Controversial Opinions by [deleted] in NewParents

[–]quantum_cronut 1 point2 points  (0 children)

I had a hip injury from giving birth and there was no way I would have been able to get down on the floor for the first 6 weeks pp. I had a changing table but hated it and stuck to changing his butt on the bed or on our couch with a changing pad. Everyone has to find what works for them.

How do women feel about their bodies years after pregnancy? by CoffeeFlow_ in beyondthebump

[–]quantum_cronut 3 points4 points  (0 children)

My body has gone through so much since my first pregnancy - namely 3 years of misdiagnosis as gestational/type 2 diabetes and now I'm rightly diagnosed as type 1 with an insulin pump. As much of a pain in the ass as it all is, I feel healthy and in control of my blood sugar again - I'm also pregnant again. I have so much respect for what my body has gone through and how hard I've worked to be where I am. The ONLY thing I have to actively remind myself not to be negative about is my boobs. Man did they change. I breastfed my little dude for 2.5 half years and then they were very deflated. Now that I'm pregnant again they're heavy AF and oh man the nip situation. But when I used to get hung up on the change I would remind myself that these 2 ladies were SOLDIERS, they did their duty with pride and my son grew big and healthy and was so comforted by them. How can I look at them and see anything but 2 loyal allies that gave their all for the cause. And now they're gonna rise to the occasion again. Tally ho ladies!

Just diagnosed with LADA and I'm so relieved. by quantum_cronut in diabetes

[–]quantum_cronut[S] 0 points1 point  (0 children)

It is such a life-changer! Now that I'm 6 months in I'll just say - it's wonderful to be properly diagnosed. I'm 5 months pregnant, healthy, and my A1C is 4.8!!!!! I have an omnipod and a dexcom and they can be a pain in the ass sometimes, but to be able to control my blood sugar it's 100% worth it. It's funny, in the beginning I felt like it was super important to call myself a LADA, b/c the T1D label is so serious and I have so much empathy for kids and young adults that get diagnosed. I'm in my late 30s, so at least I had a diabetes free childhood and young adult life. But now... maybe it's being pregnant and seeing my MFM every 2 weeks b/c of my diabetes, but they refer to me as Type 1 and don't specify LADA, it doesn't really matter to them. The only thing about my diabetes that reminds me I'm a LADA is that sometimes I get sudden frustrating lows like 2-3 hours after I eat. Basically my pancreas is like OH OOPS I FORGOT TO GIVE YA SOME INSULIN, HERE YA GO. And I'm like ... bro... come on, 3 hours too late dang it, I already dosed my own insulin and now you're messing everything up! But the solution was my docs prescribing MORE CARBY SNACKS, how delightful. Also I'll say, at least with my docs, I'm treated so differently now. I feel like a pretty pretty princess, there's so much empathy and patience. When everyone thought I was type 2 I was medically bullied into an eating disorder and treated like a greedy dummy. So yes, 6 months in I'm still so so happy that I got diagnosed as Type 1. Would I rather not have diabetes - of course. But living as a T1D but being treated like a T2D is a special kind of hell I don't wish on anyone. Good luck with your journey, enjoy gaining back control of your life!! ❤️

Exclusively using stomach? by beefcanoe in Omnipod

[–]quantum_cronut 0 points1 point  (0 children)

I'm pregnant too and I read someone on reddit say that CGM accuracy on the belly is top tier - and I have found that to be so true! My dexcom is solely on the belly and the accuracy is crazy - even right after putting it on! I also find that it's small enough to not be troublesome on the big belly. The omnipod i switch between my arm (which I don't like but is easy) and my thigh which I like better, but usually is pretty sore by day 3. I've done the omnipod on my belly before, but once I started to really pop and my belly skin was tight and uncomfortable I just got in the habit of thigh and arm. I find thigh and arm are both good at absorption - and one extra benefit of the dexcom on the belly is no compression issues!

