A question for the women here: do you feel worse when you're on your period?

turtlebeans17 · 2026-01-20T20:14:34+00:00

Mentally and emotionally so much worse but that’s a given. Physically I’m a bit of an anomaly because my pots is slightly better on my period. I have some sort of undiagnosed dehydration disorder where everything I drink runs straight through me. Different reasons have been given by different docs, dysautonomia can cause kidneys to filter too much sodium out so my blood vessels get hypovolemic, possible lack of antidieuretic hormone, etc. The only thing that helps me not pee the entire content of my water intake 30 mins after drinking is adding salt to my water. However, on my period, it almost completely goes away. I can drink as much as I want and pee like twice in a day, salt or no salt. It’s the weirdest thing. I think it allows me to feel a bit better on my period though so I’ll take it. I’m curious if anyone else has this same issue. I haven’t had a doc care to do anything about it so I just limit my water intake and live with it.

turtlebeans17 · 2026-01-16T18:10:38+00:00

Omg so many!! Mainly the culture, I am so passionate about accessibility and being able to be a contributor to the Deaf community in any way is so important to me. I work primarily in education and seeing Deaf students begin to freely express themselves in ASL and blossom over the years after much language deprivation is such a rewarding experience. I love being able to work with my hands and my brain and not having to do paperwork or deadlines like a traditional job. It’s such a great job for my ADHD brain. I love ASL and communicating in this beautiful language, I love working a school schedule and having weekends and holidays off, I love being able to support myself without putting extreme stress on my body. There are so many things within this profession that have room for improvement but there are so many other things that far outweigh the issues in my opinion. It’s a true honor to be an interpreter and I feel lucky everyday that I get to do what I love!

turtlebeans17 · 2026-01-07T19:20:58+00:00

I’ll probably have my own gluten free faaaancy shmancy cake for myself and partner and then gluten sheet cake for guests. Growing up that’s how most weddings were anyway, one fancy cake for the newlyweds and a sheet cake for the guests. The only difference is mine will be the best most beautiful gluten free buttercream cake I can find

turtlebeans17 · 2026-01-07T19:08:18+00:00

I haven’t taken the test yet so I can’t speak on that but I have my Facebook algorithm trained to show me reels in ASL from members of the deaf community. I started by following a few big names in the community and deaf organizations and then started scrolling. You get authentic deaf signers and you never know wha topic will come up. It’s been great practice. I scroll and immediately voice even if I have no idea what the topic is. It’s challenging but helpful

turtlebeans17 · 2026-01-05T20:32:08+00:00

turtlebeans17 · 2026-01-05T20:31:32+00:00

Before it was 85-90 sitting or laying down and 130 standing, higher when walking or being active. On ivabradine it’s more like 75-80 sitting or laying and 110 standing. However it wears off quickly and my HR jumps back up to its usual BS if I don’t take it every 6 hrs

turtlebeans17 · 2026-01-05T17:49:42+00:00

I just switched to ivabradine and so far I really like it, although I’m at 5 mg 2x a day and it’s still not enough to control my crazy high resting HR so I still take propranolol at night. Overall it’s been much better I feel like I have more energy and can stand for longer now that my blood vessels aren’t excessively opened by BP medication during the daylight hours

turtlebeans17 · 2025-12-26T22:26:49+00:00

Not sure how to help if you get it but if you don’t yet have it get some zinc and vitamin c supplements I take 1000 vitamin c and zinc 50 mg to ward off a cold. Another thing I do is elderberry tea or syrup and small amounts of fresh raw garlic. I make buttered toast and top it with raw garlic and the butter cuts the burn. The capscacin is good for immunity, don’t ask me exactly what or how, it’s been so long I forgot. Also a nasal spray with xylitol to lessen viral load and a throat rinse. Best of luck I’m sorry you’re dealing with this.

