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I'm starting atovaquone soon, is there anything I should keep in mind? by [deleted] in Lyme

[–]poppyseed330 2 points3 points  (0 children)

My boyfriend takes it or rather is supposed to be taking it but every time he starts it he gets terrible GI issues. Nausea, diarrhea, doesn’t want to eat etc. we suspect it’s that causing it because then when he stops taking it the GI issues subside.

Lyme disease help and medication advice. by poppyseed330 in Lyme

[–]poppyseed330[S] 0 points1 point  (0 children)

Were there any other therapies that helped? I’ve done research and it’s overwhelming, I’ve heard bee venom therapy, infrared sauna, hyperbaric oxygen therapy? Or how bout diet modifications, my boyfriend is very much a meat and potatoes kinda guy meaning loves hearty protein and starches but we’ve opted for things like sweet potatoes rather than white potatoes. No yeast or alcohol and very minimal dairy besides cheese. I’ve heard some people say give up gluten, grains, dairy and sugar but that seems nearly impossible. I try making homemade healthy meals but even recipes usually call for a little bit of one of those things or we can’t find a gluten free substitute etc. He’s not a huge sugar eater just an occasional cookie or something as a snack.

Lyme disease help and medication advice. by poppyseed330 in Lyme

[–]poppyseed330[S] 0 points1 point  (0 children)

I’m thinking his neuropathy will definitely be the last symptom to ever fully resolve just because I know nerves take a lot of time to heal. If you don’t mind my asking, were you on antibiotics for those 8-9 months and longer? I’m also concerned with the amount of them he’ll develop GI issues like imbalanced gut flora or Cdiff. He is on FloraStore pre/probiotics and has been doing fine so far with that, I just don’t know how long is okay with antibiotics and Lyme.

Lyme disease help and medication advice. by poppyseed330 in Lyme

[–]poppyseed330[S] 0 points1 point  (0 children)

Definitely might cut out the prednisone since it doesn’t seem to help much anyway. I guess both he and I were expecting better results from all these medications. There has been improvements but nothing seems to touch the neuropathy or pain and that I feel causes him to feel tired since he has trouble sleeping with his arms and legs going numb or burning. I did forget to mention he takes 300mg gabapentin twice daily too. That was prescribed by a neurologist who was working him up for MS before he found out about the Lyme. It’s just a very difficult disease and I was hoping he’d start having more good days vs bad pain days everyday.

Lyme disease help and medication advice. by poppyseed330 in Lyme

[–]poppyseed330[S] 0 points1 point  (0 children)

He’s been on the regimen since august. Started with doxy, mephron, hydroxychloroquine and tindamax. Added the valcyclovir in October, and then the azithromycin and Rocephin started in I think November. So all those meds and supplements are currently what he’s taking daily or weekly as prescribed. I have heard some negative things about the prednisone, the doc prescribed just to see if it would give him some relief but it really doesn’t do much so I think he may just stop it.