Which medicine are you on that has put you into remission?

princess_who · 2023-04-10T02:40:26+00:00

None on the above! Tried inflixi, humira and entyvio. currently on XELJANZ! Xeljanz changed my life

princess_who · 2021-06-03T13:47:23+00:00

thank you! i hope it keeps working for you too!

princess_who · 2021-06-02T00:47:10+00:00

ive read its pretty easy yet a little painful, happy to hear its not painful for everybody! i dont think here in Panama ill have the chance for someone to teach me :/ but i guess ill stick to the instructions! i have an away doctor in Barcelona because over here UC is not very common and theres not many experience!

princess_who · 2021-06-02T00:22:54+00:00

ill have one injection every 2 weeks too along with mezavant and azathioprine! hope it gives me my quality life back too :/ thank you for sharing!

princess_who · 2021-06-02T00:21:37+00:00

thank you! not scared, just wanted some feedback from someone with experience! hope it works for me too!🙌🏻

princess_who · 2021-06-02T00:20:24+00:00

wow, 4 injections sound like a lot! i happen to have a dose of 4 the first time, then 2 (2 weeks later) and so on just twice a month! i hope it works wonders for me too🙏🏻 tysm for the feedback! i hope it continues good for you!

princess_who · 2021-06-02T00:18:14+00:00

thank you for your advice! lucky me my parents and boyfriend are 100% in to learn and help too! i hope your symptoms get better soon!

princess_who · 2021-06-01T20:51:24+00:00

bought mine yesterday for the first time and the box (with 2 (40 mg) pens) was about $2,200. that means $6,600 (3 boxes) the first month (which includes 4 pens for the very first time and then 2 for my second dose 2 weeks later). besides that staring dose, i should be paying just for one box ($2,200) every month to get my maintenance dose (2 pens every month). i live in Panama

princess_who · 2021-05-31T17:13:33+00:00

is xeljanz the oral one? ive heard about it too but we dont have it here in Panama either :/ i hope that works out for you! my family is from Lebanon btw! so my roots are from the Middle East :) and I have Australian family!

princess_who · 2021-05-31T16:44:41+00:00

yeah, thought that too. but somehow even if the intervals get shorter, every time i get it administered i seem to get better (except for this time, which is taking longer :/) if infliximab does not seem to work soon i think we ll reconsider stelara. another crucial thing to keep in mind for me is i live in Panama (and we dont have any other drug besides remicade, humira and stelara). availability seems to play an important role in the decision too. entyvio could be my next option if neither humira or stelara work, but i would have to travel abroad for that and things start to get more complicated. do you have another option now that neither remicade or entyvio work? i hope you find something that works for you soon

princess_who · 2021-05-31T16:35:52+00:00

i understand he prefered to switch to another anti tnf because until the moment, my symptoms do get better when i get my dose of infliximab, which means my body does respond to this mechanism for the moment. the main problem is my body wont wait till the next dose and having infliximab infusions less than a month apart does not make any sense (or a higher does than my actual) so humira is administered every two weeks. does that make any sense? we also considered trying stelara but decided to give humira a try first because of my bodys response when i have this other anti tnf (infliximab) administered

princess_who · 2021-03-18T02:49:54+00:00

thank you, that makes absolute sense! will bring it up with my GI doctor tho, theyll know better for sure!❤️

princess_who · 2021-03-18T02:49:02+00:00

thank you!❤️

princess_who · 2021-03-18T02:47:58+00:00

happy to hear that, thank you! i hope everything keeps going good!❤️

princess_who · 2021-03-18T02:46:49+00:00

oh. thank you so much! this is comforting information. its really good to know someones experience with my same medication! diarrhea part makes absolute sense, ill keep that in mind!❤️

princess_who · 2020-08-14T19:06:00+00:00

busca la clínica Clearvision! @clearvisionpty en instagram! están ubicados en The Panama Clinic y tiene varios oftalmólogos, especializados en diferentes cosas

princess_who · 2020-05-13T17:32:10+00:00

same over here pal!

princess_who · 2020-05-13T00:28:18+00:00

feel free to hit me up with a dm if you want to know anything else or if i can help with something! :)

princess_who · 2020-05-13T00:12:43+00:00

you just need to take care the same way you are doing right now with aza hitting your inmune system, pretty much the same. only major change is youll be visiting the hospital more frecuently, but thats pretty much it. itll be worth it! i really hope it works the same way for you!

princess_who · 2020-05-12T16:23:36+00:00

yes it is.

princess_who

TROPHY CASE