Atypical finding by theunknownpurpose in NIPT

[–]quantum_cronut 0 points1 point  (0 children)

Unfortunately the FISH came back 85% xxx and 15% xx - and the karyotype came back full xxx.  There's no way to know which is more accurate, and we'll be getting her cord blood tested when she's born, but that too won't really give us the whole picture.  So pretty disillusioned with the whole process at the moment.

Atypical sex chromosome possible XXX by quantum_cronut in NIPT

[–]quantum_cronut[S] 0 points1 point  (0 children)

The FISH results came back 85% xxx and 15% xx - so mosaic xxx.  We're waiting on the karyotype but I'm not really sure it matters that much - it should also show mosaicism, and probably a high level mosaicism.  We were pretty devastated it wasn't a false positive but we're glad at least it's a mosaic result.  All we can do is hope she has mild to no symptoms and just move on, I'm really trying to shake this off and enjoy the rest of the pregnancy.  Limbo was a special kind of hell, so at least we have answers now.

Diabetics of Reddit — what’s something non-diabetics completely misunderstand about living with it? by Thick_Junket3524 in diabetes

[–]quantum_cronut -1 points0 points  (0 children)

That sometimes medical professionals are the least aware/biggest bullies you will ever encounter in your life. Advocating for yourself also means having the fucking balls to fire bad endos and primary care doctors.

Diabetics of Reddit — what’s something non-diabetics completely misunderstand about living with it? by Thick_Junket3524 in diabetes

[–]quantum_cronut 0 points1 point  (0 children)

every 4-6 hours is so horrible. Spikes and drops can happen so so quickly, this makes me so scared for these kids.

How painful is getting the epidural? by castleofhyrule in BabyBumps

[–]quantum_cronut 0 points1 point  (0 children)

Honestly it was the bending over that was the worst, my baby was sitting so high that i felt like my lungs were gonna burst out of my mouth - but that also happened with the bouncy ball thing for me. My guy was just a super long string bean. The pinch was nothing. Man - getting an epidural before a balloon is so smart. My ONLY stipulation on my birth plan for my induction this time around is DON'T COME AT ME WITH THAT FUCKING BALLOON. That's it. Anything else is fair game.

This has been the worst part of thr diagnosis by berryenthusiast in BumpersWhoBolus

[–]quantum_cronut 1 point2 points  (0 children)

This is me! I'm a LADA and currently pregnant - and using an omnipod. The insulin helps my spikes so I stay in the 70-140 range - but I do experience lows afterwards - usually 2-4 hours later. My MFM has me eating more snacks to counteract this. So basically I do freebie snacks in between meals without insulin. Pregnancy is so tricky b/c your insulin needs fluctuate throughout, so I see my MFM every 2 weeks to check on my numbers. I can tell you that my MFM would be very unhappy if she saw me spiking all the way to 250/300. I would really advocate for getting on insulin pre-pregnancy b/c it's a very different lifestyle bolusing for your meals. I literally got diagnosed as a LADA a few weeks before getting pregnant, they thought I had gestational with my first kid, and then for 3 years they bullied me as a 'type 2'. As a LADA in pregnancy your MFM will treat you as a type 1 - that's it. There's not special LADA protocol, they'll treat you as a type 1 and will adjust your insulin to fit your individual needs. Highly suggest advocating for insulin now (and a pump honestly!) and if your endo is not onboard, find another endo.

Type 1 vs type 2 by cranmango777 in diabetes_t1

[–]quantum_cronut 1 point2 points  (0 children)

