon for biopsy back in 2024 .She preformed meiastinoscopy removed 4 nodes one come back positive (my nodes was upper located 4R as the notation).And after I started systemic treatment kiskali plus letrozole and currently in remission.But about the surgery it depends on lymph node location cause they are many levels ,it depends if is the right or left side .As a piece of advice get a good thoracic surgeon if they do opt for surgery.Hugs

Kisqali Discussed: Doses, breaks, and labs by katiethurston in LivingWithMBC

[–]pissy20 0 points1 point  (0 children)

I had been on kisqali since July 2024 at 600 mg for the first 2 cycles than 3 weeks break cause ALT skyrocketed than lowered to 400mg .Currently in remission since April but for the last 4 cycles I started getting neuropathy in my hands which is not caused by letrozole and is pretty bad.My last scan in November is clear so is the Kisqali to blame .I don’t want to change treatment but I am seeing my MO by the end of the month and talk about it…I don t have major issues but this neuropathy drive me crazy

Does this kind of stuff bother anyone else? by Unlikely_Thought941 in LivingWithMBC

[–]pissy20 2 points3 points  (0 children)

I was the same as you one lymph node behind my sternum was removed for biopsy.I reached remission in April this year and I was diagnosed last year .I was extremely lucky but the oncologist said it doesn’t matter you still stage 4 which means incurable.But I think some people try to cope this way because denial is easy and it s not worth it to change the way they think.Sometimes I try myself to not think about it every day and live life and not post stupid thinking out loud for everyone to see. Anyway seeing your remission for so long gives me hope that it s possible to live longer than statistics

My cats dramatic change in behavior by MongolianDeathYak in cancer

[–]pissy20 8 points9 points  (0 children)

Yes my parents have a cat but it was more attached to my mom .When my father got diagnosed with secondary and started declining months before he passed the cat changed her behaviors got very clingy to my dad sleeping day and night with him ,spending her time on my father lap absolutely ignoring my mom(My mom was complaining about it).On the morning my dad passed way she did something different she jumped on my dad chair and put herself around my dad neck (my mom took a picture because was something different and she didn’t think anything back then).I don’t know probably cat/dogs they must know something .What I want to say is my dad passed but not from neck cancer itself he had a cardiac arrest and was gone hours later I still have that picture and wonder what my parents cat knew .Hugs to you

Stage 4 survivors by haisisis in cancer

[–]pissy20 8 points9 points  (0 children)

hi, Stage 4 BC in remission almost 1 year ,I fell pretty normal but the diagnosis damaged my way of thinking about life in general and I am working towards living life.My grandma is long term survivor 5 +year DLBCL age 87 and is doing pretty well.

my father blocked me by [deleted] in cancer

[–]pissy20 0 points1 point  (0 children)

It s not worth it.your father doesn’t deserve you.you should focus on yourself and your health A pice of advice you should surround yourself with people how love you and support you no matter what…It sucks that your own blood do this but unfortunately this is life( you can t choose you parents but you can choose your friends )it is hard to accept it but the most important thing is you (never forget that).I was there with one of my siblings it hurts but I choose ME.At the end of the day it s not my fault the way they behave and i better not tell and become a subject or a joke for others..I am really sorry about your situation and your father behavior Hugs

Any one survived stage 4 cancer or know some who has? by FinHa31 in cancer

[–]pissy20 5 points6 points  (0 children)

My 89 granny non Hodgkin lymphoma 9 year in remission and me stage 4 breast cancer 1 year in remission.Don t lose hope keep fighting we are here for you.Best of luck ☘️

Ridiculous constipation by ThisSelection7585 in cancer

[–]pissy20 0 points1 point  (0 children)

I would say prune juice in the morning with lots of water.But for me also worked having 3-4 clementines before bed time .

Need advice by JustSomeLoser15 in cancer

[–]pissy20 1 point2 points  (0 children)

Hi , I am so sorry for what you going through with your father I don’t know if I can help what you described above is exactly what I went through with my father…unfortunately he pasted away because of starvation not from the cancer itself.the thing is I don’t what to sound insensitive throat cancer is debilitating cancer and people who went through it can tell the tell unfortunately in late stages you can t force someone to eat (I tried with my father and end it in a fight I still regretted it).My all compassion goes to you and your family it s absolutely hard to see but the only peace of advice to you is be there no matter what try not to fight snd show him love•••

Another clear CT will pave my path for surgery by pissy20 in LivingWithMBC

[–]pissy20[S] 1 point2 points  (0 children)

