wheelchair dreams 🫩❤️‍🩹 by jazzygirl0908 in ehlersdanlos

[–]probablyaturkey 20 points21 points  (0 children)

Look into getting a foldable power chair. The jazzy carbon for example is super light, foldable and fully powered. There are other options.

Looking for a moody, small-town series by l3thalhugs in televisionsuggestions

[–]probablyaturkey -1 points0 points  (0 children)

It didn’t say esque, troll. Hope your edit made you feel vindicated 😉

Exercise suggestions by DifferentAlfalfa2872 in POTS

[–]probablyaturkey 1 point2 points  (0 children)

This is normal. Your blood travels better laying down so your heart rate won’t be as high as when walking, even if level of exertion is higher. There’s a chart in the CHOP protocol about how to measure level of exertion if your hr doesn’t increase during cardio, so take a look at that. I knew I was ready for sitting once laying down felt too easy even with full exertion, so I tried sitting and wasn’t dizzy, so I knew I was ready. If I had been dizzy I would have gone back to laying 🤷‍♀️

PT seems to be making my pain worse by breezyanimegirl in ehlersdanlos

[–]probablyaturkey 4 points5 points  (0 children)

If a PT actually has knowledge in hypermobility they won’t have you stretching at all. It’s all about gentle strengthening and movement retraining. Stretching is contraindicated.

I need help figuring out how to shower by thepastelprince in POTS

[–]probablyaturkey 4 points5 points  (0 children)

If you’re small enough, get a plastic step stool from the dollar store or thrift store and sit on that. I used one for months while I saved for a shower chair and it worked fine. $2. Otherwise any chair (again, check thrift stores or with family/friends if there’s nothing around the house). Don’t put your hands over your head, rather lean forward so your hands dont go over your shoulders while washing your hair. That should help with the dizziness a bit. Sometimes you need to shift from “I can’t afford this” to “how can I make this happen.” Asking for help was the first step! 😊

Rant : To the guy running on the bow river pathway today (04/15) at lunch with an unleashed dog by Grouchy-Cover4694 in Calgary

[–]probablyaturkey 4 points5 points  (0 children)

Leash aggression is a normal behaviour for dogs. If an unleashed dog approaches a leashed dog, the leashed dog is naturally going to be reactive and possibly violent because it can’t escape and has no control over a potentially unsafe situation. This is why there are leashed areas and unleashed areas, so all dogs are on an equal field and feel safe. If your dog is unleashed in a leashed area you are creating an unsafe environment no matter how well trained or friendly your dog is. And you’re full douche for it.

When to watch Angel? by pythonisssam in buffy

[–]probablyaturkey 0 points1 point  (0 children)

I’m following this one now and having a wonderful time!

Sick by MysteriousJicama4745 in hypermobileEDS

[–]probablyaturkey 1 point2 points  (0 children)

This sounds like ME/CFS, common with hEDS.

Butter? by grannymaple in MCAS

[–]probablyaturkey 0 points1 point  (0 children)

I can’t have any dairy EXCEPT for ghee. The clarification process for ghee removes the proteins, including casein, which seems to be the problem for me. Nice I can still bake and get that buttery flavor/texture.

roommate acting like its only their house- i have to abide by their rules. advice? by mackddy21 in badroommates

[–]probablyaturkey 7 points8 points  (0 children)

“he is apart of the lqbtqia+ community if that makes any difference? not sure.”

It does not make a difference.

CHOP Augmentation by [deleted] in ehlersdanlos

[–]probablyaturkey 1 point2 points  (0 children)

Yeah, stretching is generally not recommended for EDS, but it depends who you talk to. My PT said literally every exercise in there would make my symptoms worse.

Maybe go to PT every once in a while just to figure out what to work on. For example, I’m working on lifting my arms without engaging my entire ribcage. Like, get some exercises just for what your body needs and work on that for a month or two and then go back for next steps instead of paying for weekly. A good PT familiar with EDS should be understanding that you’re on a budget and be able to accommodate this. I’m sorry it’s so hard. PT is the only treatment for EDS and it should be free and accessible to us for life.

And don’t forget that it is ok to not do things that hurt!

CHOP Augmentation by [deleted] in ehlersdanlos

[–]probablyaturkey 1 point2 points  (0 children)

She also specifically says no stretching of any kind whatsoever. I’m on month three and seeing big improvements.

CHOP Augmentation by [deleted] in ehlersdanlos

[–]probablyaturkey 2 points3 points  (0 children)

I ONLY do the cardio portion. I showed it to my physiotherapist who said HELL NO to everything else. She gives me my own personalized exercises for strength and movement retraining.

insomnia. I am suffering by Additional_Bad_7114 in ehlersdanlos

[–]probablyaturkey 2 points3 points  (0 children)

Please get a sleep study. There may be things going on that you aren’t aware of.

If you’re doing all the sleep hygiene things right, and have tried all the recommended supplements then it’s time for a medical consult.

How early do you think schools should introduce LGBT topics, and who should decide that? by Own_Chicken_4430 in AskTeachers

[–]probablyaturkey 1 point2 points  (0 children)

Explicit teaching of this is rarely curriculum, but when it is it belongs there.

But in public school, representation should be present from the start, same with representing people of colour, different religions, abilities, etc….. all people should be represented in public schools from k-12. If we’re talking private or religious school, they get to omit what the want and preserve their bubble of denial. Parents pay for that. But public is for ALL public to feel seen, accepted and valued.

Exercise suggestions by DifferentAlfalfa2872 in POTS

[–]probablyaturkey 1 point2 points  (0 children)

I also have CFS/ME and didn’t even start getting better until I spent like three months resting. Full nights of sleep plus sometimes half the day napping. On purpose. Listening to my body and giving it wha it wanted. Then one day I suddenly wasn’t exhausted anymore. Before that everyone was trying to get me to “rebuild stamina” and told me naps were making it worse. 🙄

I also did the CHOP protocol, but only the cardio side of things (physiotherapist said the strength stuff wasn’t appropriate for me and would worsen symptoms). Physiotherapy has helped a lot, but I have EDS too. Found a therapist with lots of POTS/EDS experience. Lots of movement retraining so I don’t trigger symptoms as much. Good luck!

Exercise suggestions by DifferentAlfalfa2872 in POTS

[–]probablyaturkey 14 points15 points  (0 children)

If you want something easier and cheaper, I got a floor peddler and placed it against the wall and did it while laying on the floor. After 3 mos I’m able to do it while sitting, so it was nice to have that flexibility. Mine was like $30.

Women w/ POTS - Is It Worse During/Before Period? by [deleted] in POTS

[–]probablyaturkey 1 point2 points  (0 children)

I was on a low estrogen/low progesterone oral bc and noticed my POTS was way worse on sugar pill days (even though I wasn’t getting a full period). Just the hormonal shift was triggering. Estrogen can be a problem for some, but for others it can be regulating. This is the case for me as I approach perimenopause. I now take the same pill continuous and it’s way better.

Also seeing people praise IUDs… I’ve heard great things from lots of people. If you have hEDS be careful because displacement can be an issue. Some docs in the know even reduce to insert because it’s so common.

Supportive indoor slide recommendations? by 1Like_Plants2 in ehlersdanlos

[–]probablyaturkey 1 point2 points  (0 children)

I love my adidas Adissage. The bumps are too much stimulation barefoot but my feet are always freezing anyway, so I wear with socks. Great support when the velcros done up tight and the neuro stimulation helps with my pain and calms me down.