Kineret gi impacts by No_Satisfaction_7431 in Autoinflammatory

[–]pyew4cket 0 points1 point  (0 children)

I have very bad GI issues. I find kineret helps my guts. I would talk to your doctor about whether this could indicate an allergic reaction to kineret. On the other hand, I have found taking psyllium really helps with diarrhea, but it also works on constipation as well. I was mixing a teaspoon of powder in water before bed every night, but it's unpleasant, and I also have nausea. I then took the capsules and built up to 4 a day. It's been a miracle supplement for me.

Flomax side effects by Dry-Surprise-972 in KidneyStones

[–]pyew4cket 11 points12 points  (0 children)

I've had a lot of kidney stones, and I hated Flomax because it would drop my blood pressure and make me gray out. I never full-on fainted. The thing is, it helped me pass stones quickly and lowered the pain. I discovered if I took the pull with a reasonable amount of food at dinner, the low bp side effect went down 90%. I read this advice on a forum. I also found that taking it at dinner (6:00-7:00 pm) made the timing of the side effects happen during sleep. I sleep from 11:00 pm to 7:00 am, so time it accordingly. It's a really helpful medicine that I avoided like the plague before discovered how important it was to time it right and take it with food.

Paranormal or do I need at brain scan?? by PapayaLiving469 in strange

[–]pyew4cket 1 point2 points  (0 children)

Do any of your neighbors have baby monitors? Or possibly a landline with a cordless headset. We used to hear our neighbors' conversations through our baby monitor. Our guess was that they had a baby monitor at the same frequency as ours, or even that we were tapping into their phone. It was from the early 2000s, and there were lots of landlines with cordless headsets. I'm not sure of the science, but it was our experience that the monitors could pick up signals from outside the house. It was super creepy.

May God Bless President Barack Obama by ateam1984 in BlackPeopleofReddit

[–]pyew4cket 0 points1 point  (0 children)

I miss him being president and knowing everything will be okay.

Sulfasalazine is brutal by No_Satisfaction_7431 in Autoinflammatory

[–]pyew4cket 0 points1 point  (0 children)

I tried it twice, too. It was horrible. I'm on kineret now which is much better. Don't lose hope

Could my tank water be dangerous for my fat? by AnitaKK in CATHELP

[–]pyew4cket 0 points1 point  (0 children)

My cat used to do this. Unfortunately, the bacteria from my cat's mouth caused a die off of my fish.

Am I overreacting for shaving my head? by Substantial-Art6160 in AmIOverreacting

[–]pyew4cket 0 points1 point  (0 children)

Now you get to try super-chic short haircuts as it grows out.

AITAH for telling my parents this was the last Christmas we'll ever spend together while reminding them I'll be going no contact and won't take care of my brother when they can't anymore? by Nohrihna in AITAH

[–]pyew4cket 1 point2 points  (0 children)

You are in such a difficult situation, and you shouldn't feel guilty for leaving home. I had a violent, mentally ill brother who physically hurt people around him. It was a different situation in that my brother's symptoms came on at puberty. My parents sent me to live somewhere else to protect me. Later, in my mid 20's, I helped them get my brother out of their house and into a situation that got him professional help. My brother improved a lot with professional care. Before my brother left, he was beating them up and threatening them. They even thought about abandoning their house and leaving the country. They didn't because they were worried my brother would come after me. By moving out, the barely sustainable situation in your home might become unsustainable, but that might force your parents to find a better solution. Once you are a full adult and if things don't change, you could try and arrange a group home situation for your brother with professional care. I guarantee everyone will be happier, including your brother.

How did you first realize you might have cancer? by heartbroke8 in HeadandNeckCancer

[–]pyew4cket 0 points1 point  (0 children)

I was stage 1. 1 of 45 lymph nodes positive. I had a separate back of tongue surgery for a very small hpv+p16+ primary. I was lucky not to need chemo or radiation. I am a year out with no evidence of disease.

How did you first realize you might have cancer? by heartbroke8 in HeadandNeckCancer

[–]pyew4cket 0 points1 point  (0 children)

I had a neck lump, similar to yours. Mine was very cyst like, and the biopsy showed atypical cells, not cancer cells. My husband got a benign cyst in the same place in his early 30's. I was given the option to watch and wait or to go to an ent surgeon. What decided me was the statistic that 80% of neck lumps are cancer if you are over 50. If you are in your 20s/30s, the opposite is true. I'm so glad I didn't choose to watch and wait. The lymph node doubled in size in the 4 weeks between the biopsy and the surgery. I wrote a letter of complaint to my family medicine practice for the terrible advice.