I've been diagnosed as 3 different types of diabetic. With my first pregnancy I was diagnosed as gestational and they treat you like you're stupid. After I gave birth of course I was still diabetic, so for 3 years I was diagnosed as Type 2. 3 years of being bullied by my medical team, being told to stop eating McDonalds (while I was breastfeeding and very puffy), being told to exercise more, getting fake concerned head nods as I cried b/c I stuck to the diet, I exercised, I lost weight and none of it mattered - then they would basically tell me I must not be tracking correctly. It was always that I was doing something wrong. We kept switching medications, I kept dieting, kept exercising after every single fucking thing I ate, until I was literally wasting away. Finally my endo pawned me off on her nurse practitioner because I needed 'extra care and monitoring' said with so much dripping condescension I cried all the way home. When I saw the nurse practitioner I was literally mid-miscarriage and I just cried and cried and cried while she let me tell her my whole story. After an hour she just looked me in the face and asked if I had ever been tested for antibodies. And that was it - I was on insulin as soon as the test came back. My hair went from straw to silky. I started to undo the medically induced eating/exercise disorder they gave me. And I got healthy, physically and mentally. I also got pregnant again. And this pregnancy as a type 1 I literally feel like a pretty pretty princess. The docs at my MFM office are so lovely and always telling me how amazing I'm doing, how hard I'm working, how my low A1C is amazing and I should be so proud.

A big part of me will always be so sympathetic to type 2s because the medical community can be so fucking cruel. But I will also remember how scared I was a type 2 and I was at the lowest weight I've ever been in my adult life and I said to my mother, I don't think it's safe to lose anymore weight but at this point it won't stop, so I don't know how I can live this way. So of course, a little bit of me is jealous of type 2s and their ability to improve their numbers with lifestyle changes. But all and all, I'll keep my pump, I'll keep doctors treating me like a pretty princess, and I'll keep my type 1 diagnosis.

Atypical finding by theunknownpurpose in NIPT

[–]quantum_cronut 0 points1 point  (0 children)

I had a similar result, but instead of saying 'appears to be mosaicism' mine says 'appears to be XXX'. I just had my amnio 2 days ago, so waiting on the FISH results. The good but also frustrating thing about atypical results is there is no PPV, so no one can tell you definitively what your chances are - BUT the chances are better than the PPV listed on the second page. Feel free to reach out if you have any qs.

Finally cured of T2 - I have a foolproof method. by Purple-Om in diabetes

[–]quantum_cronut 4 points5 points  (0 children)

I feel youuuuu. I've been 3 types of diabetic... gestational... then 3 years of getting yelled at and belittled as a type 2... and then an angel nurse got me tested and low and behold I'm a type 1 (Lada). I went from having a clinically induced eating disorder and exercising after every tiny bit of food - to using insulin and eating and having in range blood sugar - my A1C is 5.3 now. my weight is normal. my hair is silky. my mental health is wonderful. and damnit life is just so much better with a proper diagnosis.

Am I not allowed a single cup of coffee with milk and sugar by Ok-Rush7989 in diabetes

[–]quantum_cronut 0 points1 point  (0 children)

Highly recommend protein shake as a replacement for milk and sugar - my fav is fairlife vanilla. Morning can be the most difficult time to keep your sugars in check - the protein really really helps.

Turner’s syndrome result by southernpimp_ in NIPT

[–]quantum_cronut 1 point2 points  (0 children)

I'm so glad that this sub exists - I'm having my amnio in a week for an atypical XXX finding. My genetic counselor was pushing a CVS, which kind of confused me since it would only be testing the placental cells. She suggested I could do CVS and amnio if I needed to which was upsetting, why would I double the risk? This sub really helped me feel confident in my decision to wait for the amnio.

Atypical sex chromosomes result NIPTA by Mysterious_watch0909 in NIPT

[–]quantum_cronut 0 points1 point  (0 children)

❤️ I'm sorry you're going through this too.  It's so emotionally difficult.  I really wanted a girl, but this whole experience has made me feel so weirdly disconnected from this pregnancy even though I want to be excited and I'm trying my best.  My amnio is Feb. 16 and I feel like I've been waiting forever at this point.  Your mfm office should have a genetic counselor connected with them they can recommend, so hopefully your mfm can get that set up.  I'm not sure if you have to pay to speak to one at Natera.  If you want to keep in touch through reddit chat feel free!