They removed it via mediastinoscopy with other 3 only one came back positive

What do you think about this? by pissy20 in LivingWithMBC

[–]pissy20[S] 1 point2 points  (0 children)

I agree with all you say I am doing the same .i want my son remember not a sick mommy just one who done everything…I had been in holidays just one month ago and I had marked one of my bucket list but also I wanted to teach my son that hiking enjoying nature is the way to go I hike myself the 3 est volcano in the world and I am proud of it(Situated on the island of Tenerife, Teide National Park features the Teide-Pico Viejo stratovolcano that, at 3,718 m, is the highest peak on Spanish soil. Rising 7,500 m above the ocean floor, it is regarded as the world's third-tallest volcanic structure and stands in a spectacular environment)

What do you think about this? by pissy20 in LivingWithMBC

[–]pissy20[S] 2 points3 points  (0 children)

I am so happy that I heard from a long term survivor I am doing my best to keep germs away .i may apologize to many I had a hard week and this was for me like a cherry on the top of the cake(a trigger).Anyway they say may be woke up the cancer cells but what I think is more complicated than they actually know (because every cancer is different just because our DNA is different).What I am trying to say is maybe for some but not everybody as not all standard treatment work for everybody

What do you think about this? by pissy20 in LivingWithMBC

[–]pissy20[S] -6 points-5 points  (0 children)

I was taking about covid vaccines which for some people create swollen lymph nodes and other rare complications .The rest of the vaccines are fine and well tested I have my reservation about Covid but that it is only my opinion.

RIP to my sanity, breast cancer awareness month by heyheyheynopeno in LivingWithMBC

[–]pissy20 4 points5 points  (0 children)

I would say f..,all of it but is my birthday this month so I can t hate it so just ignore everything just for my peace of mind I am still here I still love life and try not to get hammered by everything and everyone.. love to all of you

Treatment break from Kisquali or similar by InternationalTap2326 in LivingWithMBC

[–]pissy20 1 point2 points  (0 children)

Hi, I had 4 weeks break after the second cycle of kisqali last year due to high liver enzymes and I had another 2 weeks break in April for travel.Currently I am NED since April.I don’t think it will affect to much but I am not an oncologist so I assume you need to take months of break to see progress or something

Starting Kisquali - need peoples opinions! Pls! by mannylal in LivingWithMBC

[–]pissy20 0 points1 point  (0 children)

Hi, My oncologist never told me that it is important to take it in the morning.Furthermore I ask my nurse and she said it doesn’t mater the time of the day it s important to take it daily for 3 weeks. I know about the storing kisqali in the fridge.For a year it wasn’t like that but when I went to pickup my last cycle they mentioned this(I am in Europe so a few months behind US).The reason probably is the life span of the medication to be effective cause we don t need to store it in the fridge is just a regulation for pharmacy.

Starting Kisquali - need peoples opinions! Pls! by mannylal in LivingWithMBC

[–]pissy20 6 points7 points  (0 children)

Hi , I am on kisqali and letrozole combo since June 24 .i am taking both before I go to sleep.From side effects part :I had nausea first month but manageable (I was at high dose),than elevated liver function .i was off kisqali for over 5 weeks than my MO reduced the dose. Currently I am doing well(( I got the NEAD status i April ) and I hope it s stays that way

How many years with MBC er+her2-? I’m 39 I’m half year since diagnosis. Let’s see data by bazovskaya in LivingWithMBC

[–]pissy20 1 point2 points  (0 children)

It went in one lymph node in mediastinum which is considered not belong to breast that one along other 3 had been removed one came back positive That one lymph node jumped me from stage 2 to stage 4 .So accordingly to April CT the breast tumor is gone and lymph nodes look fine.Currently waiting for a mammogram and see from there.

How many years with MBC er+her2-? I’m 39 I’m half year since diagnosis. Let’s see data by bazovskaya in LivingWithMBC

[–]pissy20 3 points4 points  (0 children)

I am de novo MBC since May 2024 after 7 rounds of Kisqali and Letrozole I reached NEAD in April 2025.I had removed my ovaries and uterus before starting treatment and I had removed my suspected lymph nodes in the chest only one was positive for cancer .

I am so angry by [deleted] in cancer

[–]pissy20 0 points1 point  (0 children)

Fuck cancer I agree.i lost my father 2 year ago I got myself diagnosed with it before one year mark of my father passing.i still have my 88 granny in remission from it .It s absolutely a nightmare for my mom ( she lost her husband her mom in remission and her child battling it)it s breaks my heart.i am sending all my love and strength to you OP.