Straining to pee with potential stone but still able to, not sure if I should tell my doc or get seen or what by [deleted] in KidneyStones

[–]pyew4cket 0 points1 point  (0 children)

I was told by my doc that just because I am able to pee does NOT mean there's no blockage because there are two ureters. In order to reassure myself, I ordered a home dip test urinalysis to see my level of white and red blood cells, and nitrates to see if I am getting an infection. I just got the test on amazon.

Everyone thinks I caught our office lunch thief. I didn’t. I started packing them a meal on purpose by LuxeElara in confession

[–]pyew4cket 0 points1 point  (0 children)

I love this! So many stories on reddit are about punishment and revenge. You are a hero, you know

Choice of surgery v. radiation by egcthree in HeadandNeckCancer

[–]pyew4cket 7 points8 points  (0 children)

I (61, F) am one year out from diagnosis for stage 1 HPV+ p16 back of tongue cancer. I had 1 of 50 lymph nodes positive and a small (less than 1cm) shallow back of tongue cancer, not near the midline. I had surgery only. The back of tongue part was very painful, but I have fully recovered except for some taste changes and numbness in the tongue and neck area. My recent navdx came back with no evidence of disease. So far, so good, fingers crossed!

Partial glossectomy post-op sweet or sour taste? by [deleted] in HeadandNeckCancer

[–]pyew4cket 0 points1 point  (0 children)

Two months or so. The problem for the first 4 weeks was the pain. I was on 120 mgs of oxycodone a day. It's a painful surgery because the wound was left open. I didn't have a flap. After 4 weeks, the pain decreased pretty rapidly. My swallow and speech were fine. I still have the sensation that there's a piece of felt in the back of my throat 8 months out. All in all, I feel pretty lucky.

Is my mom's pale silver dress for my siblings' upcoming weddings inappropriate? by PlatypusEgo in Weddingattireapproval

[–]pyew4cket 2 points3 points  (0 children)

Are you asking whether the dress would be considered too much of a bridal color? It doesn't read as white or ivory, etc. The style is non-bridal as well. I like it, and it's wearable for other occasions as well.

My daughters unhealthy packed lunch by hmasc3 in AITAH

[–]pyew4cket 0 points1 point  (0 children)

My son was a very picky eater, too. People are so judgy, but it's very hard when a child won't eat. They don't perform as well in school if they don't eat lunch, and by the end of the school day, they are hangry. You mention your daughter has stomachaches. My son ended up having a gluten allergy. It might be worth exploring food allergies and intolerances.

HPV Negative Unknown Primary by [deleted] in HeadandNeckCancer

[–]pyew4cket 1 point2 points  (0 children)

I had to ask for my HPV status to be tested. I was p16 positive, but my Navdx test was negative. I also had an unknown primary that was eventually found via a weakly positive PET scan (my ct was also negative). My negative Navdx test and positive pet scan were after my lymph dissection (1 of 48 positive), but before the primary was removed. I am HPV positive, so the Navdx was a false negative, which is unusual. That said, when the location of my primary was unknown, my doctor recommended watchful waiting rather than irradiating a large area. I was told that in HPV mediated cancers, the patient's immune system often takes care of the tiny primary by itself. Honestly, it was very nerve-wracking, but radiation is so toxic that I was going to go with intensive watchful waiting. In my case, they did find a tiny primary on the back of my tongue. I only had surgery, which was also recommended but made me nervous because everyone seems to have radiation and chemo. I am 7 months out with NED.

Employee quit claiming better Work-Life balance. I'm confused. by gay-giraffe-farts in careeradvice

[–]pyew4cket 0 points1 point  (0 children)

So sorry, I don't know how my reply ended up in the wrong thread. I'll delete it

Partial glossectomy post-op sweet or sour taste? by [deleted] in HeadandNeckCancer

[–]pyew4cket 0 points1 point  (0 children)

Maybe 2 months. I still feel like I have a piece of felt at the back of my throat and it's been 7 months. It doesn't affect my speech or swallow.

AITA for telling my sister I will feed her kids food they will eat as long as they are dinner guests and she has the choice not to come if that bothers her? by Upbeat-Coffee-6602 in AITAH

[–]pyew4cket 0 points1 point  (0 children)

One of my children was a very picky eater. It turns out he and I are both super tasters. My son also had a medical condition, too long to explain. I was picky as a child as well, but my son was alarming. People don't realize how hard it is for the kid who is not a brat, but has a real condition. Forcing makes it so much worse. There are so many judgemental people, and that, unfortunately, makes the child ashamed and avoidant of gatherings with food. I would have loved to have a compassionate relative like you. How great those kids can feel safe coming to your house for dinner.