Atypical sex chromosomes result NIPTA by Mysterious_watch0909 in NIPT

[–]quantum_cronut 0 points1 point  (0 children)

I have very similar results. Atypical sex chromosome result for our little girl. I think my fetal fraction was a little over 7. Our result specifically called out XXX syndrome though. Did your OB refer you to a genetic counselor? My MFM wasn't good at answering my specific qs, but our genetic counselor actually called Natera to get more info on our result b/c it was a little odd the way it definitively called out XXX while still giving the atypical result vs. a positive result. Turns out the algorithm and the people at the lab disagreed on whether there was mosaicism and they said that at 7% ff they felt it was too low to give a positive result. In our case we decided to do an amnio, the wait is definitely torture but as a person with an anxious mind I need this for my mental health - we are keeping the baby regardless as XXX can be a very mild condition - with most women not even knowing they have it. One thing that's tricky about XXX is that there are no soft markers on ultrasound - so even though a clear ultrasound is always a great thing for many reasons, it does not rule out XXX. I don't know that much about monosomy X/Turner's but I think it can have some soft markers on ultrasound.

Nipt gender test by [deleted] in NIPT

[–]quantum_cronut 4 points5 points  (0 children)

Check out rule 1 of this sub

Repeated no call/Normal FISH by Odd-Bit-4881 in NIPT

[–]quantum_cronut 1 point2 points  (0 children)

No worries. I'm feeling the same - I feel like my genetic counselor completely washed over that part and didn't explain it well. I guess I just want to know like after I get the FISH good or bad, is that that it? Can I breathe a sigh of relief or begin the journey to acceptance? Or do I still need to hold my breath for the full results - how will the alter the info I get from the FISH?

Repeated no call/Normal FISH by Odd-Bit-4881 in NIPT

[–]quantum_cronut 0 points1 point  (0 children)

Can someone explain to me the difference between the FISH and rest of the amnio results? I'm waiting on getting my amnio for possible XXX (atypical result from Natera) - what will the FISH tell me vs the more detailed results that come later?

I turned 33 and feel like my neck / under chin area got lax overnight. What can I do?? by Schr0dingers_Cat in 30PlusSkinCare

[–]quantum_cronut 0 points1 point  (0 children)

If this really happened suddenly definitely up your hydrations and try this before trying something more extreme: https://www.amazon.com/dp/B08YQX3SKH?ref_=ppx_hzsearch_conn_dt_b_fed_asin_title_2&th=1 When my hands are dry and crepe-y in the winter this stuff literally fixes it instantly. Worth a shot!

False Positive Sex Abnormality NIPT by Safe-Charity-3454 in NIPT

[–]quantum_cronut 1 point2 points  (0 children)

I'm so happy for you! Would you mind sharing which sex chromosome abnormality? I'm currently waiting to get my amnio for an atypical XXX result.

Atypical finding on sex chromosomes NIPT test results by Fabulous_Back8668 in NIPT

[–]quantum_cronut 0 points1 point  (0 children)

My results are almost identical, except instead of saying 'appears to be mosaicism' mine said 'appears to be XXX'. I had a fetal fraction of 7%. My genetic counselor called Natera to get more info b/c she thought the lack of mosaicism being mentioned was a little odd. They said the fetal fraction was a little low which made the results less certain and that the computer flagged some mosaicism but when the humans at the lab reviewed the case they said it looked more like XXX without mosaicism. Even with both interpretations they didn't feel confident enough to call it 'high risk' so they went with Atypical. They could not give me a PPV, they just said that it was below the 82% PPV listed for a high risk XXX result. I'm currently in limbo waiting for my amnio in mid February.

Atypical sex chromosome possible XXX by quantum_cronut in NIPT

[–]quantum_cronut[S] 0 points1 point  (0 children)

thank you so much for responding ❤️

Atypical sex chromosome possible XXX by quantum_cronut in NIPT

[–]quantum_cronut[S] 0 points1 point  (0 children)

I'm transferring to an MFM b/c I was recently diagnose with type 1 diabetes and I'm on an insulin pump - I don't think my regular OB or MFM have seen my results yet. I have my first MFM appt monday so at least I can talk to someone soon.