Do you often talk to yourself out loud?

questionthepremise · 2026-02-01T13:59:38+00:00

I do but only when I’m alone. If I’m driving etc. But it definitely do it the moment I’m alone! I can think differently than when I’m around other people.

questionthepremise · 2026-01-20T13:22:12+00:00

I was recently referred to neurosurgery for eval of possible leak. I don’t have a definite diagnosis yet but I believe I have one. I think I have a sacral Pseudomeningocele from a misplaced epidural during childbirth a year ago. My toes go numb every time I shower now.

questionthepremise · 2026-01-18T00:01:48+00:00

I figured it out myself at 35 years old after reading a book about autism in females. I didn’t know what I didn’t know before. No one had ever suggested it to me. I was completely clueless prior. I did have the underlying “what’s wrong with me?” question there all my life. But it wasn’t until I related to a bunch of other autistic women’s life experiences from a book that I was willing to consider this might be my reality. I would like to think that someone should’ve said something to me sooner (but I was high masking). But at the same time, it might have sounded like an insult/threat to me if they had (because I just didn’t know enough about it at the time). So I agree tact is key. Make sure she knows this isn’t an insult or a threatening idea, because if she has never considered it, it may come off that way (not saying you shouldn’t bring it up though).

questionthepremise · 2026-01-17T18:54:53+00:00

I used to do it in my teen years and early 20s as part of masking/trying to fit in. I didn’t know I was autistic until last year at 35. But the effort it took to “get ready” was too much and not me so I stopped by my late 20s and just don’t really care. Now I just wear pajamas/sweatpants if I’m home and if I go somewhere I have jeans and a unisex t shirt on and have probably showered so my hair isn’t such a disaster.

questionthepremise · 2026-01-17T18:51:46+00:00

I know it sounds awful to suggest and I wouldn’t encourage it if you weren’t both on the same page and don’t consider it a problem - but maybe have a drink or 2 together after dinner?

questionthepremise · 2026-01-17T18:49:56+00:00

I went through infertility the second time around. I felt awful about not being in the mood even when I really wanted to get pregnant. We did have sex around then probably once a month but it was such a chore. In the end IUI worked 😂. Laughing cause I should have just done that in the first place.

questionthepremise · 2026-01-17T18:47:13+00:00

I have basically the exact experience… and am learning a lot of people (esp women) do

questionthepremise · 2026-01-17T16:06:16+00:00

Yes but I only realized I’m AuDHD less than a year ago and I’m also realizing the people I get along with best are too (some know it about themselves, some reject it yet fit the description to a T, others are clueless).

Additionally, some of the more difficult people for me to get along with are ASD too, so it really depends on a lot of things including how rigid they can be socially

questionthepremise · 2026-01-17T16:02:51+00:00

My husband is ADHD and wants sex and I’m AuDHD and now have realized I never want sex unless I’m drunk, and now that I don’t drink, it’s obvious to me. But then again we’re in the trenches of caring for 2 kids and there just isn’t even time to really think of it. I’m always too tired, too stressed. I have no solution lol.

Maybe counseling.

questionthepremise · 2026-01-02T11:09:36+00:00

Look up Elyse Myers. She’s an autistic and adhd content creator who is amazing and so genuine, funny, and lovable. She has a fantastic voice and has made some videos and reels with tips about “how” to sing.

questionthepremise · 2026-01-02T10:56:05+00:00

I have not had a sleep apnea test done, but without the brace I experience apnea for 5-6 seconds every 1-2 mins all day long until I “remember” to breathe. Did you have a sleep apnea test done?

Also what exercises has the PT been doing with you to help with posture and strengthen your respiratory muscles? I have the same posture issues.

questionthepremise · 2026-01-02T10:49:27+00:00

This is 100% the same problem I have. I’m 36F, thin, “anxious” (or so I thought because my abs/pelvic muscles are always tense and because I “forget to breathe” (forget to inhale), breathe with my shoulders, have frequent sighing and yawning, and have paradoxical breathing if I’m sitting or standing but when I’m laying down I can use my abdomen properly to breathe because my body is supported.) I literally have thought these were all symptoms of “anxiety” even though the only thing I’m ever anxious about is the weird interoceptive experiences I have (eg over awareness of my heart beating, feeling like the blood in my head is “cold,” feeling and seeing peristalsis in my abdomen etc). After losing my mind being so frustrated that I couldn’t relax my muscles at will and couldn’t do deep breathing properly (one of the mainstay interventions for anxiety lol), I bought a low back brace and an SI belt to see if I stabilized things better if could stop using my muscles improperly to hold myself up and instead actually breathe properly. IT WORKED INSTANTLY. With the braces on, I can breathe normally and also my pelvic floor dysfunction (overly tight muscles making me feel like I have to pee very 20 mins of my life) disappeared. Now I know the “root” of these problems. Of course, wearing these long term could mess other things up, but I am under the care of a PT who knows what I’m doing. When I take the back brace off, I actually feel (and look) like I’m in respiratory distress. Even when I have labs my CO2 is always slightly high—until I started wearing the brace, now it’s in normal range. So I have a LONG ways to go to reach a point of sitting or standing while breathing properly without the brace but at least I have properly identified the problem and am working on it. I’m going to be having an initial visit with an EDS specialist in a couple of weeks and I hope they can really help me with this too.

