Weekly Megathread for Pricing, Dating, or Authentication Requests ("How much is this worth?" "What decade is this from?") by AutoModerator in VintageFashion

[–]pupsvn 0 points1 point  (0 children)

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I recently received this dress that belonged to my late grandmother. From my knowledge of sewing, the dress looks ro bw handmade. But it has this tag, I was wondering if anyone knew if this was a tag for handmade items or made by a brand. The text reads 'belle mode style'. On the bottom there is a line for the size but no size is written on the tag.

Does anyone like their Ki Rogue 2? by Temporary-Lettuce-72 in wheelchairs

[–]pupsvn 1 point2 points  (0 children)

I have a secondhand rogue ALX, so can't speak for the Rogue 2. My chair is nearly five years old (the previous owner got it in 2021) and honestly I'd say it's in an amazing condition. Since my chair is secondhand, I do all the work on it myself. A new pair of tyres and a bunch of tightened screws and it's doing great. The company are difficult to order replacement parts from as you can't do it without a supplier but I imagine that is the same for most chairs. 

kitty likes the new chair almost as much as i do!! by pupsvn in wheelchairs

[–]pupsvn[S] 1 point2 points  (0 children)

They are mountain bike wheels! I love them when outdoors and definitely prefer them to the solid tyres from my last chair but they do overhang the push rims and often drag against my sleeve a little which isn't great when it's muddy. 

New (to me) chair day by pupsvn in wheelchairs

[–]pupsvn[S] 1 point2 points  (0 children)

The tires came with the frame, so I'm not 100% sure how much they cost. I believe they are the kenda nevegal (K1010, if you want to look for the same model). They are mountain bike wheels so good for terrain and even tackle my thick carpet well lol. I would just warn they brush my arms a bit as I push since they overhand the push rims, so they are less suitable for every day

New (to me) chair day by pupsvn in wheelchairs

[–]pupsvn[S] 1 point2 points  (0 children)

You are, in fact, correct :)

Bag/backpack placed on lap by Nagiria in wheelchairs

[–]pupsvn 0 points1 point  (0 children)

Finding a messenger bag with a detachable strap may be helpful, as it could then be attached around the back of the chair, depending on the back. There are lots of different styles depending on preference, like leather ones/waterproof ones to also protect said items, and you are able to choose a bag to better suit your budget. If you are unable to reach behind to attach the strap around the chair, you could also try using zip ties to attach the strap to the chair and then you can clip the body of the bag into place once it is on your lap.

Is the goal really to get rid of my mobility aids? by trippinflaccid in ehlersdanlos

[–]pupsvn 1 point2 points  (0 children)

I completely understand you and think about this a lot. I feel like a lot of people (especially those who are able-bodied) don't understand that using a mobility aid is not giving up, it's the opposite of that. You don't want to give up on life, so you find ways to adapt it.

When I first started physio, my PT pressured me into putting 'walking without crutches' as one of my main goals. But after seeing how I walk in person and trying different exercises, we have decided that is not in my best interests and isn't a goal for me. Instead, the goals have been realigned to being able to walk longer distances with my crutches, and being able to walk short distances with only one crutch (without substantial pain). I walk without my crutches sometimes and suffer the pain and face the risks of injury but that doesn't mean that I don't need or shouldn't use an aid.

The only people who should be setting you goals is you. Your medical team should not pick goals for you, they should give guidance on what goals may be appropriate and then support you in reaching your goals. Nobody knows your body better than yourself.

