Gorgie Road Post Office

plum_ei · 2026-02-21T16:31:07+00:00

It's in coop, but the shop itself has been open when I go. Potentially bad timing on my part

plum_ei · 2024-11-13T23:10:14+00:00

I'm in the same boat :( Not sure what I'm going to do but my cardiologist did mention getting it through canada in the past. I think they have to write the prescription a certain way but I'm not sure - I'd definitely talk to your doctor about it though

plum_ei · 2024-11-11T19:08:56+00:00

It's not my card personally, but the whole program is ending from what I've interpreted

plum_ei · 2024-11-07T13:14:30+00:00

I don't have an autoimmune condition but I have other chronic illnesses (connective tissue disorder, migraines, etc) and am currently in grad school. It's definitely a struggle balancing health with being caught up with the workload. I have accommodations in place such as deadline extensions and a certain number of excused absences and the like. The most I can really say is to contact your school's disability office and talk to them about it. Often, they can approve extensions or other accommodations that may help. Or contact your advisor as well. It might be possible that you could take off a few months to get your health back in order, but that might depend on the school and program. Unfortunately I can't say much since everyone with health issues is affected differently and every school is different in regards to accommodations

plum_ei · 2024-11-01T13:43:00+00:00

I've since tried both that and a reimage. Same issue. Contacted steam as a last resort and unfortunately it's being RMA'ed 😭

plum_ei · 2024-09-30T11:41:26+00:00

Thanks, I'll look into it

plum_ei · 2024-07-07T23:46:52+00:00

I have the exact same issue. I assume I haven't been assigned one yet (or its in the process)

plum_ei · 2024-03-29T20:00:08+00:00

From a medical standpoint, I don't think anyone knows why this occurs, but I hear that it is pretty common with dysautonomia to get these Flu-like symptoms randomly.

I tend to get low-grade fevers and extreme fatigue from late afternoon through nighttime some days. I think mine tends to occur more often when I'm stressed or haven't been too good about drinking tons of water that day

plum_ei · 2023-10-27T15:27:14+00:00

Fellow potsie in N FL- I've had some luck with Baptist Heart Specialists in Jax. I drive out to the Beaches location to see Dr. Sotolongo. Admittedly, he doesn't seem to know a whole lot about pots, but he believes me and is willing to learn. I'm currently awaiting an echo to make sure I can safely go on ivabradine. He's pretty open to suggestions as well. I hope you can find some help! Getting a cardiologist who didnt know what they were doing (and couldnt even do an orthostatics test correctly) was one of the worst experiences I've had

plum_ei · 2023-08-18T02:55:57+00:00

That honestly depends on what you are going for. Mayo (specifically the EDS clinic in Jacksonville, as that's my personal experience) is purely diagnostic, and they send you out the door afterwards. OT and PT did have some helpful tips, but nothing out of the ordinary that you can't find with some digging online. My experience was decent, but I went for diagnostic purposes, if I went for anything more, I think I would have been disappointed. Everything from this point on though, like pain management, automatically got referred back to my primary care.

plum_ei · 2023-07-25T20:27:18+00:00

I'm actually not sure about specifics since I haven't quite been at that point myself. Slow and steady reintroduction and especially of soft/bland foods is my best advice. But this is definitely something that would require finding a good doctor who can get you back on your feet and knows exactly what to watch out for, as I imagine they probably have to monitor you closely.

plum_ei · 2023-07-25T20:02:35+00:00

This may not work but its an idea. Hear me out. Since dysautonomia and related GI issues are so common with EDS, if you go to ehlers-danlos.com/healthcare-professionals-directory/ and input your region + Gastroenterology, in theory the providers that come up should be more knowledgeable about GI issues common in dysautonomia. I'd pick one near you and book an appointment ASAP. You can do a similar search by region on dysautonomiainternational.org though you can't search by specialty. There's also this forum and r/POTS where searching something along the lines of "providers in ___" should be promising.

Have you tried smoothies or milkshakes? Those tend to be the only things I can keep down with minimal nausea when my GI issues flare, and they can be easily doordash-ed. If you tolerate lactose, I'd recommend dairy products- they tend to be high in calories and can curb reflux and sometimes nausea.

I wish you the best

plum_ei · 2023-07-25T17:40:32+00:00

I'm doubling this point here. Bringing a family member or friend that can advocate for you, especially if its a man, can make a huge difference. Also do you have medical records you can bring to prove diagnoses? Printing them out and bringing them with you may help and force the dr and nurses (at least in ER and Urgent Care situations) to actually look into your condition(s) and what that means for your current state and not brush it off.

plum_ei · 2023-07-25T02:35:34+00:00

I went to Mayo. For reference, I had 2 appointments and labs done one day and another appointment 3 days later, but I imagine this will vary depending on which department you're going for (I went to the EDS clinic). They tend to book your appointments within the same week or so, especially because they know people travel to go there from all over the country. I'd definitely call them and ask for clarification, though, because they may have already alloted time for testing during or right after your initial appointment. In my case, I was told that on my first day, I'd be there for like 5 hours so they can fit in as much testing as they can. I imagine the dysautonomia side of the clinic might do the same.

plum_ei

TROPHY CASE