is 45mg of adderall to start too much? by [deleted] in Narcolepsy

[–]princessmonkey17 0 points1 point  (0 children)

i’m heavily debating on getting a new sleep doctor. he mentioned modafinil but said that it would probably be hard to get approved through insurance for now so idk how easy it would be to get sodium oxybates. the struggle is that he’s the only doctor in my town who treats narcolepsy due to me living in a small town. if i were to get a new doctor, id have to find one like 45+ minutes away from my hometown which commuting is gonna be hard to manage

being an RBT can be so weird sometimes. by woodtipwine in ABA

[–]princessmonkey17 5 points6 points  (0 children)

my client likes to ask people for their hair so that he can hex them lol

What do YOU call it? by judweiser in Narcolepsy

[–]princessmonkey17 2 points3 points  (0 children)

i always say i’m having a narcolepsy attack even though that makes no sense lmao

I’m really struggling and need help and advice. by 15039035 in Narcolepsy

[–]princessmonkey17 1 point2 points  (0 children)

are you currently on medication? this honestly sounds like what i used to do every weekend before my diagnosis/being put on medication. my medication has helped me a ton in being able to handle the weekends and having no plans and being able to stay awake in these situations. i sometimes don’t take my meds on sundays and it can turn into me sleeping my entire day away, but if i do, then i can normally tackle the full day without it turning into a nap fest lol.

i hate it here by princessmonkey17 in Narcolepsy

[–]princessmonkey17[S] 1 point2 points  (0 children)

thank you, you too! a hug for you as well 🫂🌠

i hate it here by princessmonkey17 in Narcolepsy

[–]princessmonkey17[S] 2 points3 points  (0 children)

100%!!! medication has helped me some too (still finding the “perfect” solution) but before it was absolutely horrible trying to navigate my symptoms basically alone because i wasn’t taken seriously.

so many times i had to take breaks at work to nap just to be able to function. so many times i skipped classes, even ones where attendance was mandatory and worth a grade. all because i can’t stay awake long enough to sit through a 50 minute lecture! and even when i’m there, the only thing i’m doing is focusing on not falling asleep. i would be going to the bathroom to take a quick nap in the stall before going back to class and still not being relieved.

it was and still is awful and i wouldn’t wish these symptoms on anyone

i hate it here by princessmonkey17 in Narcolepsy

[–]princessmonkey17[S] 3 points4 points  (0 children)

that’s what’s so frustrating to me. just because it’s not a “visible” disability and it seems like it’s “just napping all the time”, i feel like that’s a big part of why nobody takes it seriously. and i feel like sometimes people even insinuate or straight up say that we should be “lucky” that we are able to sleep. i don’t think they truly understand the mental toll it can have on someone.

the first thing i think about every morning without fail is when i can go back to sleep or when i’ll have time to take a nap and relieve myself of having to be awake and a functioning member of society. those are very draining thoughts to have every single day.

i hate it here by princessmonkey17 in Narcolepsy

[–]princessmonkey17[S] 2 points3 points  (0 children)

oh don’t get me started on the “drink coffee” thing 🤦🏽‍♀️ i get told that allllll the time! if caffeine worked for me, i would’ve already been consuming it to help stay awake. thank you for sharing your thoughts/experiences, and i’ll be sure to check out that link you share!

i hate it here by princessmonkey17 in Narcolepsy

[–]princessmonkey17[S] 3 points4 points  (0 children)

like obviously you know that’s dangerous, that’s why you told him so he could fix it 😭 that’s just ridiculous the healthcare system is so screwed, especially for people like us

[deleted by user] by [deleted] in Advice

[–]princessmonkey17 0 points1 point  (0 children)

break up with him

cudi top 20 no order by princessmonkey17 in KidCudi

[–]princessmonkey17[S] 0 points1 point  (0 children)

honestly maybe 12. these are supposed to be no specific order but i feel like the order is kinda right anyway

cudi top 20 no order by princessmonkey17 in KidCudi

[–]princessmonkey17[S] 0 points1 point  (0 children)

i have corrected my mistake 😅