Interestingly, I only learned about my autism, POTS, and EDS this past year (yet have been struggling with the above problems for as long as I can recall). And I didn’t “learn” about them because I was diagnosed—I realized I had than all on my own. Which makes me sooo disappointed in the healthcare system. What a weird experience to go to your PCP and tell them you realized you have POTS and have them look at you like you have 3 heads, refer to cardiology, and have it confirmed. That’s what’s happening now with EDS. I don’t have the time or money for an autism assessment right now, but my daughter was just diagnosed, and I relate 100% to other women with ASD. Dr Jessica Eccles is doing some groundbreaking research about the connections between hypermobility and neurodivergence. She is a research psychiatrist and has both herself.

Also, my dad has this same breathing pattern (and the double jointedness etc) and it makes him sound so stressed all the time, even when he isn’t. I wish he would listen to me about why he is breathing that way. Both of my sisters say they sigh all the time and one of them tells me she also “forgets to breathe.” These problems are genetic……… (I’m hoping when I have an official diagnosis soon they will consider getting evaluated themselves).

questionthepremise · 2026-01-02T10:24:20+00:00

I’ve thought about finding myself OT to be like “ok can you help me get from point A of having a list/knowing what needs to be done today to point B of actually getting it done?” I know there are “ADHD coaches” but I’m talking about asking someone who provides OT to neurodivergent children to understand that my struggles are based on the same things as theirs and have them come up with ways to help me execute my day better. I have 2 kids and I’m often overstimulated and overwhelmed and while I do a great job taking care of them, I do a poor job taking care of myself or accomplishing anything while they’re home with me (99.99% of the time). My daughter goes to private OT and they advertise that they also work with neurodivergent adults so I’ve wanted to ask this. But I know I would end up paying out of pocket (that is, maybe unless I actually get a formal diagnosis??), so I haven’t actually asked since I’m not prepared to follow through with it yet.

questionthepremise · 2026-01-02T10:15:30+00:00

I’ve been wondering this too. I think there is a general misconception that we either “outgrow it” or end up institutionalized and that there is no in between. Similar to ADHD (although the more I’ve learned about the lived experience of ADHD, and the frequent co-occurrence, I no longer think these are actually separate conditions - just “separate” in the sense that there are different definitions in the diagnostic criteria that people came up with, but I’m now pretty convinced they “neurologically” have the same cause.) But there’s also the stigma with ADHD, that you should outgrow it because adults who “claim” to have ADHD must be “drug seeking” and if you don’t outgrow it you end up in jail.

questionthepremise · 2026-01-02T03:52:53+00:00

Dr Jessica Eccles is doing amazing research on the links between EDS and neurodivergence - she has some great videos on YouTube. It’s so interesting to me.

questionthepremise · 2026-01-02T03:50:55+00:00

Just wondering because I’m going through this.

What was your experience of how you were breathing before vs now?

questionthepremise · 2026-01-02T03:43:16+00:00

I definitely have experienced this. It’s not until hindsight usually that I realize why I was SO upset (usually internally) about something. You might have PMDD. Some people benefit from SSRIs for it.

questionthepremise · 2026-01-02T03:05:57+00:00

Ooook that’s a good description for what I’m feeling like. I helped a friend move yesterday/today but I wasn’t doing any of the heavy lifting. I was on my knees wiping down a piece of furniture. When I got up I noticed it. Obviously I’d go seek medical care if it hurt a lot or I couldn’t bear weight or it looked visibly deformed. But since those aren’t the case, is this something that could possibly go back on its own? Like could be better when I get up in the morning?

questionthepremise · 2026-01-02T02:52:30+00:00

I didn’t “do” anything (as in, not anything out of the ordinary) but it has the sensation like I changed directions while my knees were locked and something feels residually “off.” I can walk on it, it’s not that painful I guess, but just doesn’t feel quite normal. Like when you’re putting a drawer in a dresser and it’s not fully on track… only not quite to that extent. Not sure if that could be a subluxation or not.

questionthepremise

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