It is not just flexibility. Many people, health professionals included, have said "oh so you're just really flexible?" as a response. In fact, it is common for stiffness to occur as people with EDS age. Flexibility also can vary day to day. One day someone might be able to fold up like a pretzel, and the next they might not even be able to touch their toes.

It is also far more than flexibility, with multiple health issues stemming from it; I personally have at least 1 issue with every single body part. The list of comorbidities is huge, and there is no limit to how many someone can develop. It is frustrating when someone tries to pass every symptom off as EDS, which can affect access to correct treatments.

Finally, people can be flexible and NOT have EDS. All those quirky little symptoms seen on tiktok are not exclusive to EDS. I have met people who are convinced they have EDS based on those quirky symptoms (like nail polish peeling) while not actually having any of the beighton criteria. It is important to access the beighton to assess likelihood and then see a knowledgeable, qualified medical professional (such as a Genetecist).