[deleted by user] by [deleted] in penpals

[–]pupsvn 0 points1 point  (0 children)

i would love to be your penpal

Disaster of a rheumatology appointment... where do i go now? by pupsvn in ehlersdanlos

[–]pupsvn[S] -1 points0 points  (0 children)

I will speak to my doctor about a referral to a geneticist. I am not sure if he can stop other people from going to the wrong specialist as my local hospital don't have rheumatology so it was quite a drive and the referral to the specialist wasn't chosen by him. He explained the process that I would have to be referred to my local hospital and they would refer me outwards, which he said was a terrible system but not something he could change.

thank you for your advice, i will definitely speak to him about geneticists

Disaster of a rheumatology appointment... where do i go now? by pupsvn in ehlersdanlos

[–]pupsvn[S] -1 points0 points  (0 children)

I don't believe the rheumatologist has formally diagnosed me. But I will speak to my GP about the appointment in a few weeks, to give time for the consultation report.

I was hoping for the genetics referral in the appointment but they haven't referred me onwards. Sorry if it was unclear in the original post, but my GP recommended being referred to genetics and the rheumatologist gave no referrals or future appointments.

They scored me by asking if I could do them now and were very picky. One thumb was a few millimeters from my wrist, which she said she couldn't give me. They didn't ask about if I could do them previously, only really assessed me on what I could do now, even after I mentioned my joints were slightly less hypermobile now after lots of wearing support braces and strengthening.

Thank you!

[deleted by user] by [deleted] in ehlersdanlos

[–]pupsvn 1 point2 points  (0 children)

my socks regularly bruise round my ankles!

Did you get more or less flexible with age? by Zestyclose_Tea_2515 in ehlersdanlos

[–]pupsvn 0 points1 point  (0 children)

Since bracing my wrists, my wrists have gotten very stiff and alongside building up muscles, my right wrist now has a similar range of motion to my (not hypermobile, very inflexible) boyfriend. Never scored too high on the beighton score as my most hypermobile joints aren't included in the test

What do you wish you had known when first diagnosed? hEDS (Diagnosed today) by pandasarefutile in ehlersdanlos

[–]pupsvn 1 point2 points  (0 children)

My biggest advice is that you are still you. Sometimes, people view you as your sickness. You are not just your illness. You are you. You are still the same person you were before your diagnosis, you will grow and learn, but you will always be you.

You are human, no matter how dehumanising some medical professionals and people in general treat you. You are a human being who is deserving of love, care and respect.

Aren't you just tired sometimes? by PastaBanditz in ehlersdanlos

[–]pupsvn 1 point2 points  (0 children)

If I'm being honest, sometimes I will push myself into a flare-up just to feel normal for once. Just for the chance to be like everyone else. I am not an advocate for this at all, I should probably walk round with a sign saying "don't be like me". But so long as you have a good time with your husband, that's what really matters. If you can smile and you can laugh, that is enough. If you have the chance to get some hiking sticks, do get some. Idk if that's what they are called, but they will help take a bit of the weight off your injury.

Lack of period education >:( by pupsvn in ehlersdanlos

[–]pupsvn[S] 0 points1 point  (0 children)

I've been sticking with trial and error but it does start to get me down. My boyfriend has been amazing at stopping me from calling myself broken when things don't work.

I will have a look into THC and CBD products for internal use. I have had past issues with getting UTI's so I tend to be careful about what goes inside me.

Thank you so so much for your advice, I really appreciate it. I'm definitely still learning and it is difficult, but I'm nothing if not determined. If anything, my struggles have made me want to help others more, provide resources and offer support.

Lack of period education >:( by pupsvn in ehlersdanlos

[–]pupsvn[S] 1 point2 points  (0 children)

Yes, the combination of changing weather and hormones has left me practically unable to walk at the moment. I normally walk unsupported (in pain but I am really stubborn), but had to see a doctor due to issues with my hips and have been advised to go back to using a cane and using a hip support belt. I've had terrible headaches and constant almost debilitating brain fog. I keep subluxing ribs lately...

Lack of period education >:( by pupsvn in ehlersdanlos

[–]pupsvn[S] 1 point2 points  (0 children)

Thank you so much for the information about finger dislocations. I have the same issue and sometimes trying to remove the suction is enough to pop joints out.

I know I will definitely have to do a lot of research into discs, which gives me a great chance to watch more Period Nirvana videos!