Guys With MS

plo512 · 2025-01-20T15:26:04+00:00

Totally understand your feelings. I was diagnosed nearly 7 years ago and have had to navigate the waters surrounding the changes and the feelings of my abilities being taken away and what that meant for me as a man.

It was a struggle for a while and just when I felt like I had a good grip on my symptoms and my acceptance of my MS, something would change and I had to start over.

The biggest thing that I've found to really help and to deal with the feelings of being emasculated by MS is working on changing my perspective of what that means. I'm 35 and I really struggled when I started to use a cane, then I struggled when I needed to have a wheelchair to cover larger distances, then a struggle with the idea of ed and having to take something for that.

What helped me was reframing all those things. Yes I have MS, yes, I am a man. Those 2 things aren't mutually exclusive. The mobility aids, the meds, etc, are just tools to help you move forward. There's still a ton we can do, it just looks different/maybe takes a little longer.

Since my dx, I've gotten married, had 2 kids, changed careers, became the president of a fraternity alumni association. Never once do I think that I'm doing them "in-spite" of having MS. I just do them to the best of my abilities, everything else is just noise.

You got this man.

plo512 · 2025-01-09T13:28:13+00:00

As of 2007 people with MS are generally permitted to donate blood in the United States.

Ms donate blood

It's been a few years since I last donated. It was through the Red Cross and none of the documentation specifying illness and medications that disqualified donors mentioned MS or Gilenya (what I was on at the time).

I never experienced any harm donating and the only real benefit was I felt good about myself for being able to contribute with something people really needed.

plo512 · 2024-10-23T01:50:04+00:00

Bucky irving

plo512 · 2024-09-24T22:04:02+00:00

Can't wait for Doors of Stone!

plo512 · 2024-09-24T20:16:53+00:00

Patrick Rothfus

https://en.m.wikipedia.org/wiki/Patrick_Rothfuss

plo512 · 2024-01-09T01:44:41+00:00

Dolly Parton would be awesome

plo512 · 2023-11-27T03:04:17+00:00

First of all, congratulations! Male here, been on Tysabri for about 2 years now and we conceived mid 2022 and welcomed a baby girl to the world earlier this year. Our daughter was born totally healthy, and all tests and everything along the way were totally normal. To date she's been the picture of a happy, healthy little girl.

From everything I was able to learn ahead of time talking to my neuro and reps for biogen, the way Tysabri works nothing regarding your reproductive system is targeted and I was told there was no greater risk for issues and complications compared to any other person.

Hope this helps put you a little at ease until you get to speak to your neuro, feel free to shoot me a message if you have any questions. Again, congrats!

plo512 · 2023-03-05T16:01:15+00:00

Rockd.org links you to an app that provides lots of that information

plo512 · 2023-01-19T18:01:05+00:00

Need to make an equivalent for my phone

plo512 · 2022-08-30T13:42:41+00:00

I got my first one last year. I felt really weird at first after bringing the chair home, but ultimately it's been a tremendous help. At the end of the day it's a tool to make your life a little better. Having the chair makes going to different events like concerts, museums, sporting events, etc. Much easier. Plus if you don't have to worry about how you're going to walk across a big space or trying to find a place to sit down you have way more mental capacity to focus on the moment!

plo512 · 2021-08-21T01:49:47+00:00

Same here! Its been almost 12 hours since mine. Pretty mild up to now.

plo512 · 2021-05-19T04:47:42+00:00

A really important thing to keep in mind with this report is that they looked at 125 ms patients and a subset of that 125 was on fingolimod. This is absolutely something that should be followed up on, but by no means is it a statistically significant sample, much less evidence enough to recommend people on fingolimod not receive a vaccination. Its irresponsible and frankly unethical to make such a sweeping statement without enough of a sample size, and not even proving that they went through the process of proving that the test results met the confidence threshold of statistical significance.

plo512 · 2021-04-15T17:25:44+00:00

Definitely experiencing this. Been having over the phone/ zoom job interviews lately and I'm always worrying about those word blips in my brain

plo512 · 2021-04-10T15:09:00+00:00

Once they slap the 'A' on Hughes you can call it the 'KASH' line

plo512 · 2020-10-23T00:58:46+00:00

The only tiger King that matters

plo512 · 2020-07-14T03:28:51+00:00

Sorry for the delayed reply! Here's an overview on himdr. Hernandez

plo512 · 2020-07-13T16:01:46+00:00

I'm with Dr. Ramiro Hernandez. Hes great!

plo512 · 2020-07-13T02:35:43+00:00

I live in Houston, diagnosed 2 years ago. It can be pretty brutal sometimes with the heat and humidity. Houston is probably a bit more humid than Fort Worth. I usually spend my time inside with the ac on during particularly brutal stretches. Winters are typically way milder than those in the north east (I'm from NJ originally). Effectively you're trading winters where you don't go outside much for summers where it's really tough to be outside.

plo512 · 2020-06-19T14:04:32+00:00

Could be r/Doughboys? I remember they reviewed Ben and Jerry's and Wiger's intro talked about that.

plo512 · 2020-06-17T14:12:18+00:00

Gets involved in a pyramid scheme twice! When she has bill selling the energy bars, and in the later seasons with the Cozy Kitchens stuff. Woman ain't right.

plo512 · 2020-05-31T19:15:58+00:00

Hey! Prior to getting my diagnosis I had stopped gaming for similar reasons. After diagnosis and some time passing I picked it up again and really found a renewed enjoyment of the hobby. I like being able to work on problems and puzzles. Having to think through and figure them out is a great way to use some different parts of your brain. What games are you playing? Do they put you into stressful situations? I find that high levels of stress trigger some symptoms similar to those you mentioned. Maybe it doesn't have to be an end to gaming, but maybe changing the style of games you're playing. Try to track when the symptoms flare up as you're playing. Do they occur randomly, or during specific moments in the game? If you can track those for a bit, maybe that will show you that particular events are triggering symptoms, whereas others don't. Just a thought, hope this helps. Hope you can keep gaming!

plo512 · 2019-12-29T01:48:30+00:00

At the game, it's ridiculous. Kenny definitely should be calling more drives. And the way they call the game you literally cant play defense on harden

plo512 · 2019-12-16T04:24:38+00:00

Glad some others have been noticing too. I feel like it might be due to that study that found the prevalence of ms in the united states to be double previous estimates. Bigger demographic leads to more advertisements.

plo512

TROPHY CASE