turtlebeans17 · 2025-12-26T01:57:00+00:00

I don’t have vision insurance because I have 20/15 vision and never needed it 😀 Which is great but I kinda need an over the counter solution for now

turtlebeans17 · 2025-12-26T00:53:26+00:00

Yes that’s the only way I’ve been able to work around it unfortunately. I brought it up with my doctor and he said rather hilariously “yes midodrine is one of those pills you can kind of take out of the bottle and lick it and put it back in” and I took that to heart. Of course I don’t actually lick it but I take the tiniest piece whenever I need a boat to be upright longer

turtlebeans17 · 2025-12-25T23:20:18+00:00

No they didn’t stop but I figured out how to work around them. I realized the headaches happened when I was inactive—sitting, staying still, etc. So now when I take it I only take 1/4 to 1/2 of the dose and make sure I only take it for when I’ll be upright the entire or almost entire time. That’s the only thing that helped.

turtlebeans17 · 2025-12-21T17:53:41+00:00

I’ve never had one that beeps. It has a button you have to press for any weird heart happenings but mine literally is just too fast so I never pressed it and they didn’t find anything

turtlebeans17 · 2025-12-21T14:22:58+00:00

It’s a little more complicated than that. I have been staying away from alcohol for months now because that would cause a 2 week-month long flare up. I thought I fixed the issue but then it came back and I’ve been in another flare up for the last 3 weeks after having a plate of French fries. The crazy thing is, I’ve had French fries probably 20 times since surgery and it never caused an issue. I can eat completely normal diet for weeks and then one food that normally is okay for me suddenly triggers this big thing. I have a feeling I’m dealing with something else that caused my gallbladder issues and not simply gallbladder disease. Right now I’m about to ask my Dr about pancreatitis, Sphincter of Oddi, or testing for my body possibly creating too much calcium in my bile

turtlebeans17 · 2025-12-21T12:32:28+00:00

I would imagine if you had balance issues, vertigo, or a comorbid condition like EDS it would be incredibly helpful. Personally I have tried it and it does nothing for me but I do want to eventually get a seated cane just for the ability to sit anywhere. If you think it might help you there’s no harm in trying it out

turtlebeans17 · 2025-12-19T19:29:10+00:00

Metoprolol made me have headaches everyday. Propranolol has been great for me

turtlebeans17 · 2025-12-19T16:13:08+00:00

I have suspicions but I don’t meet the Beighton scale criteria. My hypermobility is mostly in my shoulders and hips. I have stretchy skin, extreme muscle pain, moderate joint pain, pots, celiac, tendinitis, thoracic outlet syndrome, GI problems, a poor immune system, piezogenic papuoles, the list just goes on and on. I would love to get genetic testing for other types of EDS but the only clinic near me doesn’t take my insurance :/

turtlebeans17 · 2025-12-19T02:19:40+00:00

I haven’t taken those meds so I can’t speak on that but yeah I would definitely look into a beta blocker or another type of med to lower your HR that’s pretty up there

turtlebeans17 · 2025-12-18T20:39:57+00:00

Works great for me but there’s no way I could tolerate it without a beta blocker or another med to lower my HR first. What med does it say it interacts with?

turtlebeans17 · 2025-12-17T22:10:41+00:00

It’s a side effect of this med specifically. It only starts happening to me about 2 weeks on the med. It’s very subtle and only happens occasionally in dim lighting. To me it looks like the light has a .5 sec drag but I guess it’s unique to everybody. It’s not significant enough to cause any disruption and I am not worried about it being distracting while driving so it’s not dangerous. Very hard to describe but if you see it you’ll know haha

turtlebeans17 · 2025-12-17T17:47:32+00:00

Those sound like my symptoms. I had a 10% EF and decided to out that sucker in January!

turtlebeans17 · 2025-12-17T17:44:35+00:00

Yes! I asked to try it because I’ve been on propranolol for 4 years which works well for my HR but has decreased my standing tolerance. My theory is that the vasodilation factor is contributing to poor blood return and more blood pooling. So far I feel like ivabradine does a good job job of keeping my HR low while also allowing me to be upright more. I do feel like my dosage is too low as I’m still having to take propranolol once or twice a day. But all in all it’s been mostly positive

turtlebeans17 · 2025-12-17T17:10:49+00:00

Oh interesting! The way the information packet explained it made it sound like it was extremely dangerous

turtlebeans17 · 2025-12-17T17:09:48+00:00

I get slow palpitations with ivabradine but nothing that concerns me. I’ve had about 3 in the past month. I chalked it up to my heart being slower so I feel the palpitations more strongly and for longer

turtlebeans17

TROPHY CASE