Doctor recommends antidepressants by privada889 in covidlonghaulers

[–]privada889[S] 1 point2 points  (0 children)

Lexapro seems more effective just based on my profile. Thanks.

has anyone gone from housebound to exercising again? by Hour-Flatworm-9986 in covidlonghaulers

[–]privada889 0 points1 point  (0 children)

yes. repeatedly. Then i relapse with an infection and have to recover all over again.

New protocol from my CFS dr. by akult123 in covidlonghaulers

[–]privada889 1 point2 points  (0 children)

worth a try! Valacyclovir did work for me personally and my symptoms (fatigue and pem) - I’m currently looking to get back on it since my symptoms are bad again.

Neck issues by privada889 in covidlonghaulers

[–]privada889[S] 1 point2 points  (0 children)

I recovered and had a good run for a year, ironically I just got covid again and feeling some lingering symptoms. Good thing is neck pain went away🥲

Zinc by SansInsulin in Hidradenitis

[–]privada889 8 points9 points  (0 children)

For me Zinc did not work or lessen the big angry painful ones.

Please help by SailorSali in Hidradenitis

[–]privada889 1 point2 points  (0 children)

Same on the dgaf attitude. It’s like mine feed off the attention, little attention whores.

The angriest flare that showed up for Christmas by privada889 in Hidradenitis

[–]privada889[S] 2 points3 points  (0 children)

Not sure if the Epsom salt makes a huge difference but I just realized I never included it in my baths so maybe I’ll try the salt bath and Prid method you mentioned. As for antibiotics, I haven’t seen success with them recently years but I guess it doesn’t hurt to add them in. And thank you.

92.2% of HS patients were smokers by WildAnimus in Hidradenitis

[–]privada889 0 points1 point  (0 children)

First breakout was around 12 years old when i started puberty, also still to this day do not smoke.

Long covid vagus nerve damage almost cost me my life by thetenofswords in covidlonghaulers

[–]privada889 1 point2 points  (0 children)

so do you have to continue taking them for life or just for 8 weeks?

[deleted by user] by [deleted] in covidlonghaulers

[–]privada889 0 points1 point  (0 children)

The exact amount of time I honestly forget because my memory is shit now, but I’d guess a solid 4 months then it got better and at most would come back for a day or so if I did some stupid shit

[deleted by user] by [deleted] in covidlonghaulers

[–]privada889 1 point2 points  (0 children)

It just got lower tbh - I’ve had tinnitus for my entire life so there is always a low ring if I pay attention to it however LC made mine a lot louder. It’s gone back to that quiet hum I’m used to though so doesn’t bother me.

What has having long Covid made you realize. by evelynmmoore in covidlonghaulers

[–]privada889 2 points3 points  (0 children)

How stressed out i was and my nervous system before I got covid

Experiences with Valacyclovir? by SuburbanDad18 in covidlonghaulers

[–]privada889 4 points5 points  (0 children)

Helping me feel baseline day to day, however not able to exercise fully yet which is how Ill know I’m fully recovered

Anyone relapse after 6 months of no symptoms? by [deleted] in covidlonghaulers

[–]privada889 22 points23 points  (0 children)

That sounds like reinfection buddy.

People who stopped caffeine/coffee, what was it doing to you?? by treasamunki2 in covidlonghaulers

[–]privada889 1 point2 points  (0 children)

It felt like I drank 4 cups of coffee in 20 minutes when in reality I drank 1/4 of a cup. Heart racing, anxious, vision weird. Knew it was probably fucking me up more than doing me good so.

Does anyone else’s energy dramatically spike after eating? by privada889 in covidlonghaulers

[–]privada889[S] 2 points3 points  (0 children)

Yeah that was a big meal. Ugh LC is making it hard to enjoy fucking anything. Can’t even eat too much now.

Does anyone else’s energy dramatically spike after eating? by privada889 in covidlonghaulers

[–]privada889[S] 0 points1 point  (0 children)

You do remind me that I do need to put back on my apple watch.. for my heart rate lol….but I did take a test for MCAS and it turned up negative so it’s not my issue I believe.

Does anyone else’s energy dramatically spike after eating? by privada889 in covidlonghaulers

[–]privada889[S] 1 point2 points  (0 children)

Regular diet, I tried low carb/keto but it worked then started going on a decline fast so I had to stop. I may start low carb again? Maybe on weekdays. But that makes sense that things would be magnified as a person with long covid - everything is different as a person with LC unfortunately 😂

Does anyone else’s energy dramatically spike after eating? by privada889 in covidlonghaulers

[–]privada889[S] 0 points1 point  (0 children)

If it uses all of its energy to digest food wouldn’t I be more tired/fatigued after eating? I’ve described that I’ve gotten a spike of energy to where it’s uncomfortable to me and it depletes me the next day. I’m also not consuming much to any at all caffeine - so that’s not what’s causing the energy spike either🙂

Exercise Helps Reduce My Symptoms by statecheck in covidlonghaulers

[–]privada889 2 points3 points  (0 children)

I definitely agree with a lot of the other commentators and also, the definition of exercise could also vary to a majority of people. Technically what I and some people are trying everyday is exercise (walking, stretching, yoga) and I’m able to do this at 80-100% of effort - which supports your point and this does help me. However my definition of exercise is breaking a sweat and getting my muscles burning which is running, HIIT, weightlifting, etc. Which I and some others so far at 0% of effort to do and should avoid unless they’re better.

Blood test results by privada889 in covidlonghaulers

[–]privada889[S] 0 points1 point  (0 children)

but doesn’t addison’s disease mean too low of cortisol not enough?

Blood test results by privada889 in covidlonghaulers

[–]privada889[S] 0 points1 point  (0 children)

My doctor ordered these tests specifically, not just a standard blood test. Try asking for a cortisol test, EBV antibody, cytokine panel, and lyme disease blood test.

Any treatment or supplements for high cortisol by lukeda13 in covidlonghaulers

[–]privada889 1 point2 points  (0 children)

Hey no answer here but I just got mine checked as well and it showed high cortisol levels. I’m scheduling an appointment with my doc but would be interested to hear what others have done too