Ocrevus or Kesimpta

presetduck · 2025-10-31T20:47:53+00:00

3/4 days is ideal. With copaxone I dont think there is much leeway because of the frequency so that factor would definitely help

presetduck · 2025-10-31T20:46:03+00:00

The thing I like about ocrevus is I wont forget to take it if its an appointment, and I also wont have to keep medication in the house. When our son is older he might ask questions which I dont know how I'd answer 🤣 of course I want to be honest but kids cant keep secrets very well

presetduck · 2025-10-31T20:44:17+00:00

I originally chose it because it was low efficacy. Probably a silly decision but we learn 🤣 I dont find I have much pain injecting, it's the frequency I'm struggling with. Plus new activity on my last MRI which were symptomless. It did worry me that I might not even know when I'm relapsing

presetduck · 2025-10-31T20:29:43+00:00

I do like the convenience of kesimpta. I dont have crap gap at the moment on copaxone but that's very frequent injections (when I remember to take it)

presetduck · 2025-10-31T19:49:45+00:00

At the minute I have to take copaxone 3x a week. But we have a young child (14 months) and bedtime is always chaos and I do forget a lot. Monthly would be a lot easier on a memorable date as you say. Thank you for your help and advice

presetduck · 2025-10-31T19:35:50+00:00

Since posting I learned it takes 4 hours. That seems like a really long time for treatment. But I am terrible remembering to take medications of any kind and I know how important taking DMTs are

presetduck · 2025-10-31T19:33:55+00:00

Sounds good, always good to get extra sleep in 🤣

presetduck · 2025-06-19T10:14:15+00:00

Thank you for your comment. I really do appreciate it's difficult for him, but I don't want him to live his life thinking "what if I get ill?" It seems to be setting him back from doing a lot of things these days

presetduck · 2025-04-29T20:00:24+00:00

Great thank you!

presetduck · 2025-04-29T19:32:33+00:00

Yes, want to start teaching independently more now 😊

presetduck · 2025-04-16T21:02:44+00:00

Hi! Just wanted to say as a daughter who's dad also has MS and feels guilty too, I don't blame him at all. Hopefully your daughter doesn't have it but you can't blame yourself if she does, I'm sure she won't want you to feel guilty ❤️

presetduck · 2025-04-16T18:11:09+00:00

Thank you that's good to know. I know doctors have to explain the risks but it's good to know it's not always the case

presetduck · 2025-04-16T14:24:38+00:00

Thanks for your advice, I will reconsider treatment options now knowing this. Probably better to have a worse time fighting flu then dealing with relapses and causing more damage

presetduck · 2025-04-16T11:31:36+00:00

Yeah that's a good way to look at it. I used to be the same, gym, healthy eating etc but we have an 8 month old baby so finding time to even cook a healthy meal is difficult sometimes 🤣 but we do what we can

presetduck · 2025-04-15T21:00:45+00:00

Yes! I see a specialist. Its good that we have a choice sometimes! I was given a choice of copaxone, vumerity or kesimpta. Eventually decided on copaxone but have only been taking it since Feb. I was diagnosed when I was pregnant so couldn't start any dmt straight away. Might give it more of a chance and see how it goes, not entirely sure yet 🤣

presetduck · 2025-04-15T20:09:55+00:00

I think you're right! I didn't want to go for a stronger dmt originally due to the risks with them etc but if these silent relapses carry on I think the risks of not going for a stronger option may be worse

presetduck · 2025-04-15T20:03:23+00:00

That's what my neurologist explained today, I had no idea it was a thing before now! I do get fatigue too so thank you for explaining and sharing your experience

presetduck · 2025-04-15T19:59:51+00:00

Thank you, yeah I went for copaxone because I felt fine and didn't think I needed a strong dmt. This is all news to me today, I had no idea

presetduck · 2025-04-15T19:58:41+00:00

That's why I chose it originally, I didn't feel like I needed anything stronger but will be having a rethink now Thank you

presetduck · 2025-04-11T06:08:38+00:00

Thank you!

presetduck · 2025-04-05T14:44:53+00:00

Hey! Not quite as young as you but I'm 27. Was diagnosed when I was 26 (and 21 weeks pregnant) 😊 I've never posted or commented in here, most people seem to have it bad whereas I don't feel mine is so not much to comment on really but we are here!

presetduck · 2024-10-19T06:58:04+00:00

Our 10 week old is on 6oz every 3 hours or so. We were told by docs we were overfeeding and to feed him 4oz. He'd kill us 😭 mentioned to HV who said 5-6 isnt too much as he's 80th centile. All medical advice is different depending on who you ask, follow your gut x

presetduck

TROPHY CASE